Project 8p Foundation EIN 83-2545342

Project 8p Foundation FY2023 filing

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Accelerating discovery of treatments for chromosome 8P disorders. For fiscal year 2023 it reported $2.0M in revenue, $913K in expenses, and $2.3M in net assets.Pt I

Type
Public charity (501(c)(3)) · Diseases & Disorders
Location
New York, NY
Website
www.project8p.org
Filings
5 on file (2020–2023)
Revenue
$2.0MFY2023
Expenses
$913K
Net assets
$2.3M
People
6
Filings
5
Updates
0
More identity details & actions ⌄
EIN  83-2545342 Public charity (501(c)(3)) New York, NY
Form 990 (PDF)
You’re viewing the FY2023 filing — not the latest on file. See the latest (FY2024) →
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Figures match the IRS filing checked 9/11/26 · see original: IRS
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Size
$1–10M
What they do
Accelerating discovery of treatments for chromosome 8P disorders.
Leadership
Jahn Marie Surette · Director
Money in and out
$2.0M revenue, $913K expenses
Bottom line
87% program efficiency
Where the money goes · FY2023
Total revenue
$2.0M
Pt VIII · Ln 12
Total expenses
$913K
Pt IX · Ln 25
Net assets
$2.3M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $1.1M
Where spending went · Part IX cols B–D
Program services $0.87 Management & general $0.03 Fundraising $0.10
Program efficiency
87%
of spending reaches programs
Operating runway
19.2mo
months of highly liquid reserves at operating expense rate
Surplus margin
+55%
revenue over expenses, this year

Summary of the Filing

Part I · fiscal year 2023 · Form 990
Revenue
$2.0M
FY2023▲ +229%
Expenses
$913K
FY2023▲ +203%
Total assets
$2.5M
FY2023▲ +114%
Total liabilities
$189K
FY2023
Total revenue
$2.0M
Pt VIII · Ln 12
Total expenses
$913K
Pt IX · Ln 25
Net assets
$2.3M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$1.1M
Total assetsPt X · Ln 16$2.5M
Program-expense ratioPt IX · col B87%
Voting members of governing bodyPt I · Ln 36
Independent voting membersPt I · Ln 46
Mission & Programs · Part III

Where the work happens

3 program services account for $791K of program spending, described in the organization's own filed words · FY2023.
01

Research Progress

In 2023, the Foundation funded 4 research projects, collaborating with UCSD, Yale, Mount Sinai, Van Andel Institute, Autism BrainNet and others to advance the understanding of 8p disorders.

$709Kprogram expense
02

Community Outreach

We supported over 200 families through open science and clinical research roundtables and our Share What Works programming where leading experts and families shared their findings, experiences, and goals towards improving quality of life due to unmet medical needs.

$51Kprogram expense
03

Clinics and Care

Our MultiDisciplinary clinic is implementing a standard of care with a large team of dedicated specialists to understand this rare complex disorder with tremendous support to families. Clinical Care Guidelines are under review towards publication.

$30Kprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CProject 8p Foundation
EINHdr · item D83-2545342
Principal addressHdr · item CNew York, NY
WebsiteHdr · item Jwww.project8p.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MNY
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFDiseases & Disorders (G20)
Ruling yearIRS BMFJul 2019

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a6
Independent voting membersPt VI · Ln 1b6
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aNo
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
Founderceotreasurer
$0Pt VII · Sec A
Director Secretary
$0Pt VII · Sec A

Lauren Chaby’s $102K as Executive Director is at the 24th percentile of top reported officer pay among 731 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

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Statement of Revenue

Part VIII
Contributions & grants$1.9M · 96%
Investment income$31K · 2%
Other revenue$49K · 2%
Contributions & grants96%$1.9M
Investment income2%$31K
Other revenue2%$49K
Total revenueLn 12$2.0M

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.87 Management & general $0.03 Fundraising $0.10
Program services87%$791K
Management & general3%$28K
Fundraising10%$94K
Total functional expensesLn 25$913K

Balance Sheet

Part X · end of year
CashLn 1$1.4M
Total assetsLn 16$2.5M
Total liabilitiesLn 26$189K
Total net assetsLn 32$2.3M
Months of cash on handcomputed19.0

Financial Metrics

Form 990 · FY2023 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $1.4M · Operating expenses (Pt IX) $913K · Less non-cash grants $10K · Cash operating expenses/yr $903K
19.2 months
Where the money goes
Program services
Program services $791K · Total expenses $913K
87%
Management & General
Management & general $28K · Total expenses $913K
3%
Fundraising
Fundraising $94K · Total expenses $913K
10%
Cost to raise $1
Fundraising expense (3-yr avg) $49K · Solicited contributions (3-yr avg) $1.0M
$0.05 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $1.9M · Total revenue $2.0M
96%
Government reliance
Government grants — · Total revenue $2.0M
Earned-income share
Program service revenue $0 · Total revenue $2.0M
0%
Investment reliance
Investment income $31K · Total revenue $2.0M
+2%
Program self-sufficiency
Program service revenue $0 · Total expenses $913K
0%
Growth & trend
Revenue growth (YoY)
This year $2.0M · Prior year $612K
+229%
Net-asset trend (YoY)
End of year $2.3M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $2.0M · Expenses $913K
+55%
Liabilities-to-Assets
Total liabilities — · Total assets $2.5M
Net-asset ratio
Net assets $2.3M · Total assets $2.5M
92%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) — · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $2.5M
Excludes program-related investments (Pt X, ln 13)
People & payroll
Highest Reported Total Compensation
Individual Jahn Marie Surette · Reported title Director · Highest reported compensation $0 · Total expenses $913K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $21K · Total expenses $913K
2%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 87%
Overhead ratio 3%
Fundraising cost ratio 5%
Revenue growth 229%
Investment management fee ratio <0.01%
Legal fee ratio 0.4%
Accounting fee ratio 0.2%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$270
Grants paid · 16 grants · $1.1M · 2021–2024
University of ConnecticutFY2024$79,923
Yale UniversityCT · FY2024$79,647
Uc SandiegoCA · FY2024$49,641
Uplifting Athletes INCPA · FY2024$10,000
Uc SandiegoCA · FY2023$204,311
Yale UniversityCT · FY2023$60,686
Rare-XDC · FY2022$100,000
Other Less Than 5000FY2022$1,318
RarebaseFY2021$50,000
Univof Washington Eichler LabFY2021$44,211

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$1.9M revenue · ⤓ 990 PDF
FY2023$2.0M revenue · viewing · ⤓ 990 PDF
FY2022$612K revenue · ⤓ 990 PDF
FY2021$644K revenue · ⤓ 990 PDF
FY2020$891K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2023IRS
Classification, formation year, addressIRS Business Master File
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