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Project 8p Foundation

Tax-deductible

New York, NY501(c)(3)Diseases & DisordersEIN 83-2545342Revenue $1.9M in FY2024

On file with the IRSproject8p.org787 Seventh Avenue 31st Floor, 10019-6018 · New York, NYTax-exempt since Jul 2019Publicly supported charity — 170(b)(1)(A)(vi)

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To accelerate the discovery of treatments for chromosome 8P disorders.

501(c)(3) charity; gifts are tax-deductible.
85¢ of each $1 spent went to programs.
Run by 16 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 5
filings with a surplus
Average surplus $539K a year · 45% of revenue · last 5 filings
Looks good: a surplus in 5 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
85%
of spending
Looks good: 85% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$102K
to officers and key staff · 7% of spending
Top officer’s pay lower than 76% of similar orgs
Looks good: pay to officers and key staff is 7% of spending; 15% or less.
Pt VII · Sec A
Cash reserves
15 mo
of spending, in cash
Looks good: 14.8 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $270
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$87K
3% of total assets
Looks good: liabilities are 3% of assets; 50% or less.
Pt X · Ln 26
Independent board members
4
of 4 voting members
Looks good: 4 of 4 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.9M
-6% vs prior year
Spent
$1.4M
To programs
85%
Net assets
$2.9M
By yearFY2020–FY2024
Revenue
$1.9M
FY2024▼ -6%
Tap a bar for its year
Revenue by fiscal year
FY2020$891K
FY2021$644K
FY2022$612K
FY2023$2.0M
FY2024$1.9M
Expenses
$1.4M
FY2024▲ +52%
Tap a bar for its year
Expenses by fiscal year
FY2020$180K
FY2021$570K
FY2022$301K
FY2023$913K
FY2024$1.4M
Net assets
$2.9M
FY2024▲ +24%
Tap a bar for its year
Net assets by fiscal year
FY2020$853K
FY2021$974K
FY2022$1.2M
FY2023$2.3M
FY2024$2.9M

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

85 cents of each dollar spent went to programs.

Program services 85% · $1.2M Management & general 11% · $156K Fundraising 4% · $51K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

6 people listed on the 990; $102K paid to officers and key staff.

Part VII, Section A · reportable compensation
Lauren Chaby
Executive Director
$102,083Pt VII · Sec A
Wissam Nesr
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Bina Shah
Founderceotreasurer
$0Pt VII · Sec A
$0Pt VII · Sec A

Lauren Chaby’s $102K as Executive Director is at the 24th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See Project 8p Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Accelerating discovery of treatments for chromosome 8P disorders.

Questions for Project 8p Foundation

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Provided by the organization

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3 programs · $1.2M · in their own filed words · FY2024
01

Scientific Programs

Project 8p Foundation partners with top researchers and biopharma to uncover the causes of chromosome 8p disorders and improve the lives of those affected. Our work addresses urgent biological questionssuch as symptom progression, mitochondrial dysfunction, gut-brain interactions, and cellular stressto deliver actionable clinical tools…

$927Kprogram expense
02

Community Outreach & Conferences

Project 8p supported over 200 families with clinical tools, education, and services. We hosted a three-day Family & Science Conference, bringing together researchers, clinicians, and families to foster collaboration and accelerate progress.

$219Kprogram expense
03

Patient Impact (clinics & Care)

Project 8p advanced its mission to improve clinical care for individuals with chromosome 8p disorders through several key initiatives. We published the first-ever Clinical Care Guidelines for 8p, providing an evidence-informed framework to guide physicians and care teams worldwide.

$34Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Friezo Family FoundationFY2025$270
Total grants receivedfrom 1 funder$270
Grants paid · 16 grants · $1.1M · 2021–2024
Regents of the University of CaliforniaCA · FY2024$220,994
University of ConnecticutFY2024$79,923
Yale UniversityCT · FY2024$79,647
Uc SandiegoCA · FY2024$49,641
Children's Hospital Colorado FoundationCO · FY2024$20,000
Uplifting Athletes INCPA · FY2024$10,000
Uc SandiegoCA · FY2023$204,311
Yale UniversityCT · FY2023$60,686
William Marsh Rice UniversityTX · FY2023$48,682
University of Colorado FoundationCO · FY2023$30,000
Rare-XDC · FY2022$100,000
Children's Hospital Colorado FoundationCO · FY2022$52,500
Other Less Than 5000FY2022$1,318
RarebaseFY2021$50,000
Univof Washington Eichler LabFY2021$44,211
Children's Hospital Colorado FoundationCO · FY2021$42,500

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$1.9M
Ln 12
Gifts and grantsLn 1h$1.8M
Investment incomeLn 3$53K
Other incomeLn 4–11$29K
Money outPt IX
$1.4M
Ln 25
Programscol B$1.2M
Managementcol C$156K
Fundraisingcol D$51K
Owns and owesPt X
$2.9M
net assets · Ln 32
Cash and savingsLn 1–2$1.7M
Total assetsLn 16$2.9M
LiabilitiesLn 26$87K
PeoplePt VI, VII
6
listed · VII A
PaidVII A1
Voting boardVI 1a4
IndependentVI 1b4
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$1.8M
Fees for servicesLn 2g$19K
Investment incomeLn 3$53K
Other incomeLn 4–11$29K
Total revenueLn 12$1.9M
Assets in detailPt X, end of year
CashLn 1$1.4M
SavingsLn 2$290K
Cash and savings togetherLn 1–2$1.7M
Total assetsLn 16$2.9M
LiabilitiesLn 26$87K
Net assetsLn 32$2.9M
OperationsPt I, VI
EmployeesI 50
VolunteersI 616
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$1.4M$1.7M
Total assetsLn 16$2.5M$2.9M
LiabilitiesLn 26$189K$87K
Net assetsLn 32$2.3M$2.9M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$425K$425K
Grants to domestic individualsLn 2$2K$2K
Grants and assistance to foreign recipientsLn 3$63K$63K
Pay of current officers, directors and key staffLn 5$102K$57K$30K$15K
Other salaries and wagesLn 7$127K$71K$38K$19K
Payroll taxesLn 10$20K$11K$6K$3K
Legal feesLn 11b$21K$6K$14K$462
Accounting feesLn 11c$20K$6K$14K$458
Investment management feesLn 11f$1K$1K
Other fees for servicesLn 11g$401K$364K$36K$1K
Advertising and promotionLn 12$5K$4K$891
Office expensesLn 13$8K$2K$4K$2K
Information technologyLn 14$50K$35K$4K$10K
TravelLn 17$34K$28K$6K$334
Conferences, conventions and meetingsLn 19$98K$98K
InsuranceLn 23$1K$1K
Other expenses (24a–d)Ln 24$8K$7K$2K
Total functional expensesLn 25$1.4M$1.2M$156K$51K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $1.9M$1.4M$501K$2.9M 990 PDF
FY2023 $2.0M$913K$1.1M$2.3M 990 PDF
FY2022 $612K$301K$310K$1.2M 990 PDF
FY2021 $644K$570K$74K$974K 990 PDF
FY2020 $891K$180K$712K$853K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $1,888,508 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,930,820$1,787,094
I-9 Program service revenue$19,288
I-10 Investment incomePrior year $31,051$53,281
I-11 Other revenuePrior year $49,488$28,845
I-12 Total revenuePrior year $2,011,359$1,888,508
I-13 Grants and similar amounts paidPrior year $378,466$491,099
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $20,686$248,683
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $514,157$647,660
I-18 Total expensesPrior year $913,309$1,387,442
I-19 Revenue less expensesPrior year $1,098,050$501,066
Part VI · Governance 4 of 4 board members independent, 1 to look at
VI-1a Voting members of the governing body4
VI-1b Independent voting members4
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $1,888,508 across 6 lines filed
VIII-1f All other contributions, gifts and grants$1,787,094
VIII-1h Total contributions, gifts and grants$1,787,094
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $19,288$19,288
VIII-3 Investment incomeExcluded from tax $53,281$53,281
VIII-8 Net income from fundraising eventsExcluded from tax $28,845$28,845
VIII-12 Total revenueRelated to mission $19,288 · Unrelated business $0 · Excluded from tax $82,126$1,888,508
Part IX · Statement of functional expenses $1,387,442 across 17 lines filed
IX-1 Grants to domestic organizationsPrograms $425,418$425,418
IX-2 Grants to domestic individualsPrograms $2,500$2,500
IX-3 Grants and assistance to foreign recipientsPrograms $63,181$63,181
IX-5 Pay of current officers, directors and key staffPrograms $56,761 · Management $30,143 · Fundraising $15,179$102,083
IX-7 Other salaries and wagesPrograms $70,629 · Management $37,507 · Fundraising $18,889$127,025
IX-10 Payroll taxesPrograms $10,884 · Management $5,780 · Fundraising $2,911$19,575
IX-11b Legal feesPrograms $6,398 · Management $13,716 · Fundraising $462$20,576
IX-11c Accounting feesPrograms $6,351 · Management $13,615 · Fundraising $458$20,424
IX-11f Investment management feesManagement $1,141$1,141
IX-11g Other fees for servicesPrograms $363,845 · Management $35,891 · Fundraising $1,208$400,944
IX-12 Advertising and promotionPrograms $4,324 · Management $891$5,215
IX-13 Office expensesPrograms $2,327 · Management $4,312 · Fundraising $1,573$8,212
IX-14 Information technologyPrograms $35,149 · Management $4,348 · Fundraising $10,280$49,777
IX-17 TravelPrograms $27,836 · Management $5,544 · Fundraising $334$33,714
IX-19 Conferences, conventions and meetingsPrograms $97,962$97,962
IX-23 InsuranceManagement $1,294$1,294
IX-24 Other expenses (24a–d)Programs $6,614 · Management $1,787$8,401
IX-25 Total functional expensesPrograms $1,180,179 · Management $155,969 · Fundraising $51,294$1,387,442
Part X · Balance sheet $2,943,272 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $573,374$1,424,495
X-2 Savings and temporary cash investmentsStart of year $874,742$289,660
X-3 Pledges and grants receivableStart of year $1,043,892$1,229,117
X-16 Total assetsStart of year $2,492,008$2,943,272
X-17 Accounts payable and accrued expensesStart of year $188,594$71,422
X-18 Grants payable$15,549
X-26 Total liabilitiesStart of year $188,594$86,971
X-27 Net assets without donor restrictionsStart of year $1,303,414$1,706,301
X-28 Net assets with donor restrictionsStart of year $1,000,000$1,150,000
X-32 Total net assets or fund balancesStart of year $2,303,414$2,856,301
X-33 Total liabilities and net assetsStart of year $2,492,008$2,943,272
Part XI · Reconciliation of net assets $2,856,301 net assets at year end
XI-1 Total revenue$1,888,508
XI-2 Total expenses$1,387,442
XI-3 Revenue less expenses$501,066
XI-4 Net assets at start of year$2,303,414
XI-5 Net unrealized gains (losses) on investments$51,821
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$2,856,301

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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