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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
New York Genome Center INC Advancing genomic research to drive novel biomedical discoveries to improve human health. 80-0631734 · FY2024 New York, NY $82.3M $84.3M $167.0M 81% 2% 226 501(c)(3)
Foundation for Prader Willi Research Supports RESEARCH to advance the understanding and treatment of PRADER-WILLI syndrome 31-1763110 · FY2024 Covina, CA $6.2M $6.1M $8.9M 87% 6% 11 501(c)(3)
International Rett Syndrome Foundation To fund research aimed at potential cures for Rett syndrome and to empower families through education 31-1682518 · FY2024 West Chester, OH $4.8M $5.5M $5.3M 86% 8% 9 501(c)(3)
Project Als INC To recruit the world's best research scientists and clinicians to work together toward an understanding of… 13-4019464 · FY2023 New York, NY $3.0M $3.4M $1.5M 88% 4% 10 501(c)(3)
Inadcure Foundation INC Research towards possible treatment and cure for infantile neuroaxonal dystrophy 81-4763783 · FY2025 Fairfield, NJ $1.6M $660.2K $1.5M 90% 3% 501(c)(3)
Stxbp1 Foundation To create awareness in the disorders associated with STXBP1 mutations. Fund and drive research discovery of a… 82-1439459 · FY2024 Holly Springs, NC $1.4M $1.3M $1.5M 97% 0% 501(c)(3)
Adnp Kids Research Foundation Rare disease support, patient advocacy, education, and scientific research and funding treatment studies and… 30-0964243 · FY2023 Brush Prairie, WA $1.1M $1.1M $428.1K 100% 0% 501(c)(3)
Cure Lbsl Provide funding to rare disease research & support affected families 46-2829156 · FY2024 Arlington, VA $1.1M $845.2K $955.6K 100% 0% 1 501(c)(3)
Kansas City Heartrhytm Research Foundation Conducting world class RESEARCH on cardiac rhythm disorders 82-4089849 · FY2024 Overland Park, KS $738.1K $778.1K $681.9K 95% 0% 501(c)(3)
Cureshank To accelerate the development of treatments for phelan-mcdermid syndrome and shank-related disorders. 84-2240648 · FY2024 Los Angeles, CA $597.8K $528.2K $1.1M 86% 6% 501(c)(3)
The Aidan Project A resource center for children with developmental delays. 82-1247276 · FY2024 Kansas City, MO $511.9K $247.1K $1.0M 36% 60% 1 501(c)(3)
Genetic Information Research Institute Maintenance and expansion of specialized databases relating to repetitive DNA sequences. 77-0396481 · FY2023 E Palo Alto, CA $506.3K $447.2K $2.4M 85% 0% 3 501(c)(3)
Achieving Cures Together To save lives through advancing microbiome research. 47-5158356 · FY2024 St Louis Park, MN $440.5K $403.8K $290.7K 68% 0% 2 501(c)(3)
Bardet Biedl Syndrome Foundation The organization's mission is to build a community of support for individuals and families, provide… 46-3343666 · FY2022 West Chester, PA $372.6K $172.2K $609.1K 100% 0% 501(c)(3)
International Foxp1 Foundation Support those impacted by FOXP1 syndrome and raise funds for further research into FOXP1 syndrome and… 85-4079051 · FY2024 Hudsonville, MI $339.3K $229.0K $367.5K 81% 2% 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Familial Dysautonomia Now Foundation To discover new treatments and cures for patients with FAMILIAL DYSAUTONOMIA, a rare, fatal, genetic disease… 26-3531031 · FY2024 Buffalo Grove, IL $289.0K $233.9K $1.1M 93% 0% 501(c)(3)
Columbus Children's Foundation Accelerating the most effective gene therapy treatments for children with ultra-rare diseases. 83-1456169 · FY2023 Chapel Hill, NC $267.8K $619.0K $1.1M 60% 10% 1 501(c)(3)
Center for Genomic Pathology 26-0853282 · FY2023 Davis, CA $189.6K $0 501(c)(3)
Curenfwithjack Fund research for and educate public about Neurofibromatosis 46-5178351 · FY2024 Alpharetta, GA $179.3K $308.0K $869.4K 72% 22% 501(c)(3)
International Mammalian Genome Society INC 62-1828826 · FY2024 Oak Ridge, TN $177.6K $369.6K 501(c)(3)
Peptide Therapeutics Foundation The mission of Peptide Therapeutics Foundation is to provide and promote public and charitable educational… 26-3728931 · FY2024 San Diego, CA $174.5K $405.0K 501(c)(3)
Cush IT to the Limit Advance research patient support for rare blood cancers 84-1954739 · FY2024 Sammamish, WA $168.8K $29.3K $214.3K 85% 0% 501(c)(3)
Mowat-Wilson Syndrome Foundation 46-3884135 · FY2024 Las Vegas, NV $156.7K $224.1K 501(c)(3)
American Cytogenetics Conference INC 20-3064454 · FY2024 Mt Juliet, TN $150.5K $19.6K 501(c)(3)
Skraban-Deardorff Syndrome Foundation 88-2790552 · FY2025 Indian Trail, NC $149.2K $323.1K 501(c)(3)
Cure Ahc Foundation Research project with aarhus university(denmark) 46-1475239 · FY2024 Rolesville, NC $145.5K $81.0K $580.6K 67% 7% 501(c)(3)
Innovative Genomics Foundation 88-2252052 · FY2024 Berkeley, CA $140.0K $127.9K 501(c)(3)
Discovery Therapy Network 84-3224991 · FY2024 Macon, GA $122.5K $1 501(c)(3)
Aicardi Syndrome Foundation To provide support to children afflicted with AICARDI SYNDROME 36-3781527 · FY2023 St Charles, IL $113.5K $273.4K $387.4K 95% 0% 501(c)(3)
The American Society of Pediatric Nephrology Foundation Expanding research and educational programs 26-3829736 · FY2024 McLean, VA $98.5K $46.9K $514.3K 84% 0% 501(c)(3)
Smashsmard INC Raise awareness of smard1 and forward gene therapy 82-5388567 · FY2024 Lincolnshire, IL $92.3K $90.2K $273.3K 100% 0% 501(c)(3)
Ella Foard Foundation for Rett Syndrome 27-1106332 · FY2024 Charlotte, NC $89.5K $87.7K 501(c)(3)
Ependymoma Research Foundation 83-2956990 · FY2024 Lexington, MA $89.3K $101.3K 501(c)(3)
Spina Bifida Resource Network 22-2562457 · FY2024 Flemington, NJ $86.3K $48.3K 501(c)(3)
Cre8innovations 88-2813955 · FY2024 Oakland, CA $75.6K $0 501(c)(3)
Wittek Research Foundation for Hypertrophic Cardiomyopathy INC 86-1682122 · FY2023 Tenafly, NJ $73.9K $0 501(c)(3)
Apoe Foundation 73-1540498 · FY2024 Norman, OK $66.6K $178.9K 501(c)(3)
Consortium for Top-Down Proteomics 83-3404154 · FY2024 Cambridge, MA $34.0K $6.0K 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org