National Scleroderma Foundation EIN 52-1375827 Form 990 (PDF) Claim this org

National Scleroderma Foundation

Not yet claimed Claim this org →

Supports scleroderma patients and families, educates the public, and funds research for treatments and a cure. For fiscal year 2025 it reported $6.6M in revenue, $6.8M in expenses, and $8.3M in net assets.Pt I

Founded
1993
Type
Public charity (501(c)(3)) · Medical Research
Location
Danvers, MA
Website
www.scleroderma.org
Filings
5 on file (2020–2025)
Revenue
$6.6MFY2025
Expenses
$6.8M
Net assets
$8.3M
People
24
Filings
5
Updates
0
More identity details & actions ⌄
EIN  52-1375827 Public charity (501(c)(3)) Danvers, MA Founded 1993
Form 990 (PDF)
Compare with another nonprofit →
Figures match the IRS filing checked 8/18/26 · see original: IRS
Is this your organization?
Claim this profile to manage it and share your story.
Claim
Provided by the organization

This section is blank until National Scleroderma Foundation claims this page.

Know this organization? Claim it to add your story

Size
$1–10M
What they do
Supports scleroderma patients and families, educates the public, and funds research for treatments and a cure.
Leadership
Mary J Wheatley · CEO · $253K
Money in and out
$6.6M revenue, $6.8M expenses
Bottom line
63% program efficiency
Where the money goes · FY2025
Total revenue
$6.6M
Pt VIII · Ln 12
Total expenses
$6.8M
Pt IX · Ln 25
Net assets
$8.3M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$155K
Where spending went · Part IX cols B–D
Program services $0.63 Management & general $0.18 Fundraising $0.19
Program efficiency
63%
of spending reaches programs▼ -7% vs prior filing year
Operating runway
15.7mo
months of highly liquid reserves at operating expense rate▼ -10% vs prior filing year
Surplus margin
-2%
revenue over expenses, this year▲ +94% vs prior filing year

Summary of the Filing

Part I · fiscal year 2025 · Form 990
Revenue
$6.6M
FY2025▲ +34%
Expenses
$6.8M
FY2025▼ -2%
Total assets
$11.3M
FY2025▲ +0.9%
Total liabilities
$2.9M
FY2025▲ +4%
Total revenue
$6.6M
Pt VIII · Ln 12
Total expenses
$6.8M
Pt IX · Ln 25
Net assets
$8.3M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$155K
Total assetsPt X · Ln 16$11.3M
Program-expense ratioPt IX · col B63%
Voting members of governing bodyPt I · Ln 319
Independent voting membersPt I · Ln 419
Mission & Programs · Part III

Where the work happens

2 program services account for $4.3M of program spending, described in the organization's own filed words · FY2024.
01

A relentless force in finding a cure and improving the lives of people affected by scleroderma, the national scleroderma foundation advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks.

$2.7Mprogram expense
02

Research

In fy 2025, the foundation made a commitment of $1.2 million to fund research. This funding aims to stimulate and support investigations into better understanding the mechanisms that cause the disease, how to prevent and accurately diagnosis and treat the disease, and ultimately find a cure for scleroderma.

$1.5Mprogram expense

Run this program? Claim this org to tell your story

Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CNational Scleroderma Foundation
EINHdr · item D52-1375827
Principal addressHdr · item CDanvers, MA
WebsiteHdr · item Jwww.scleroderma.org
Year of formationHdr · item L1993
State of legal domicileHdr · item MMA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFMedical Research (H400)
Ruling yearIRS BMFJan 1985

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a19
Independent voting membersPt VI · Ln 1b19
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2No

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation · most recent filed roster (FY2024); the FY2025 filing did not itemize Part VII
$253,027Pt VII · Sec A
VP of Community Engagement
$144,410Pt VII · Sec A
VP of Finance
$131,092Pt VII · Sec A
Senior Director, Chapter Operations
$113,580Pt VII · Sec A
Senior Director, Mission Delivery
$113,309Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A

Mary J Wheatley’s $253K as CEO is at the 76th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 7 named individuals · Part VII

NameFY2025FY2024FY2023FY2021FY2020
Mary J Wheatley$253,027$235,945$226,252
Michael B Hyde$131,092$158,406$150,589$119,808
Ashley M Pruett$144,410$127,832
Robert J Riggs$119,708$115,042
Elizabeth J Mulroy$113,580
Catherine M Anastasia$113,309
Kerri Connolly$102,480

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See National Scleroderma Foundation executive salaries →

Are you one of these people? Claim this org to confirm your role

Statement of Revenue

Part VIII
Contributions & grants$5.6M · 84%
Investment income$1.2M · 18%
Contributions & grants84%$5.6M
Investment income18%$1.2M
Total revenueLn 12$6.6M

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.63 Management & general $0.18 Fundraising $0.19
Program services63%$4.3M
Management & general18%$1.2M
Fundraising19%$1.3M
Total functional expensesLn 25$6.8M

Balance Sheet

Part X · end of year
CashLn 1$405K
Total assetsLn 16$11.3M
Total liabilitiesLn 26$2.9M
Total net assetsLn 32$8.3M
Months of cash on handcomputed0.7

Financial Metrics

Form 990 · FY2025 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $8.9M · Operating expenses/yr $6.8M
15.7 months
Where the money goes
Program services
Program services $4.3M · Total expenses $6.8M
63%
Management & General
Management & general $1.2M · Total expenses $6.8M
18%
Fundraising
Fundraising $1.3M · Total expenses $6.8M
19%
Cost to raise $1
Fundraising expense (3-yr avg) $987K · Solicited contributions (3-yr avg) $5.2M
$0.19 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $5.6M · Total revenue $6.6M
84%
Government reliance
Government grants — · Total revenue $6.6M
Earned-income share
Program service revenue $0 · Total revenue $6.6M
0%
Investment reliance
Investment income $1.2M · Total revenue $6.6M
+18%
Program self-sufficiency
Program service revenue $0 · Total expenses $6.8M
0%
Growth & trend
Revenue growth (YoY)
This year $6.6M · Prior year $4.9M
+34%
Revenue CAGR
FY2019 $3.8M · FY2024 $6.6M
+12%
Net-asset trend (YoY)
End of year $8.3M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $6.6M · Expenses $6.8M
-2%
Liabilities-to-Assets
Total liabilities — · Total assets $11.3M
Net-asset ratio
Net assets $8.3M · Total assets $11.3M
74%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $8.5M · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $11.3M
75%
People & payroll
Highest Reported Total Compensation
Individual Mary J Wheatley · Reported title CEO · Highest reported compensation $253K · Total expenses $6.8M
4%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $3.3M · Total expenses $6.8M
48%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 63%
Overhead ratio 18%
Fundraising cost ratio 23%
Revenue growth 34%
Investment management fee ratio 0.6%
Legal fee ratio 0.4%
Accounting fee ratio 0.7%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2025
See all 3 funders →
Grants paid · 37 grants · $6.3M · 2019–2024
Trustees of Dartmouth CollegeNH · FY2024$199,998
Yale UniversityCT · FY2024$199,998
Johns Hopkins UniversityMD · FY2024$199,998
University of WashingtonFY2024$199,998
Yale UniversityCT · FY2024$199,998
Virginia Commonwealth UniversityFY2023$200,000
The University of Texas at El PasoFY2023$200,000
Cedars-Sinai Medical CenterCA · FY2023$200,000
Unitemized GrantFY2023$12,000
Fnih Biomarkers Consortium ProjectMD · FY2022$200,000
University of MinnesotaFY2022$200,000
Hackensack Meridian Health INCNJ · FY2022$200,000
Trustees of Boston UniversityMA · FY2022$200,000
See all 37 grants →

Similar Organizations

Closest in mission — by what they do
See all organizations like National Scleroderma Foundation →

Compare

Search another nonprofit to view revenue, expenses, assets, key metrics, and leaders side by side

Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2025 (Latest)$6.6M revenue · viewing · ⤓ 990 PDF
FY2024$4.9M revenue · ⤓ 990 PDF
FY2023$6.9M revenue · ⤓ 990 PDF
FY2022not on file
FY2021$4.2M revenue · ⤓ 990 PDF
FY2020$3.8M revenue · ⤓ 990 PDF

Want to add your own materials alongside these filings? Claim this org

Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2025IRS
Classification, formation year, addressIRS Business Master File
Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

If you ARE the filing organization, claim this org and add context

Made it to the end? Claim this organization

All figures are derived from public IRS Form 990 filings and are presented without evaluation of any organization. philanthropy.org does not rate, score, or rank organizations, including the peer-cohort and compensation comparisons above.