Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 1985.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
68 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
19 people listed on the 990; $522K paid to officers and key staff.
Mary J Wheatley’s $253K as CEO is at the 76th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 7 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Mary J Wheatley | $253,027 | $235,945 | $226,252 | — | — |
| Michael B Hyde | $131,092 | $158,406 | $150,589 | $119,808 | — |
| Ashley M Pruett | $144,410 | $127,832 | — | — | — |
| Robert J Riggs | — | — | — | $119,708 | $115,042 |
| Elizabeth J Mulroy | $113,580 | — | — | — | — |
| Catherine M Anastasia | $113,309 | — | — | — | — |
| Kerri Connolly | — | — | — | $102,480 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports scleroderma patients and families, educates the public, and funds research for treatments and a cure.
Questions for National Scleroderma Foundation
Your first name shows with your question. National Scleroderma Foundation answers here, for everyone.
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Education
The foundation provides education about how to live better with scleroderma for those affected by the disease, as well as their caregivers, families and support networks. The foundation is also a cme and cne provider, educating healthcare providers about signs and symptoms, timely diagnosis, and cutting-edge treatments and therapies.
A relentless force in finding a cure and improving the lives of people affected by scleroderma, the national scleroderma foundation advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.3M | $878K |
| InvestmentsLn 11–13 | $9.6M | $9.3M |
| Land, buildings, equipmentLn 10c | $32K | $49K |
| Total assetsLn 16 | $12.9M | $11.2M |
| LiabilitiesLn 26 | $3.1M | $2.8M |
| Net assetsLn 32 | $9.8M | $8.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $1.2M | $1.2M | ||
| Grants to domestic individualsLn 2 | $12K | $12K | ||
| Grants and assistance to foreign recipientsLn 3 | $200K | $200K | ||
| Pay of current officers, directors and key staffLn 5 | $444K | $153K | $265K | $26K |
| Other salaries and wagesLn 7 | $1.9M | $1.4M | $368K | $155K |
| Pension plan contributionsLn 8 | $38K | $28K | $6K | $3K |
| Other employee benefitsLn 9 | $281K | $206K | $51K | $24K |
| Payroll taxesLn 10 | $200K | $132K | $52K | $16K |
| Legal feesLn 11b | $35K | $35K | ||
| Accounting feesLn 11c | $46K | $46K | ||
| Investment management feesLn 11f | $56K | $56K | ||
| Other fees for servicesLn 11g | $499K | $364K | $27K | $108K |
| Advertising and promotionLn 12 | $14K | $8K | $3K | $3K |
| Office expensesLn 13 | $219K | $53K | $17K | $150K |
| Information technologyLn 14 | $437K | $262K | $87K | $87K |
| OccupancyLn 16 | $212K | $118K | $37K | $56K |
| TravelLn 17 | $230K | $167K | $32K | $32K |
| Conferences, conventions and meetingsLn 19 | $584K | $238K | $89K | $257K |
| Depreciation, depletion and amortizationLn 22 | $24K | $14K | $5K | $5K |
| InsuranceLn 23 | $79K | $48K | $16K | $16K |
| Other expenses (24a–d)Ln 24 | $225K | $108K | $37K | $79K |
| Total functional expensesLn 25 | $7.0M | $4.7M | $1.2M | $1.0M |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $6.6M | $6.8M | −$155K | $8.3M | 990 PDF |
| FY2024 Viewing | $4.9M | $7.0M | −$2.0M | $8.4M | 990 PDF |
| FY2023 | $6.9M | $6.5M | $454K | $9.8M | 990 PDF |
| FY2022 | Not on file | ||||
| FY2021 | $4.2M | $4.5M | −$280K | $11.4M | 990 PDF |
| FY2020 | $3.8M | $5.0M | −$1.2M | $9.5M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $4,941,722 revenue, 12 lines filed
Part VI · Governance 16 of 16 board members independent, no flags
Part VIII · Statement of revenue $4,941,722 across 8 lines filed
Part IX · Statement of functional expenses $6,956,852 across 21 lines filed
Part X · Balance sheet $11,162,466 assets, 16 lines filed
Part XI · Reconciliation of net assets $8,353,197 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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