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Directory · Birth Defects & Genetic Diseases

All birth defects & genetic diseases in the U.S.

All 242 birth defects & genetic diseases with a Form 990 on file, largest first — follow any to its profile. Showing 1–242 (page 1 of 1).

Organizations
523
Total revenue
$3.2B
Total assets
$7.2B

Birth Defects & Genetic Diseases · 1–242

Pacs1 Syndrome Research Foundation 501(c)(3) · Old Greenwich, CT $162K
Team Chd Tennessee 501(c)(3) · White House, TN $3K
Through Joshuas Eyes 501(c)(3) · W Burlington, IA $9K
Core Exchange Org 501(c)(3) · San Jose, CA $0
Life Sciences Institute Of New Jersey 501(c)(3) · Belle Mead, NJ $2K
The Center For Discovery Inc 501(c)(3) · Harris, NY $171.0M
David And Kathryn Mccartney Foundation 501(c)(3) · Chalfont, PA $70K
Cleft Closure 501(c)(3) · Las Vegas, NV $0
Tiana Eves Heart Foundation 501(c)(3) · Fords, NJ $0
Peter E Sills Family Foundation 501(c)(3) · Kentfield, CA $25K
Maclynn Danielle Baisch Foundation Inc 501(c)(3) · Twin Falls, ID $500
Inspired By Ilona Inc 501(c)(3) · Fair Lawn, NJ $2K
Hannah Lillian Selikoff Memorial Foundation 501(c)(3) · Oklahoma City, OK $25K
Beauty Instigation 501(c)(3) · Las Vegas, NV $0
World Federation Of Hemophilia Usa 501(c)(3) · Albany, NY $1.1B
Cystic Fibrosis Foundation 501(c)(3) · Bethesda, MD $355.8M
United Cerebral Palsy Associations Of New York State Inc 501(c)(3) · New York, NY $243.5M
United Cerebral Palsy Of New York City Inc 501(c)(3) · New York, NY $229.8M
Center For Disability Services Inc 501(c)(3) · Albany, NY $125.8M
Upstate Cerebral Palsy Inc 501(c)(3) · Utica, NY $124.6M
March Of Dimes Inc 501(c)(3) · Arlington, VA $83.6M
United Cerebral Palsy Association Of Greater Suffolk Inc 501(c)(3) · Hauppauge, NY $56.5M
Hemophilia Of Georgia Inc 501(c)(3) · Sandy Springs, GA $34.7M
Pillar Care Continuum Inc 501(c)(3) · East Hanover, NJ $52.3M
New Jersey Institute For Disabilities Inc 501(c)(3) · Edison, NJ $51.3M
United Cerebral Palsy Association Of Nassau County Inc 501(c)(3) · Roosevelt, NY $46.1M
United Cerebral Palsy Of Queens 501(c)(3) · Jamaica, NY $38.5M
Ladacin Network Inc 501(c)(3) · Ocean, NJ $36.9M
Easter Seals Serving Dc-Md-Va Inc 501(c)(3) · Silver Spring, MD $30.9M
Provail 501(c)(3) · Seattle, WA $28.0M
N-Lorem Foundation 501(c)(3) · Carlsbad, CA $11.0M
Cerebral Palsy Of Westchester Inc 501(c)(3) · Rye Brook, NY $27.4M
United Cerebral Palsy Association Of Greater Sacramento Inc 501(c)(3) · Sacramento, CA $24.9M
United Cerebral Palsy Association Of The North Country Inc 501(c)(3) · Canton, NY $22.8M
United Cerebral Palsy Heartland 501(c)(3) · Saint Louis, MO $19.8M
North Jersey Elks Developmental Disabilities Agency 501(c)(3) · Clifton, NJ $17.7M
United Cerebral Palsy Association Of Metro Boston Inc 501(c)(3) · Watertown, MA $14.2M
United Cerebral Palsy Association Of Miami Inc 501(c)(3) · Hialeah, FL $22.0M
United Cerebral Palsy Association Of The Rochester Area Inc 501(c)(3) · Rochester, NY $17.6M
United Cerebral Palsy Association Of Niagara County Inc 501(c)(3) · Niagara Falls, NY $17.4M
Adult Resources Center Inc 501(c)(3) · Brooklyn, NY $17.2M
Community Living And Support Services Inc 501(c)(3) · Pittsburgh, PA $11.7M
United Cerebral Palsy Association Of Greater Cleveland Inc 501(c)(3) · Cleveland, OH $12.9M
United Cerebral Palsy Association Of Orange County Inc 501(c)(3) · Santa Ana, CA $8.1M
Aspire Developmental Services Inc 501(c)(3) · Lynn, MA $12.4M
Orange County Cerebral Palsy Association Inc 501(c)(3) · Goshen, NY $10.0M
United Cerebral Palsy Association Of Central California Inc 501(c)(3) · Fresno, CA $11.4M
Accessabilities Inc 501(c)(3) · Butler, PA $10.0M
Cerebral Palsy Inc 501(c)(3) · Green Bay, WI $9.8M
Miraclefeet 501(c)(3) · Chapel Hill, NC $8.7M
United Cerebral Palsy Association Of Central Arizona 501(c)(3) · Phoenix, AZ $8.1M
Midwest Asian Health Association - Maha 501(c)(3) · Chicago, IL $6.0M
The New York City Foundation For Cerebral Palsy Inc 501(c)(3) · New York, NY $19.8M
St Francois Co Board For The Developmentally Disabled 501(c)(3) · Farmington, MO $5.3M
Huntington Study Group Ltd 501(c)(3) · Rochester, NY $5.0M
Elmhurst Inc 501(c)(3) · Bath, ME $4.9M
Hemophilia Foundation Of Michigan 501(c)(3) · Ypsilanti, MI $4.8M
Jscreenorg Inc 501(c)(3) · Atlanta, GA $4.2M
Mucolipidosis Type Iv Foundation Inc 501(c)(3) · Atlanta, GA $3.8M
Lancaster Cleft Palate Clinic 501(c)(3) · Lancaster, PA $5.2M
United Cerebral Palsy Association Of San Diego County 501(c)(3) · San Diego, CA $3.4M
The Polg Foundation Inc 501(c)(3) · New York, NY $1.3M
Cystic Fibrosis Research Fund Inc 501(c)(3) · Ardmore, PA $3.5M
United Cerebral Palsy Association Inc Of Stanislaus County 501(c)(3) · Modesto, CA $3.0M
Inclusion Connections 501(c)(3) · Olathe, KS $2.5M
Organization Of Teratology Information Specialists Nfp 501(c)(3) · Brentwood, TN $2.3M
The Familiescn2A Foundation Inc 501(c)(3) · E Longmeadow, MA $3.1M
United Cerebral Palsy Association Of The Tri-Counties Inc 501(c)(3) · Queensbury, NY $2.0M
Williams Syndrome Association Inc 501(c)(3) · Newark, NJ $2.0M
Project 8P Foundation 501(c)(3) · New York, NY $1.9M
Myhre Syndrome Foundation 501(c)(3) · Keller, TX $1.7M
Zack S Place Enrichment Center Inc 501(c)(3) · Woodstock, VT $538K
Stxbp1 Foundation 501(c)(3) · Holly Springs, NC $1.4M
Genetic Alliance Inc 501(c)(3) · Damascus, MD $1.6M
Holimont Snowsports Inc 501(c)(3) · Ellicottville, NY $1.1M
Lou Berteotti Foundation 501(c)(3) · Knox, PA $1.0M
Michigan United Cerebral Palsy 501(c)(3) · Southfield, MI $1.0M
Congenital Heart Surgeons Society 501(c)(3) · Beverly, MA $936K
Children'S Craniofacial Association 501(c)(3) · Addison, TX $840K
Parkinson Foundation Of Western Pennsylvania 501(c)(3) · Cranberry Township, PA $831K
Jacks Corner Foundation Inc 501(c)(3) · Southport, CT $808K
Community Choices Properties 501(c)(3) · Johnstown, PA $800K
Douglas County Disabilities Coalition Inc 501(c)(3) · Douglasville, GA $626K
Csnk2A1 Foundation 501(c)(3) · Burlingame, CA $754K
Cacna1A Foundation Inc 501(c)(3) · Norwalk, CT $466K
Little Baby Face Foundation 501(c)(3) · New York, NY $702K
Happy Brew Inc 501(c)(3) · Jacksonville, FL $684K
Therapies For Inherited Neuropathies Inc 501(c)(3) · Baltimore, MD $412K
Fabry Support & Information Group 501(c)(3) · Concordia, MO $645K
Delighted To Doula Birth Services Nonprofit Corporation 501(c)(3) · Dallas, TX $592K
The Sickle Cell Association Of New Jersey Inc 501(c)(3) · Newark, NJ $449K
Help 4 Hd International Inc 501(c)(3) · Elk Grove, CA $625K
Sickle Cell-Thalassemia Patients Networks Inc 501(c)(3) · Brooklyn, NY $483K
Tova Community Health Inc 501(c)(3) · Wilmington, DE $409K
Prisms Inc 501(c)(3) · Herndon, VA $474K
Team Telomere Inc 501(c)(3) · Coeur D Alene, ID $428K
Utah Chapter National Hemophilia Foundation 501(c)(3) · Millcreek, UT $410K
Crescent Foundation 501(c)(3) · Philadelphia, PA $809K
Xlh Network Inc 501(c)(3) · Albany, NY $381K
Shine Syndrome Foundation 501(c)(3) · Fairfield, CT $122K
Easter Seals North Texas Inc 501(c)(3) · New York, NY $376K
United Cerebral Palsy Association Of Michigan Inc 501(c)(3) · Southfield, MI $27K
Curefa Foundation Inc 501(c)(3) · Prt Washingtn, WI $371K
Ellie'S Army Inc 501(c)(3) · North Miami, FL $426K
United Cerebral Palsy Of Central Florida Memorial Foundation Inc 501(c)(3) · Orlando, FL $340K
Sickle Cell Association 501(c)(3) · Florissant, MO $323K
Gaucher Community Alliance 501(c)(3) · Pittsburgh, PA $460K
Salla Treatment And Research Foundation Inc 501(c)(3) · Katonah, NY $234K
The Michigan Neonatal Biobank Inc 501(c)(3) · Detroit, MI $273K
Tatton Brown Rahman Syndrome Community Inc 501(c)(3) · Stanfordville, NY $271K
Faith For Hayden Inc 501(c)(3) · Huntersville, NC $247K
R Baby Foundation Inc 501(c)(3) · Short Hills, NJ $269K
St Theodora For Challenged Kids Inc 501(c)(3) · Bayside, NY $261K
Northeast La Sickle Cell Anemia Tech Resource Foundation Inc 501(c)(3) · Monroe, LA $201K
Bow Foundation 501(c)(3) · Charlottesvle, VA $248K
Chicago Cf Care Specialists Nfp Foundati 501(c)(3) · Northfield, IL $68K
Malan Syndrome Foundation Inc 501(c)(3) · Old Bridge, NJ $147K
United Cerebral Palsy Association Of San Francisco 501(c)(3) · Oakland, CA $237K
Grin2B Foundation 501(c)(3) · Niles, IL $233K
Thinkgenetic Foundation Inc 501(c)(3) · Sudbury, MA $146K
Nf2 Biosolutions 501(c)(3) · West Chester, PA $226K
Sickle Cell Association Of Houston Inc 501(c)(3) · Houston, TX $222K
Cdh International 501(c)(3) · Wake Forest, NC $214K
Isabella Foundation Inc 501(c)(3) · Ponte Vedra, FL $200K
Vivian Lee Foundation 501(c)(3) · Newberg, OR $195K
Carolina Children'S Charity Inc 501(c)(3) · Charleston, SC $190K
United Hemophilia Foundation 501(c)(3) · Mitchellville, MD $134K
Hnrnp Family Foundation 501(c)(3) · Seattle, WA $242K
Smile Bangladesh A Nj Nonprofit Corporation 501(c)(3) · Springfield, NJ $116K
Cure Finders Inc 501(c)(3) · Kodak, TN $184K
Riddick'S Ride Foundation 501(c)(3) · Island Lake, IL $98K
Utah Smiles Foundation 501(c)(3) · Draper, UT $175K
Spina Bifida & Hidrocephalus Association Of Puerto Rico Inc 501(c)(3) · Bayamon, PR $172K
Unis - Staff Association 501(c)(5) · New York, NY $172K
Lucky Fin Project 501(c)(3) · Royal Oak, MI $169K
Foundation Hope And Life Usa Corp 501(c)(3) · Hialeah, FL $166K
Hawaii Fetal Alcohol Spectrum Disorders (Fasd) Action Group 501(c)(3) · Kaneohe, HI $549K
Coffin-Siris Syndrome Foundation 501(c)(3) · Kirkland, WA $151K
Sickle Cell Support Services 501(c)(3) · Hot Springs, AR $125K
Skraban-Deardorff Syndrome Foundation 501(c)(3) · Indian Trail, NC $149K
Northwest Ohio Hemophilia Foundation 501(c)(3) · Toledo, OH $147K
Prader-Willi Syndrome Association Of Colorado 501(c)(3) · Littleton, CO $139K
Cerebral Palsy School Of Louisville Foundation Inc 501(c)(3) · Louisville, KY $136K
Shwachman-Diamond Syndrome Alliance Inc 501(c)(3) · Woburn, MA $133K
Friends & Families Of Cystic Fibrosis Inc 501(c)(3) · Grand Rapids, MI $128K
Dada2 Foundation 501(c)(3) · Nashville, TN $110K
Scacure Networks Inc 501(c)(3) · Evansville, IN $119K
Dyslexia Center Of The Shoals 501(c)(3) · Florence, AL $117K
Parkinsons Group Of The Ozarks 501(c)(3) · Springfield, MO $105K
My Xxy 501(c)(3) · Tempe, AZ $115K
Team Trace Inc 501(c)(3) · Wye Mills, MD $112K
Orangeburg Area Sickle Cell Anemia Foundation 501(c)(3) · Orangeburg, SC $108K
Dessh Desanto-Shinawi Syndrome Corporation 501(c)(3) · Vernon, NJ $112K
Oral Facial Surgery Institute Educational Fellowship Program 501(c)(3) · Saint Louis, MO $105K
Chestnut Hill Community Development Corporation 501(c)(3) · Philadelphia, PA $102K
Cure Spg4 Foundation Inc 501(c)(3) · San Antonio, TX $101K
Tbx4Life 501(c)(3) · Nashville, TN $98K
Springer Family Foundation Inc 501(c)(3) · Roanoke, TX $98K
Abbys Army 501(c)(3) · Lower Gwynedd, PA $97K
Group B Strep International 501(c)(3) · Pomona, CA $96K
Thomas Patrick Morrison Foundation 501(c)(3) · Guilderland, NY $94K
Impact Foundation Of Tallahassee 501(c)(3) · Tallahassee, FL $91K
Timothy Syndrome Alliance Inc 501(c)(3) · Bear River Cy, UT $89K
Iqsec2 Research And Advocacyfoundation 501(c)(3) · Frisco, TX $85K
Hues For Hope Inc 501(c)(3) · Tulsa, OK $83K
Love An Angel Foundation 501(c)(3) · New Franklin, OH $82K
Recurrent Pregnancy Loss Association 501(c)(3) · Seattle, WA $82K
Hope For Marian 501(c)(3) · Arcadia, CA $82K
International Wagr Syndrome Association 501(c)(3) · Montgomry Vlg, MD $70K
Sma-Pme Research 501(c)(3) · Myrtle Beach, SC $70K
The Melvin Weinstein Parkinsons Foundation Inc 501(c)(3) · Virginia Beach, VA $122K
Ebf3 Hadds Foundation 501(c)(3) · Saint Louis, MO $61K
Bobby Scholl Foundation Inc 501(c)(3) · Summit, NJ $58K
Ld Resources Foundation Inc 501(c)(3) · New York, NY $56K
Vista Del Sol 501(c)(3) · Reseda, CA $55K
Mitchell And Friends Foundation 501(c)(3) · Saint Louis, MO $95K
Miracle 4 Mandy Inc 501(c)(3) · New Milford, PA $55K
Pmg Awareness Organization Inc 501(c)(3) · Newport Beach, CA $53K
Nf North Central 501(c)(3) · Rochester, MN $52K
Ehl Fragile X Foundation Inc 501(c)(3) · Cape Coral, FL $43K
Our Promise To Nicholas Foundation 501(c)(3) · Bedford, NH $83K
Cerebral Palsy Services Center United Cerebral Palsy Of Cincinnat 501(c)(3) · Cincinnati, OH $39K
Sewing For Babies Incorporated 501(c)(3) · Lincoln, NE $35K
The Tennessee Pku Foundation 501(c)(3) · Nashville, TN $9K
The Gifts Of Mobility Foundation Inc 501(c)(3) · Port St Lucie, FL $31K
Foundation To Treat Norrie Disease 501(c)(3) · Weston, MA $26K
Louies Huwe 501(c)(3) · Stafford, VA $90K
Halite Solutions Group 501(c)(3) · Scottsdale, AZ $48K
Ccd Smiles 501(c)(3) · Orem, UT $22K
Mitchell-Baker County Mental Retardation Association Inc 501(c)(3) · Camilla, GA $18K
Cerebral Palsy Association Of Colorado Springs Inc 501(c)(3) · Colorado Spgs, CO $18K
Fly With Me Fund 501(c)(3) · Lynbrook, NY $15K
Better Project Awareness Inc 501(c)(3) · Milwaukee, WI $15K
Association Of Perinatal Networks Of New York Inc 501(c)(3) · Lonedell, MO $14K
World Parkinson Coalition Inc 501(c)(3) · New York, NY $14K
Spina Bifida Association Of Delaware Valley 501(c)(3) · Pennsauken, NJ $13K
New England Xp Inc 501(c)(3) · Lawrence, MA $13K
Love Without Borders Usa Inc 501(c)(3) · Skillman, NJ $13K
Olivia S Peters Pediatric Therapy Foundation 501(c)(3) · Wilmington, NC $8K
Lilys Well-N E S S Inc 501(c)(3) · Hollywood, FL $10K
Inspirationally Grieving My Baby Inc 501(c)(3) · Corona, NY $10K
Hemophilia Association Of The Southern Tier Inc 501(c)(3) · Thompson, PA $9K
Happy Babies Inc 501(c)(3) · Michigan City, IN $7K
Lamin Keitas Hope 501(c)(3) · Charlotte, NC $5K
Napa Center Kids Foundation 501(c)(3) · Hawthorne, CA $5K
Smiles For Cancer Inc 501(c)(3) · Roswell, GA $9K
Alegria A California Foundation For The Treatment Of Cleft Lip And Palate 501(c)(3) · Salinas, CA $5K
World Of Broken Hearts 501(c)(3) · Hendersonvlle, TN $1K
Dms Family Life Development Inc 501(c)(3) · Indianapolis, IN $1K
Bpan Warriors 501(c)(3) · Boca Raton, FL $4K
The Mannis Foundation Inc 501(c)(3) · New York, NY $9K
Olivia Needs A Ride 501(c)(3) · Lubbock, TX $134
Partners With Parc Inc 501(c)(3) · Kingston, NY $45
Fighting Angels Foundation Inc 501(c)(3) · Monroe, CT $9
Bucks County Cystic Fibrosis Alliance 501(c)(3) · Levittown, PA $67K
Capital Area Partners Cleft Initiative 501(c)(3) · Baton Rouge, LA $0
Genres Kids With Cancer Fund 501(c)(3) · Irwin, PA $2K
Sunshine For Humanity Inc 501(c)(3) · Eagle River, WI $33K
Leos Lighthouse Foundation Inc 501(c)(3) · Sleepy Hollow, NY $0
Lenn Foundation 501(c)(3) · Columbus, OH $54K
My Pku Awareness Foundation 501(c)(3) · Pearland, TX $3K
Snap25 Foundation Inc 501(c)(3) · New York, NY $2K
Chion Foundation 501(c)(3) · Oak Park, IL $1K
Share And Care Cockayne Syndrome Network Inc 501(c)(3) · Waterford, VA $18K
Hunters Hope For Duchenne And Degs1 Leukodystrophy Inc 501(c)(3) · Hickman, NE $61K
Minutes Matter - Mcadd 501(c)(3) · Wilkesboro, NC $58K
Hope For Tomorrow Community Resources Inc 501(c)(3) · Wailuku, HI $0
Somali Childrens Healthcare Relief Foundation 501(c)(3) · Grayson, GA $65K
Grinning With Gavin 501(c)(3) · O Fallon, MO $4K
Aciem Charitable Foundation Inc 501(c)(3) · Norfolk, VA $0
Sand Dollars From Rhys Foundation Inc 501(c)(3) · Lawrenceville, NJ $2K
Cascade Foundation Of Southern Arizona Inc 501(c)(3) · Tucson, AZ $43K
Let Them Be Little X2 Inc 501(c)(3) · Hasbrouck Hts, NJ $0
Angels With Missing Pieces 501(c)(3) · Blue Springs, MO $2K
C F Solutions Inc 501(c)(3) · Bixby, OK $4K
Side By Side Smiles Nfp 501(c)(3) · Naperville, IL $0
Universal Mission 501(c)(3) · Florissant, MO $25K
Medlife Foundation Inc 501(c)(3) · Larchmont, NY $0
Sunrise Northeast Opportunities Inc 501(c)(3) · Miami, FL $0
Logans Light 501(c)(3) · Flower Mound, TX $219K
Cure Cf Inc 501(c)(3) · Louisville, KY $20K
Dr Oluyomi Modupe Okunola-Bakare Sickle Cell Foundation 501(c)(3) · Silver Spring, MD $0

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Public data from IRS Form 990 e-file & Business Master File. A 990 shows how an organization is run and funded — not its real-world outcomes. Figures are presented without evaluation; we do not rate, score, or rank organizations. · philanthropy.org