Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2000.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
63 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
12 people listed on the 990; $100K paid to officers and key staff.
Michelle Larscheid’s $100K as Executive Director is at the 79th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Michelle Larscheid | $100,000 | $94,038 | — | — | — | — |
| Casey Gorman | — | — | $60,837 | $82,770 | $85,481 | $79,816 |
| Michelle Larscheid Com Mgr 012023-9 | — | — | $69,714 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports families, funds research, and partners with professionals to advance understanding of Smith-Magenis Syndrome.
Questions for Prisms INC
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PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational packets, and a shared community Facebook Group for family support.
PRISMS continued to support the PCRC PRISMS Clinics and Research Consortium. SMS Clinics provide multi-specialty, comprehensive and compassionate care for patients with SMS. PCRC also offers families the opportunity to carry home treatment recommendations to share with their local providers.
PRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025. The symposium brought together researchers from around the world to share and collaborate on research about Smith-Magenis Syndrome.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $156K | $227K |
| InvestmentsLn 11–13 | $413K | $442K |
| Total assetsLn 16 | $608K | $710K |
| LiabilitiesLn 26 | $10K | $7K |
| Net assetsLn 32 | $598K | $703K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $14K | $14K | ||
| Grants to domestic individualsLn 2 | $15K | $15K | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $100K | $75K | $20K | $5K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $8K | $6K | $2K | $421 |
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $23K | $2K | $21K | $127 |
| Lobbying feesLn 11d | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $56K | $28K | $27K | |
| Advertising and promotionLn 12 | $0 | |||
| Office expensesLn 13 | $11K | $5K | $4K | $3K |
| Information technologyLn 14 | $25K | $21K | $5K | |
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $0 | |||
| TravelLn 17 | $33K | $20K | $12K | $951 |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $4K | $4K | ||
| Other expenses (24a–d)Ln 24 | $51K | $30K | $4K | $17K |
| All other expensesLn 24e | $4K | $2K | $3K | |
| Total functional expensesLn 25 | $345K | $219K | $100K | $26K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $439K | $345K | $94K | $703K | 990 PDF |
| FY2024 | $474K | $550K | −$76K | $598K | 990 PDF |
| FY2023 | $421K | $275K | $146K | $670K | 990 PDF |
| FY2022 | $359K | $605K | −$246K | $509K | 990 PDF |
| FY2021 | $266K | $244K | $22K | $830K | 990 PDF |
| FY2020 | $484K | $223K | $261K | $809K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $439,157 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, no flags
Part VIII · Statement of revenue $439,157 across 9 lines filed
Part IX · Statement of functional expenses $345,036 across 30 lines filed
Part X · Balance sheet $710,153 assets, 13 lines filed
Part XI · Reconciliation of net assets $703,113 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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