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Csnk2a1 Foundation

Tax-deductible

Burlingame, CA501(c)(3)Diseases & Disorders EIN 82-4220939Revenue $754K in FY2024

On file with the IRScsnk2a1foundation.org1395 Marsten Rd, 94010-2405 · Burlingame, CATax-exempt since Mar 2018Publicly supported charity — 170(b)(1)(A)(vi)

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Focus on finding a cure for okur-chung neurodevelopmental syndrome and ensuring individuals have the opportunities and support necessary for happy and full lives.

501(c)(3) charity; gifts are tax-deductible.
70¢ of each $1 spent went to programs.
Run by 17 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

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FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 5
filings with a surplus
Average surplus $256K a year · 47% of revenue · last 5 filings
Looks good: a surplus in 5 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
70%
of spending
Fine: 70% of spending went to programs; 65% to 75%.
Pt IX · Ln 25 · col B
Cash reserves
29 mo
of spending, in cash
Looks good: 29.3 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $14K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$10K
0.7% of total assets
Looks good: liabilities are 1% of assets; 50% or less.
Pt X · Ln 26
Independent board members
8
of 8 voting members
Looks good: 8 of 8 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$754K
-6% vs prior year
Spent
$597K
To programs
70%
Net assets
$1.5M
By yearFY2020–FY2024
Revenue
$754K
FY2024▼ -6%
Tap a bar for its year
Revenue by fiscal year
FY2020$413K
FY2021$433K
FY2022$352K
FY2023$798K
FY2024$754K
Expenses
$597K
FY2024▲ +56%
Tap a bar for its year
Expenses by fiscal year
FY2020$206K
FY2021$119K
FY2022$165K
FY2023$383K
FY2024$597K
Net assets
$1.5M
FY2024▲ +12%
Tap a bar for its year
Net assets by fiscal year
FY2020$384K
FY2021$698K
FY2022$886K
FY2023$1.3M
FY2024$1.5M

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

70 cents of each dollar spent went to programs.

Program services 70% · $418K Management & general 20% · $118K Fundraising 10% · $61K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

8 people listed on the 990.

Part VII, Section A · reportable compensation
Jennifer Sills
Executive Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Sarah Lazar
Director
$0Pt VII · Sec A
Jamie Miller
Director
$0Pt VII · Sec A
See Csnk2a1 Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fund research for a cure and provide support for those with Okur-Chung neurodevelopmental syndrome.

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Provided by the organization

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1 program · $418K · in their own filed words · FY2024
01

See statement

$418Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Lydian AcceleratorFY2025$14K
Total grants receivedfrom 1 funder$14K
Grants paid · 15 grants · $564K · 2020–2024
Individual RecipientFY2024$101,990
Institute De Psychiatrie Et Nueroscience De ParisFY2024$47,055
University of UtahUT · FY2024$36,439
Individual RecipientFY2024$28,500
Trustees of the University of PennsylvaniaPA · FY2024$15,235
University of UtahUT · FY2023$36,439
Individual RecipientFY2023$34,793
Individual RecipientFY2023$16,900
Taconic-Cyagen Model Generation AllianceFY2023$16,638
Institute De Psychiatrie Et Nueroscience De ParisFY2022$52,668
Taconic-Cyagen Model Generation AllianceFY2022$10,182
Institute De Psychiatrie Et Nueroscience De ParisFY2021$52,666
Boston University School of MedicineFY2021$26,201
Taconic-Cyagen Model Generation AllianceFY2021$10,182
TgenAZ · FY2020$77,669

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$754K
Ln 12
Gifts and grantsLn 1h$599K
Fees for servicesLn 2g$100K
Investment incomeLn 3$60K
Money outPt IX
$597K
Ln 25
Programscol B$418K
Managementcol C$118K
Fundraisingcol D$61K
Owns and owesPt X
$1.5M
net assets · Ln 32
Cash and savingsLn 1–2$1.5M
Total assetsLn 16$1.5M
LiabilitiesLn 26$10K
PeoplePt VI, VII
8
listed · VII A
PaidVII A0
Voting boardVI 1a8
IndependentVI 1b8
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$599K
Fundraising eventsLn 1c$511K
Fees for servicesLn 2g$100K
Investment incomeLn 3$60K
Total revenueLn 12$754K
Assets in detailPt X, end of year
CashLn 1$366K
SavingsLn 2$1.1M
Cash and savings togetherLn 1–2$1.5M
Other assetsLn 15$10K
Total assetsLn 16$1.5M
LiabilitiesLn 26$10K
Net assetsLn 32$1.5M
OperationsPt I, VI
EmployeesI 50
VolunteersI 617
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$1.3M$1.5M
Total assetsLn 16$1.3M$1.5M
LiabilitiesLn 26$5K$10K
Net assetsLn 32$1.3M$1.5M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$234K$234K
Other salaries and wagesLn 7$158K$127K$32K
Other employee benefitsLn 9$699$559$140
Payroll taxesLn 10$12K$10K$2K
Accounting feesLn 11c$6K$5K$1K
Other fees for servicesLn 11g$8K$8K$25
Advertising and promotionLn 12$3K$3K$158
Office expensesLn 13$4K$444$3K$408
TravelLn 17$26K$16K$11K
Other expenses (24a–d)Ln 24$116K$7K$56K$53K
All other expensesLn 24e$27K$7K$13K$7K
Total functional expensesLn 25$597K$418K$118K$61K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $754K$597K$157K$1.5M 990 PDF
FY2023 $798K$383K$415K$1.3M 990 PDF
FY2022 $352K$165K$187K$886K 990 PDF
FY2021 $433K$119K$314K$698K 990 PDF
FY2020 $413K$206K$207K$384K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $754,167 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $743,428$598,803
I-9 Program service revenuePrior year $16,292$100,000
I-10 Investment incomePrior year $41,842$60,341
I-11 Other revenuePrior year −$3,430−$4,977
I-12 Total revenuePrior year $798,132$754,167
I-13 Grants and similar amounts paidPrior year $104,770$234,219
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $97,405$171,283
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $180,664$191,212
I-18 Total expensesPrior year $382,839$596,714
I-19 Revenue less expensesPrior year $415,293$157,453
Part VI · Governance 8 of 8 board members independent, 4 to look at
VI-1a Voting members of the governing body8
VI-1b Independent voting members8
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $754,167 across 8 lines filed
Lines not itemized here account for −$6,954 of total revenue; see the IRS return.
VIII-1c Fundraising events$510,965
VIII-1f All other contributions, gifts and grants$87,838
VIII-1h Total contributions, gifts and grants$598,803
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $100,000$100,000
VIII-3 Investment incomeRelated to mission $60,341$60,341
VIII-8 Net income from fundraising events$0
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $1,977$1,977
VIII-12 Total revenueRelated to mission $155,364 · Unrelated business $0 · Excluded from tax $0$754,167
Part IX · Statement of functional expenses $596,714 across 11 lines filed
IX-1 Grants to domestic organizationsPrograms $234,219$234,219
IX-7 Other salaries and wagesPrograms $126,770 · Management $31,692$158,462
IX-9 Other employee benefitsPrograms $559 · Management $140$699
IX-10 Payroll taxesPrograms $9,698 · Management $2,424$12,122
IX-11c Accounting feesPrograms $5,096 · Management $1,274$6,370
IX-11g Other fees for servicesPrograms $7,924 · Management $25$7,949
IX-12 Advertising and promotionPrograms $3,167 · Management $158$3,325
IX-13 Office expensesPrograms $444 · Management $3,069 · Fundraising $408$3,921
IX-17 TravelPrograms $15,977 · Management $10,511$26,488
IX-24 Other expenses (24a–d)Programs $6,600 · Management $55,858 · Fundraising $53,246$115,704
IX-24e All other expensesPrograms $7,167 · Management $12,983 · Fundraising $7,305$27,455
IX-25 Total functional expensesPrograms $417,621 · Management $118,134 · Fundraising $60,959$596,714
Part X · Balance sheet $1,468,338 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $214,695$365,607
X-2 Savings and temporary cash investmentsStart of year $1,041,097$1,092,731
X-15 Other assetsStart of year $50,000$10,000
X-16 Total assetsStart of year $1,305,792$1,468,338
X-25 Other liabilitiesStart of year $4,927$10,020
X-26 Total liabilitiesStart of year $4,927$10,020
X-32 Total net assets or fund balancesStart of year $1,300,865$1,458,318
X-33 Total liabilities and net assetsStart of year $1,305,792$1,468,338
Part XI · Reconciliation of net assets $1,458,318 net assets at year end
XI-1 Total revenue$754,167
XI-2 Total expenses$596,714
XI-3 Revenue less expenses$157,453
XI-4 Net assets at start of year$1,300,865
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$1,458,318

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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