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Isabella Foundation INC

Tax-deductible

Ponte Vedra, FL501(c)(3)Since 2024Diseases & DisordersEIN 99-4435144Revenue $200K in FY2025

On file with the IRSisaelaine.org5000 Sawgrass Village Cir Ste 3, 32082-5042 · Ponte Vedra, FLTax-exempt since Aug 2025Publicly supported charity — 170(b)(1)(A)(vi)

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The isa elaine Foundation is dedicated to advancing research discoveries on ultra-rare pediatric neurodegenerative diseases, specifically bpan (beta-propeller protein-associated neurodegeneration) caused by a mutation in the wdr45 gene. By characterizing early-onset bpan in Isabella elaine lazzara, we aim to uncover insights that may unlock future treatments for major neurodegenerative diseases such as parkinson's and alzheimer's.

501(c)(3) charity; gifts are tax-deductible.
100¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 2
filings with a surplus
Average surplus $42K a year · 21% of revenue · last 2 filings
Worth a look: a surplus in 1 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
100%
of spending
Looks good: 100% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
2 mo
of spending, in cash
Fine: 2.3 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Liabilities
$2K
3% of total assets
Looks good: liabilities are 3% of assets; 50% or less.
Pt X · Ln 26
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$200K
-0.08% vs prior year
Spent
$258K
To programs
100%
Net assets
$84K
By yearFY2024–FY2025
Revenue
$200K
FY2025-0.08%
Tap a bar for its year
Revenue by fiscal year
FY2024$200K
FY2025$200K
Expenses
$258K
FY2025▲ +346%
Tap a bar for its year
Expenses by fiscal year
FY2024$58K
FY2025$258K
Net assets
$84K
FY2025▼ -41%
Tap a bar for its year
Net assets by fiscal year
FY2024$142K
FY2025$84K

From the FY2025 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Aug 2025.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

100 cents of each dollar spent went to programs.

Program services 100% · $258K

Form 990 Part IX, line 25. Every line is in By the numbers.

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Who runs it and what they're paid

6 people listed on the 990.

Part VII, Section A · reportable compensation
Christopher Lazzara
Director and President
$0Pt VII · Sec A
Dale Pirkle
Director
$0Pt VII · Sec A
Carol Lynch
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
Kristen Cain
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
See Isabella Foundation INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research to find treatments for rare pediatric neurodegenerative diseases, potentially helping Alzheimer's and Parkinson's.

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Provided by the organization

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1 program · $136K · in their own filed words · FY2025
01

Education and Awareness

To establish the scientific connection between bpan and parkinson's / alzheimer's. The specific disorder, bpan was first identified in 2012, and it appears that bpan is a very accelerated form of parkinson's / alzheimer's disease. The isa elaine foundation website provides education and awareness.

$136Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · this organization's grantmaking
Grants paid · 1 grant · $50K · 2025–2025
Lucile Packard Foundation for Children's HealthCA · FY2025$50,000

By the numbers

The FY2025 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$200K
Ln 12
Gifts and grantsLn 1h$200K
Money outPt IX
$258K
Ln 25
Programscol B$258K
Owns and owesPt X
$84K
net assets · Ln 32
Cash and savingsLn 1–2$49K
Total assetsLn 16$86K
LiabilitiesLn 26$2K
PeoplePt VI, VII
6
listed · VII A
PaidVII A0
Voting boardVI 1a0
IndependentVI 1b0
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$200K
Total revenueLn 12$200K
Assets in detailPt X, end of year
CashLn 1$49K
Cash and savings togetherLn 1–2$49K
Land, buildings, equipmentLn 10c$37K
Total assetsLn 16$86K
LiabilitiesLn 26$2K
Net assetsLn 32$84K
OperationsPt I, VI
EmployeesI 50
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$149K$49K
Land, buildings, equipmentLn 10c$0$37K
Total assetsLn 16$161K$86K
LiabilitiesLn 26$19K$2K
Net assetsLn 32$142K$84K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$52K$52K
Legal feesLn 11b$44K$44K
Other fees for servicesLn 11g$136K$136K
Office expensesLn 13$9K$9K
TravelLn 17$10K$10K
Depreciation, depletion and amortizationLn 22$5K$5K
Other expenses (24a–d)Ln 24$3K$3K
Total functional expensesLn 25$258K$258K$0$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $200K$258K−$58K$84K 990 PDF
FY2024 $200K$58K$142K$142K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $200,047 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $200,200$200,047
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $200,200$200,047
I-13 Grants and similar amounts paidPrior year $0$52,500
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $57,915$205,949
I-18 Total expensesPrior year $57,915$258,449
I-19 Revenue less expensesPrior year $142,285−$58,402
Part VI · Governance 4 to look at
VI-1a Voting members of the governing body0
VI-1b Independent voting members0
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $200,047 across 3 lines filed
VIII-1f All other contributions, gifts and grants$200,047
VIII-1h Total contributions, gifts and grants$200,047
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$200,047
Part IX · Statement of functional expenses $258,449 across 7 lines filed
IX-1 Grants to domestic organizationsPrograms $52,500$52,500
IX-11b Legal feesPrograms $43,704$43,704
IX-11g Other fees for servicesPrograms $135,621$135,621
IX-13 Office expensesPrograms $9,301$9,301
IX-17 TravelPrograms $9,589$9,589
IX-22 Depreciation, depletion and amortizationPrograms $4,976$4,976
IX-24 Other expenses (24a–d)Programs $2,758$2,758
IX-25 Total functional expensesPrograms $258,449 · Management $0 · Fundraising $0$258,449
Part X · Balance sheet $86,220 assets, 9 lines filed
X-1 Cash, non-interest-bearingStart of year $149,172$49,246
X-10c Land, buildings and equipment, netStart of year $0$36,974
X-14 Intangible assetsStart of year $11,803$0
X-16 Total assetsStart of year $160,975$86,220
X-17 Accounts payable and accrued expensesStart of year $11,290$2,337
X-25 Other liabilitiesStart of year $7,400$0
X-26 Total liabilitiesStart of year $18,690$2,337
X-32 Total net assets or fund balancesStart of year $142,285$83,883
X-33 Total liabilities and net assetsStart of year $160,975$86,220
Part XI · Reconciliation of net assets $83,883 net assets at year end
XI-1 Total revenue$200,047
XI-2 Total expenses$258,449
XI-3 Revenue less expenses−$58,402
XI-4 Net assets at start of year$142,285
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$83,883

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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