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Birth Defects & Genetic Diseases

Birth Defects & Genetic Diseases nonprofits in the U.S.

Voluntary health organizations active in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders not specified below. 523 birth defects & genetic diseases file a Form 990 in the United States. Together they report $3.2 billion in revenue and hold $7.2 billion in assets. Browse the largest below, or drill in by state. Also called Alagille Syndrome, Albinism, Amaurotic Familial Idiocy, Bardet-Biedl Syndrome, Birth Defects, Cerebral Palsy, Charcot-Marie Disease, Charcot-Marie-Tooth Disease, Chromosome Disorders, Clubfoot, Coffin-Lowrey Syndrome, Congenital Defects, Cri-du-Chat Syndrome, Crying Cat Syndrome, Cryptorchidism, Cystic Fibrosis, Cytochrome-c Oxidase Deficiency, Dandy-Walker Syndrome, De Lange Syndrome, Developmental Coordination Disorder, Factor X Deficiency, Fetal Alcohol Syndrome, Fragile X Syndrome, Friedreich Ataxia, Genetic Diseases, Hemophilia, Hereditary Diseases, Huntingtons Disease, Jervell-Lange Nielsen Syndrome, Kartagener Syndrome, Klinefelter Syndrome, Laurence-Moon Syndrome, Leigh Disease, Lesch-Nyhan Syndrome, Littles Disease, Lynch Syndrome, March of Dimes, Marfan Syndrome, Martin-Bell Syndrome, Mental Retardation, Motor Skills Disorder, Neurofibromatosis, Oral-Facial Clefts, Phenylketonuria, PKU, Porphyria, Prader-Willi Syndrome, Pseudoxanthoma Elasticum, Pyruvate Carboxylase Deficiency Disease, Pyruvate Dehydrogenase Complex Deficiency Disease, Rett Disorder, Rett Syndrome, Retts Disorder, Retts Syndrome, Rett's Disorder, Rett's Syndrome, Rh Disease, Romano-Ward Syndrome, Rubinstein-Taybi Syndrome, Sickle Cell, Spina Bifida, Sudden Infant Death, Tay Sachs, Testicular Feminization Syndrome, Thalassemia, Turner Syndrome, Turners Syndrome, WAGR Syndrome, Werner Syndrome, Williams Syndrome, Xeroderma Pigmentosum.

The largest are World Federation Of Hemophilia Usa, Cystic Fibrosis Foundation, and United Cerebral Palsy Associations Of New York State Inc.

Organizations
523
Total revenue
$3.2B
Total assets
$7.2B

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Largest birth defects & genetic diseases

Ranked by revenue. Sort any column, or support an org to track it.

Top 100 by revenue · 523 birth defects & genetic diseases nationwide
Click a column to sort
Organization StateRevenueAssets Support
World Federation Of Hemophilia Usa Albany NY$1.1B$377.6M
Cystic Fibrosis Foundation Bethesda MD$355.8M$5.0B
United Cerebral Palsy Associations Of New York State Inc New York NY$243.5M$212.9M
United Cerebral Palsy Of New York City Inc New York NY$229.8M$349.7M
The Center For Discovery Inc Harris NY$171.0M—
C Center For Disability Services Inc Albany NY$125.8M$96.1M
Upstate Cerebral Palsy Inc Utica NY$124.6M$75.8M
March Of Dimes Inc Arlington VA$83.6M$64.2M
United Cerebral Palsy Association Of Greater Suffolk Inc Hauppauge NY$56.5M$43.1M
Pillar Care Continuum Inc East Hanover NJ$52.3M$41.6M
New Jersey Institute For Disabilities Inc Edison NJ$51.3M$26.4M
United Cerebral Palsy Association Of Nassau County Inc Roosevelt NY$46.1M$30.0M
United Cerebral Palsy Of Queens Jamaica NY$38.5M$27.6M
Ladacin Network Inc Ocean NJ$36.9M$30.5M
Hemophilia Of Georgia Inc Sandy Springs GA$34.7M$121.1M
Easter Seals Serving Dc-Md-Va Inc Silver Spring MD$30.9M$44.1M
Provail Seattle WA$28.0M$17.1M
Cerebral Palsy Of Westchester Inc Rye Brook NY$27.4M$34.6M
United Cerebral Palsy Association Of Greater Sacramento Inc Sacramento CA$24.9M$20.0M
United Cerebral Palsy Association Of The North Country Inc Canton NY$22.8M$21.2M
United Cerebral Palsy Association Of Miami Inc Hialeah FL$22.0M$23.4M
United Cerebral Palsy Heartland Saint Louis MO$19.8M$29.6M
T The New York City Foundation For Cerebral Palsy Inc New York NY$19.8M$177.0M
North Jersey Elks Developmental Disabilities Agency Clifton NJ$17.7M$9.7M
United Cerebral Palsy Association Of The Rochester Area Inc Rochester NY$17.6M$16.2M
United Cerebral Palsy Association Of Niagara County Inc Niagara Falls NY$17.4M$9.1M
Adult Resources Center Inc Brooklyn NY$17.2M$6.3M
United Cerebral Palsy Association Of Metro Boston Inc Watertown MA$14.2M$17.4M
United Cerebral Palsy Association Of Greater Cleveland Inc Cleveland OH$12.9M$17.3M
Aspire Developmental Services Inc Lynn MA$12.4M$8.6M
Community Living And Support Services Inc Pittsburgh PA$11.7M$15.0M
United Cerebral Palsy Association Of Central California Inc Fresno CA$11.4M$15.8M
N-Lorem Foundation Carlsbad CA$11.0M$22.3M
Orange County Cerebral Palsy Association Inc Goshen NY$10.0M$5.4M
Accessabilities Inc Butler PA$10.0M$8.7M
Cerebral Palsy Inc Green Bay WI$9.8M$16.9M
Miraclefeet Chapel Hill NC$8.7M$16.8M
United Cerebral Palsy Association Of Central Arizona Phoenix AZ$8.1M$7.9M
United Cerebral Palsy Association Of Orange County Inc Santa Ana CA$8.1M$11.8M
Midwest Asian Health Association - Maha Chicago IL$6.0M$7.8M
St Francois Co Board For The Developmentally Disabled Farmington MO$5.3M$6.9M
Lancaster Cleft Palate Clinic Lancaster PA$5.2M$10.8M
Huntington Study Group Ltd Rochester NY$5.0M$8.1M
Elmhurst Inc Bath ME$4.9M$9.7M
Hemophilia Foundation Of Michigan Ypsilanti MI$4.8M$4.4M
Jscreenorg Inc Atlanta GA$4.2M$3.3M
Mucolipidosis Type Iv Foundation Inc Atlanta GA$3.8M$2.2M
Cystic Fibrosis Research Fund Inc Ardmore PA$3.5M$5.6M
United Cerebral Palsy Association Of San Diego County San Diego CA$3.4M$1.4M
The Familiescn2A Foundation Inc E Longmeadow MA$3.1M$3.7M
United Cerebral Palsy Association Inc Of Stanislaus County Modesto CA$3.0M$5.0M
Inclusion Connections Olathe KS$2.5M$3.1M
Organization Of Teratology Information Specialists Nfp Brentwood TN$2.3M$1.5M
U United Cerebral Palsy Association Of The Tri-Counties Inc Queensbury NY$2.0M$5.4M
Williams Syndrome Association Inc Newark NJ$2.0M$2.8M
Project 8P Foundation New York NY$1.9M$2.9M
Myhre Syndrome Foundation Keller TX$1.7M$2.0M
Genetic Alliance Inc Damascus MD$1.6M$737K
Stxbp1 Foundation Holly Springs NC$1.4M$1.5M
The Polg Foundation Inc New York NY$1.3M$8.6M
Holimont Snowsports Inc Ellicottville NY$1.1M$483K
L Lou Berteotti Foundation Knox PA$1.0M$1.6M
Michigan United Cerebral Palsy Southfield MI$1.0M$840K
Congenital Heart Surgeons Society Beverly MA$936K$1.1M
Children'S Craniofacial Association Addison TX$840K$1.9M
Parkinson Foundation Of Western Pennsylvania Cranberry Township PA$831K$150K
Crescent Foundation Philadelphia PA$809K$443K
Jacks Corner Foundation Inc Southport CT$808K$847K
C Community Choices Properties Johnstown PA$800K$3.5M
Csnk2A1 Foundation Burlingame CA$754K$1.5M
Little Baby Face Foundation New York NY$702K$2.2M
Happy Brew Inc Jacksonville FL$684K$597K
Fabry Support & Information Group Concordia MO$645K$759K
Douglas County Disabilities Coalition Inc Douglasville GA$626K$285K
Help 4 Hd International Inc Elk Grove CA$625K$790K
Delighted To Doula Birth Services Nonprofit Corporation Dallas TX$592K$201K
Hawaii Fetal Alcohol Spectrum Disorders (Fasd) Action Group Kaneohe HI$549K$173K
Zack S Place Enrichment Center Inc Woodstock VT$538K$2.9M
Sickle Cell-Thalassemia Patients Networks Inc Brooklyn NY$483K$67K
Prisms Inc Herndon VA$474K$710K
Cacna1A Foundation Inc Norwalk CT$466K$1.0M
Gaucher Community Alliance Pittsburgh PA$460K$405K
T The Sickle Cell Association Of New Jersey Inc Newark NJ$449K$221K
Team Telomere Inc Coeur D Alene ID$428K$316K
Ellie'S Army Inc North Miami FL$426K$1.0M
Therapies For Inherited Neuropathies Inc Baltimore MD$412K$606K
Utah Chapter National Hemophilia Foundation Millcreek UT$410K$1.1M
Tova Community Health Inc Wilmington DE$409K$294K
Xlh Network Inc Albany NY$381K$371K
Easter Seals North Texas Inc New York NY$376K$9.5M
Curefa Foundation Inc Prt Washingtn WI$371K$9.6M
U United Cerebral Palsy Of Central Florida Memorial Foundation Inc Orlando FL$340K$5.7M
Sickle Cell Association Florissant MO$323K$57K
The Michigan Neonatal Biobank Inc Detroit MI$273K$235K
Tatton Brown Rahman Syndrome Community Inc Stanfordville NY$271K$692K
R Baby Foundation Inc Short Hills NJ$269K$3.6M
St Theodora For Challenged Kids Inc Bayside NY$261K$138K
Bow Foundation Charlottesvle VA$248K$603K
Faith For Hayden Inc Huntersville NC$247K$4K
Hnrnp Family Foundation Seattle WA$242K$289K
See all →

All birth defects & genetic diseases by state

Texas56 orgsNew York51 orgsCalifornia36 orgsFlorida34 orgsNew Jersey28 orgsPennsylvania27 orgsNorth Carolina19 orgsOhio19 orgsGeorgia18 orgsVirginia16 orgsMaryland15 orgsIllinois14 orgsMissouri14 orgsMassachusetts13 orgsMichigan13 orgsIndiana12 orgsTennessee11 orgsMinnesota9 orgsWashington9 orgsArizona8 orgsColorado8 orgsConnecticut8 orgsSouth Carolina8 orgsUtah8 orgsWisconsin7 orgsAlabama6 orgsKentucky5 orgsLouisiana5 orgsOklahoma5 orgs

Largest birth defects & genetic diseases by state

Texas56 orgsNew York51 orgs

Worth a second look

Pages close to ranking on Google -- an extra link helps them along.

Strive Preparatory Schoolsranks #7 · 1,217/moInternational Fellowship Of Christians Jewsranks #6 · 1,142/moMountain View Los Altos High School Foundationranks #7 · 1,179/moCommonspirit Healthranks #7 · 1,305/moErik S Cassel Foundationranks #6 · 971/moBosana Foundationranks #7 · 1,099/mo

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Public data from IRS Form 990 e-file & Business Master File. A 990 shows how an organization is run and funded — not its real-world outcomes. Figures are presented without evaluation; we do not rate, score, or rank organizations. · philanthropy.org