Birth Defects & Genetic Diseases nonprofits in the U.S.
Voluntary health organizations active in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders not specified below. 523 birth defects & genetic diseases file a Form 990 in the United States. Together they report $3.2 billion in revenue and hold $7.2 billion in assets. Browse the largest below, or drill in by state. Also called Alagille Syndrome, Albinism, Amaurotic Familial Idiocy, Bardet-Biedl Syndrome, Birth Defects, Cerebral Palsy, Charcot-Marie Disease, Charcot-Marie-Tooth Disease, Chromosome Disorders, Clubfoot, Coffin-Lowrey Syndrome, Congenital Defects, Cri-du-Chat Syndrome, Crying Cat Syndrome, Cryptorchidism, Cystic Fibrosis, Cytochrome-c Oxidase Deficiency, Dandy-Walker Syndrome, De Lange Syndrome, Developmental Coordination Disorder, Factor X Deficiency, Fetal Alcohol Syndrome, Fragile X Syndrome, Friedreich Ataxia, Genetic Diseases, Hemophilia, Hereditary Diseases, Huntingtons Disease, Jervell-Lange Nielsen Syndrome, Kartagener Syndrome, Klinefelter Syndrome, Laurence-Moon Syndrome, Leigh Disease, Lesch-Nyhan Syndrome, Littles Disease, Lynch Syndrome, March of Dimes, Marfan Syndrome, Martin-Bell Syndrome, Mental Retardation, Motor Skills Disorder, Neurofibromatosis, Oral-Facial Clefts, Phenylketonuria, PKU, Porphyria, Prader-Willi Syndrome, Pseudoxanthoma Elasticum, Pyruvate Carboxylase Deficiency Disease, Pyruvate Dehydrogenase Complex Deficiency Disease, Rett Disorder, Rett Syndrome, Retts Disorder, Retts Syndrome, Rett's Disorder, Rett's Syndrome, Rh Disease, Romano-Ward Syndrome, Rubinstein-Taybi Syndrome, Sickle Cell, Spina Bifida, Sudden Infant Death, Tay Sachs, Testicular Feminization Syndrome, Thalassemia, Turner Syndrome, Turners Syndrome, WAGR Syndrome, Werner Syndrome, Williams Syndrome, Xeroderma Pigmentosum.
The largest are World Federation Of Hemophilia Usa, Cystic Fibrosis Foundation, and United Cerebral Palsy Associations Of New York State Inc.
Public data from IRS Form 990 e-file & Business Master File. A 990 shows how an
organization is run and funded — not its real-world outcomes. Figures are presented without evaluation;
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