Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
92 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $79K paid to officers and key staff.
Dylan Verden’s $66K as Chief Science Officer is at the 53rd percentile of top reported officer pay among 2095 $100K–1M mental health nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 6 named individuals · Part VII
| Name | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|
| Dominique Lessard | $41,727 | $84,696 | $76,483 | $33,843 |
| Dylan Verden | $65,744 | — | — | — |
| Dylan Verden Ph D | — | $53,903 | — | — |
| Kathryn Atchley | — | $41,876 | $48,232 | $45,284 |
| Charlotte Klinepeter | — | $16,840 | — | — |
| Michelle Tao | — | $6,690 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports KAND patients and funds research for a cure.
Questions for Kif1aorg INC
Your first name shows with your question. Kif1aorg INC answers here, for everyone.
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KAND is a neurodegenerative disorder caused by mutations in the KIF1A gene and causes a constellation of medical challenges, including spastic paraplegia, epilepsy, intellectual disability, optic nerve atrophy, cerebellar atrophy, peripheral neuropathy, and autism.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $54K | $505K |
| Total assetsLn 16 | $81K | $505K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $81K | $505K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $152K | $152K | ||
| Grants and assistance to foreign recipientsLn 3 | $32K | $32K | ||
| Pay of current officers, directors and key staffLn 5 | $79K | $71K | $8K | |
| Payroll taxesLn 10 | $6K | $5K | $605 | |
| Office expensesLn 13 | $2K | $2K | ||
| Information technologyLn 14 | $7K | $653 | $6K | |
| TravelLn 17 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $22K | $18K | $4K | |
| Total functional expensesLn 25 | $302K | $279K | $23K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $295K | $149K | $145K | $218K | 990 PDF |
| FY2023 | $229K | $424K | −$194K | $73K | 990 PDF |
| FY2022 | $557K | $1.1M | −$497K | $267K | 990 PDF |
| FY2021 | $816K | $557K | $259K | $764K | 990 PDF |
| FY2020 Viewing | $741K | $302K | $440K | $505K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $741,465 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 1 to look at
Part VIII · Statement of revenue $741,465 across 5 lines filed
Part IX · Statement of functional expenses $301,952 across 8 lines filed
Part X · Balance sheet $504,969 assets, 7 lines filed
Part XI · Reconciliation of net assets $504,969 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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