Kif1aorg INC
Supports KAND patients and funds research for a cure. For fiscal year 2024 it reported $295K in revenue, $149K in expenses, and $218K in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Mental Health
- Location
- New York, NY
- Website
- www.kif1a.org
- Filings
- 5 on file (2020–2024)
More identity details & actions ⌄
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Summary of the Filing
Where the work happens
Family & Scientific Engagement Conference
KIF1A.ORG hosts a biennial family and scientific engagement conference to unite the global kand community-including patients, families, researchers, clinicians, and industry partners-for a collaborative exchange of knowledge, research updates, and lived experiences.
Community & Family Support
KIF1A.ORG'S community and family support program empowers individuals affected by KIF1A associated neurological disorder (kand) through direct support, resource development, and family-centered initiatives.
Medical Research and Development
KIF1A.ORG'S medical research and development program accelerates discovery and therapeutic development for KIF1A associated neurological disorder (kand) by driving scientific collaboration and patient-centered research.
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Dylan Verden’s $66K as Chief Science Officer is at the 53rd percentile of top reported officer pay among 2083 $100K–1M mental health nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 6 named individuals · Part VII
| Name | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|
| Dominique Lessard | $41,727 | $84,696 | $76,483 | $33,843 |
| Dylan Verden | $65,744 | — | — | — |
| Dylan Verden Ph D | — | $53,903 | — | — |
| Kathryn Atchley | — | $41,876 | $48,232 | $45,284 |
| Charlotte Klinepeter | — | $16,840 | — | — |
| Michelle Tao | — | $6,690 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 75% | — | — |
| Overhead ratio | 21% | — | — |
| Fundraising cost ratio | 2% | — | — |
| Revenue growth | 28% | — | — |
| Accounting fee ratio | 7% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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