Kif1aorg INC: Nonprofit Profile, Financials & Form 990 (EIN 82-0714729)

Dylan Verden’s $66K as Chief Science Officer is at the 53rd percentile of top reported officer pay among 2095 $100K–1M mental health nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 6 named individuals · Part VII

Name	FY2023	FY2022	FY2021	FY2020
Dominique Lessard	$41,727	$84,696	$76,483	$33,843
Dylan Verden	$65,744	—	—	—
Dylan Verden Ph D	—	$53,903	—	—
Kathryn Atchley	—	$41,876	$48,232	$45,284
Charlotte Klinepeter	—	$16,840	—	—
Michelle Tao	—	$6,690	—	—

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Kif1aorg INC executive salaries →

On this list? Claim this org

Something off? Claim to add context

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2Yes
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Supports KAND patients and funds research for a cure.

Questions for Kif1aorg INC

Tap to ask. Kif1aorg INC sees how many people are interested.

Your first name shows with your question. Kif1aorg INC answers here, for everyone.

Provided by the organization

Know this org? Add your story

3 programs · $84K · in their own filed words · FY2024

01

Family & Scientific Engagement Conference

KIF1A.ORG hosts a biennial family and scientific engagement conference to unite the global kand community-including patients, families, researchers, clinicians, and industry partners-for a collaborative exchange of knowledge, research updates, and lived experiences.

$38Kprogram expense

02

Community & Family Support

KIF1A.ORG'S community and family support program empowers individuals affected by KIF1A associated neurological disorder (kand) through direct support, resource development, and family-centered initiatives.

$27Kprogram expense

03

Medical Research and Development

KIF1A.ORG'S medical research and development program accelerates discovery and therapeutic development for KIF1A associated neurological disorder (kand) by driving scientific collaboration and patient-centered research.

$19Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

Paypal Charitable Giving FundFY2024$18K

Daffy Charitable FundFY2024$10K

American Online Giving Foundation INCFY2024$10K

Cigna FoundationFY2024$2K

Total grants receivedfrom 4 funders$39K

See all 4 funders →

Grants paid · 7 grants · $587K · 2020–2023

The Trustees of Columbia University in the City of New YorkNY · FY2023$122,896

The Trustees of Columbia University in the City of New YorkNY · FY2022$265,000

Unitemized GrantFY2022$6,948

The Trustees of Columbia University in the City of New YorkNY · FY2021$27,500

Albert Einstein College of MedicineNY · FY2021$25,000

Uc RegentsFY2020$90,000

The Trustees of Columbia University in the City of New YorkNY · FY2020$50,000

By the numbers

The FY2024 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$295K

Ln 12

Gifts and grantsLn 1h$292K

Fees for servicesLn 2g$2K

Money outPt IX

$149K

Ln 25

Programscol B$112K

Managementcol C$32K

Fundraisingcol D$6K

Owns and owesPt X

$218K

net assets · Ln 32

Cash and savingsLn 1–2$218K

Total assetsLn 16$218K

LiabilitiesLn 26$0

PeoplePt VI, VII

7

listed · VII A

PaidVII A0

Voting boardVI 1a5

IndependentVI 1b5

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$292K

Government grantsLn 1e$0

Noncash giftsLn 1g$0

Fundraising eventsLn 1c$0

Fees for servicesLn 2g$2K

Total revenueLn 12$295K

Assets in detailPt X, end of year

CashLn 1$218K

Cash and savings togetherLn 1–2$218K

Total assetsLn 16$218K

LiabilitiesLn 26$0

Net assetsLn 32$218K

OperationsPt I, VI

EmployeesI 55

VolunteersI 62,500

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14No

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY24	End FY24
Cash and savingsLn 1–2	$73K	$218K
Total assetsLn 16	$73K	$218K
LiabilitiesLn 26	$0	$0
Net assetsLn 32	$73K	$218K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic individualsLn 2	$3K	$3K
Other salaries and wagesLn 7	$82K	$78K		$4K
Other employee benefitsLn 9	$7K	$6K	$679	$296
Payroll taxesLn 10	$7K	$6K		$334
Accounting feesLn 11c	$11K		$11K
Other fees for servicesLn 11g	$1K		$1K
Office expensesLn 13	$12K	$2K	$9K	$1K
TravelLn 17	$3K	$3K
Conferences, conventions and meetingsLn 19	$14K	$14K
Other expenses (24a–d)Ln 24	$10K	$2	$10K	$0
Total functional expensesLn 25	$149K	$112K	$32K	$6K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest Viewing	$295K	$149K	$145K	$218K	990 PDF
FY2023	$229K	$424K	−$194K	$73K	990 PDF
FY2022	$557K	$1.1M	−$497K	$267K	990 PDF
FY2021	$816K	$557K	$259K	$764K	990 PDF
FY2020	$741K	$302K	$440K	$505K	990 PDF

More to add? Claim this org

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2024 990 (6 parts)

Part I · Summary $294,585 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $206,859$292,389

I-9 Program service revenuePrior year $0$2,196

I-10 Investment incomePrior year $0$0

I-11 Other revenuePrior year $22,611$0

I-12 Total revenuePrior year $229,470$294,585

I-13 Grants and similar amounts paidPrior year $129,956$3,180

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $123,835$94,873

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $169,874$51,084

I-18 Total expensesPrior year $423,665$149,137

I-19 Revenue less expensesPrior year −$194,195$145,448

Part VI · Governance 5 of 5 board members independent, 3 to look at

VI-1a Voting members of the governing body5

VI-1b Independent voting members5

VI-2 Family or business relationship among officers or directorsYes

VI-14 Document retention and destruction policyNo

VI-15a Process for setting top official's payNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

Part VIII · Statement of revenue $294,585 across 10 lines filed

VIII-1a Federated campaigns$0

VIII-1b Membership dues$0

VIII-1c Fundraising events$0

VIII-1d Related organizations$0

VIII-1e Government grants$0

VIII-1f All other contributions, gifts and grants$292,389

VIII-1g Noncash contributions (included above)$0

VIII-1h Total contributions, gifts and grants$292,389

VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $2,196 · Unrelated business $0 · Excluded from tax $0$2,196

VIII-12 Total revenueRelated to mission $2,196 · Unrelated business $0 · Excluded from tax $0$294,585

Part IX · Statement of functional expenses $149,137 across 10 lines filed

IX-2 Grants to domestic individualsPrograms $3,180$3,180

IX-7 Other salaries and wagesPrograms $77,525 · Fundraising $4,080$81,605

IX-9 Other employee benefitsPrograms $5,623 · Management $679 · Fundraising $296$6,598

IX-10 Payroll taxesPrograms $6,336 · Fundraising $334$6,670

IX-11c Accounting feesManagement $10,930$10,930

IX-11g Other fees for servicesManagement $1,176$1,176

IX-13 Office expensesPrograms $2,092 · Management $8,674 · Fundraising $1,240$12,006

IX-17 TravelPrograms $3,194$3,194

IX-19 Conferences, conventions and meetingsPrograms $13,610$13,610

IX-24 Other expenses (24a–d)Programs $2 · Management $10,166 · Fundraising $0$10,168

IX-25 Total functional expensesPrograms $111,562 · Management $31,625 · Fundraising $5,950$149,137

Part X · Balance sheet $218,316 assets, 7 lines filed

X-1 Cash, non-interest-bearingStart of year $72,868$218,316

X-16 Total assetsStart of year $72,868$218,316

X-26 Total liabilitiesStart of year $0$0

X-27 Net assets without donor restrictionsStart of year $72,868$218,316

X-28 Net assets with donor restrictionsStart of year $0$0

X-32 Total net assets or fund balancesStart of year $72,868$218,316

X-33 Total liabilities and net assetsStart of year $72,868$218,316

Part XI · Reconciliation of net assets $218,316 net assets at year end

XI-1 Total revenue$294,585

XI-2 Total expenses$149,137

XI-3 Revenue less expenses$145,448

XI-4 Net assets at start of year$72,868

XI-5 Net unrealized gains (losses) on investments$0

XI-6 Donated services and use of facilities$0

XI-7 Investment expenses$0

XI-8 Prior period adjustments$0

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$218,316

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

Your org? Add context

Made it to the end? Claim this org