Scleroderma Foundation EIN 13-3128296 Form 990 (PDF) Claim this org

Scleroderma Foundation FY2023 filing

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Educates, supports scleroderma patients, funds research, and raises public awareness. For fiscal year 2023 it reported $14K in revenue, $177K in expenses, and $810K in net assets.Pt I

Type
Unknown exempt organization · Nonprofit
Location
Binghamton, NY
Website
www.scleroderma.org/tristate
Filings
5 on file (2020–2023)
Revenue
$14KFY2023
Expenses
$177K
Net assets
$810K
People
7
Filings
5
Updates
0
More identity details & actions ⌄
EIN  13-3128296 Unknown exempt organization Binghamton, NY
Form 990 (PDF)
You’re viewing the FY2023 filing — not the latest on file. See the latest (FY2024) →
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Size
<$100K
What they do
Educates, supports scleroderma patients, funds research, and raises public awareness.
Leadership
Jonathan Schorr · Board Member
Money in and out
$14K revenue, $177K expenses
Bottom line
-1182% surplus margin
Reported financial activity · FY2023
Total revenue
$14K
Pt VIII · Ln 12
Total expenses
$177K
Pt IX · Ln 25
Net assets
$810K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$164K
Where spending went · Part IX cols B–D
Program services $0.99 Management & general $0.01 Fundraising $-0.00
Surplus margin
-1182%
revenue over expenses, this year
Program spending
99%
of expenses reach programs

Summary of the Filing

Part I · fiscal year 2023 · Form 990
Revenue
$14K
FY2023▼ -95%
Expenses
$177K
FY2023▼ -3%
Total assets
$810K
FY2023▼ -9%
Total liabilities
$0
FY2023▼ -100%
Total revenue
$14K
Pt VIII · Ln 12
Total expenses
$177K
Pt IX · Ln 25
Net assets
$810K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$164K
Total assetsPt X · Ln 16$810K
Program-expense ratioPt IX · col B99%
Voting members of governing bodyPt I · Ln 37
Independent voting membersPt I · Ln 47

Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CScleroderma Foundation
EINHdr · item D13-3128296
Principal addressHdr · item CBinghamton, NY
WebsiteHdr · item Jwww.scleroderma.org/tristate
Year of formationHdr · item Lpending
State of legal domicileHdr · item MNY
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFNonprofit
Ruling yearIRS BMFpending

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a7
Independent voting membersPt VI · Ln 1b7
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2No

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
President
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2022FY2021FY2020
Bruce Cowan$43,077$74,000
Carla Gage$10,975

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Mission & Programs · Part III

Where the work happens

2 program services account for $176K of program spending, described in the organization's own filed words · FY2023.
01

Program services include individual and family counseling, educational meetings, telephone helpline, newsletters, and other patient educational information.

$176Kprogram expense
02

Preparation of newsletter and other patient education literature

Pt IX · col B

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Statement of Revenue

Part VIII
Contributions & grants$12K · 87%
Investment income$3K · 22%
Contributions & grants87%$12K
Investment income22%$3K
Total revenueLn 12$14K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.99 Management & general $0.01 Fundraising $-0.00
Program services99%$176K
Management & general1%$2K
Total functional expensesLn 25$177K

Balance Sheet

Part X · end of year
CashLn 1$44K
Total assetsLn 16$810K
Total liabilitiesLn 26$0
Total net assetsLn 32$810K
Months of cash on handcomputed3.0

Financial Metrics

Form 990 · FY2023 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $810K · Operating expenses/yr $177K
54.8 months
Where the money goes
Program services
Program services $176K · Total expenses $177K
99%
Management & General
Management & general $2K · Total expenses $177K
1%
Fundraising
Fundraising $-259 · Total expenses $177K
-0.1%
Cost to raise $1
Fundraising expense (3-yr avg) $58K · Solicited contributions (3-yr avg) $86K
$0.67 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $12K · Total revenue $14K
87%
Government reliance
Government grants — · Total revenue $14K
Earned-income share
Program service revenue $0 · Total revenue $14K
0%
Investment reliance
Investment income $3K · Total revenue $14K
+22%
Program self-sufficiency
Program service revenue $0 · Total expenses $177K
0%
Growth & trend
Revenue growth (YoY)
This year $14K · Prior year $255K
-95%
Net-asset trend (YoY)
End of year $810K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $14K · Expenses $177K
-1182%
Liabilities-to-Assets
Total liabilities — · Total assets $810K
Net-asset ratio
Net assets $810K · Total assets $810K
100%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $0 · Other securities (Pt X, ln 12) $766K · Total assets (Pt X, ln 16) $810K
95%
People & payroll
Highest Reported Total Compensation
Individual Jonathan Schorr · Reported title BOARD MEMBER · Highest reported compensation $0 · Total expenses $177K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $-1K · Total expenses $177K
-0.6%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 99%
Overhead ratio 1%
Fundraising cost ratio -2%
Revenue growth -95%
Investment management fee ratio 0%
Legal fee ratio 0%
Accounting fee ratio 0%
Fundraising fee ratio 0%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$2K
Grants paid · 1 grant · $176K · 2023–2023

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$2K revenue · ⤓ 990 PDF
FY2023$14K revenue · viewing · ⤓ 990 PDF
FY2022$255K revenue · ⤓ 990 PDF
FY2021$315K revenue · ⤓ 990 PDF
FY2020$340K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2023IRS
Classification, formation year, addressIRS Business Master File
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