Scleroderma Foundation EIN 13-3128296 Form 990 (PDF) Claim this org

Scleroderma Foundation FY2021 filing

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Educates, supports scleroderma patients, funds research, and raises public awareness. For fiscal year 2021 it reported $315K in revenue, $365K in expenses, and $934K in net assets.Pt I

Type
Unknown exempt organization · Nonprofit
Location
Binghamton, NY
Website
www.scleroderma.org/tristate
Filings
5 on file (2020–2021)
Revenue
$315KFY2021
Expenses
$365K
Net assets
$934K
People
10
Filings
5
Updates
0
More identity details & actions ⌄
EIN  13-3128296 Unknown exempt organization Binghamton, NY
Form 990 (PDF)
You’re viewing the FY2021 filing — not the latest on file. See the latest (FY2024) →
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Size
<$100K
What they do
Educates, supports scleroderma patients, funds research, and raises public awareness.
Leadership
Bruce Cowan · Former Executive Director · $43K
Money in and out
$315K revenue, $365K expenses
Bottom line
-16% surplus margin
Reported financial activity · FY2021
Total revenue
$315K
Pt VIII · Ln 12
Total expenses
$365K
Pt IX · Ln 25
Net assets
$934K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$50K
Where spending went · Part IX cols B–D
Program services $0.59 Management & general $0.13 Fundraising $0.29
Surplus margin
-16%
revenue over expenses, this year
Program spending
59%
of expenses reach programs

Summary of the Filing

Part I · fiscal year 2021 · Form 990
Revenue
$315K
FY2021▼ -7%
Expenses
$365K
FY2021▼ -14%
Total assets
$974K
FY2021▲ +2%
Total liabilities
$40K
FY2021▲ +242%
Total revenue
$315K
Pt VIII · Ln 12
Total expenses
$365K
Pt IX · Ln 25
Net assets
$934K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$50K
Total assetsPt X · Ln 16$974K
Program-expense ratioPt IX · col B59%
Voting members of governing bodyPt I · Ln 39
Independent voting membersPt I · Ln 49

Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CScleroderma Foundation
EINHdr · item D13-3128296
Principal addressHdr · item CBinghamton, NY
WebsiteHdr · item Jwww.scleroderma.org/tristate
Year of formationHdr · item Lpending
State of legal domicileHdr · item MNY
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFNonprofit
Ruling yearIRS BMFpending

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a9
Independent voting membersPt VI · Ln 1b9
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2No

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Former Executive Director
$43,077Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Ex Officio Mbr
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
President
$0Pt VII · Sec A

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2022FY2021FY2020
Bruce Cowan$43,077$74,000
Carla Gage$10,975

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Mission & Programs · Part III

Where the work happens

3 program services account for $215K of program spending, described in the organization's own filed words · FY2021.
01

Program services include individual and family counseling, educational meetings, telephone helpline, newsletters, and other patient educational information.

$108Kprogram expense
02

The foundation paid an annual assessment and restricted research pledge award to scleroderma foundation-natl to be used toward research grants as well as other programs affiliated with the national operations.

$102Kprogram expense
03

Preparation of newsletter and other patient education literature

$5Kprogram expense

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Statement of Revenue

Part VIII
Contributions & grants$151K · 48%
Other revenue$130K · 41%
Investment income$34K · 11%
Contributions & grants48%$151K
Other revenue41%$130K
Investment income11%$34K
Total revenueLn 12$315K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.59 Management & general $0.13 Fundraising $0.29
Program services59%$215K
Management & general13%$46K
Fundraising29%$105K
Total functional expensesLn 25$365K

Balance Sheet

Part X · end of year
CashLn 1$166K
Total assetsLn 16$974K
Total liabilitiesLn 26$40K
Total net assetsLn 32$934K
Months of cash on handcomputed5.5

Financial Metrics

Form 990 · FY2021 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $947K · Operating expenses/yr $365K
31.1 months
Where the money goes
Program services
Program services $215K · Total expenses $365K
59%
Management & General
Management & general $46K · Total expenses $365K
13%
Fundraising
Fundraising $105K · Total expenses $365K
29%
Cost to raise $1
Fundraising expense (2-yr avg) $103K · Solicited contributions (2-yr avg) $152K
$0.68 to raise $1 (2-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $151K · Total revenue $315K
48%
Government reliance
Government grants — · Total revenue $315K
Earned-income share
Program service revenue $0 · Total revenue $315K
0%
Investment reliance
Investment income $34K · Total revenue $315K
+11%
Program self-sufficiency
Program service revenue $0 · Total expenses $365K
0%
Growth & trend
Revenue growth (YoY)
This year $315K · Prior year $340K
-7%
Net-asset trend (YoY)
End of year $934K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $315K · Expenses $365K
-16%
Liabilities-to-Assets
Total liabilities — · Total assets $974K
Net-asset ratio
Net assets $934K · Total assets $974K
96%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $0 · Other securities (Pt X, ln 12) $781K · Total assets (Pt X, ln 16) $974K
80%
People & payroll
Highest Reported Total Compensation
Individual Jonathan Schorr · Reported title BOARD MEMBER · Highest reported compensation $0 · Total expenses $365K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $197K · Total expenses $365K
54%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 59%
Overhead ratio 13%
Fundraising cost ratio 69%
Revenue growth -7%
Investment management fee ratio 0%
Legal fee ratio 0%
Accounting fee ratio 0%
Fundraising fee ratio 0%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$2K
Grants paid · 1 grant · $176K · 2023–2023

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$2K revenue · ⤓ 990 PDF
FY2023$14K revenue · ⤓ 990 PDF
FY2022$255K revenue · ⤓ 990 PDF
FY2021$315K revenue · viewing · ⤓ 990 PDF
FY2020$340K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2021IRS
Classification, formation year, addressIRS Business Master File
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