Scleroderma Foundation: FY2021 Nonprofit Profile & Form 990 (EIN 13-3128296)

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Educates, supports scleroderma patients, funds research, and raises public awareness.

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Provided by the organization

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3 programs · $215K · in their own filed words · FY2021

01

Program services include individual and family counseling, educational meetings, telephone helpline, newsletters, and other patient educational information.

$108Kprogram expense

02

The foundation paid an annual assessment and restricted research pledge award to scleroderma foundation-natl to be used toward research grants as well as other programs affiliated with the national operations.

$102Kprogram expense

03

Preparation of newsletter and other patient education literature

$5Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2025

Robert and Jean Rogers Charitable Foundation INCFY2025$2K

Total grants receivedfrom 1 funder$2K

Grants paid · 1 grant · $176K · 2023–2023

National Scleroderma FoundationMA · FY2023$176,264

By the numbers

The FY2021 990, line by line.

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from philanthropy.org

1The main four

Money inPt VIII

$315K

Ln 12

Gifts and grantsLn 1h$151K

Other incomeLn 4–11$130K

Investment incomeLn 3$34K

Money outPt IX

$365K

Ln 25

Programscol B$215K

Managementcol C$46K

Fundraisingcol D$105K

Owns and owesPt X

$934K

net assets · Ln 32

Cash and savingsLn 1–2$166K

Total assetsLn 16$974K

LiabilitiesLn 26$40K

PeoplePt VI, VII

10

listed · VII A

PaidVII A1

Voting boardVI 1a9

IndependentVI 1b9

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$151K

Investment incomeLn 3$34K

Other incomeLn 4–11$130K

Gains on assetsLn 7$21K

Total revenueLn 12$315K

Assets in detailPt X, end of year

CashLn 1$49K

SavingsLn 2$117K

Cash and savings togetherLn 1–2$166K

InvestmentsLn 11–13$781K

Land, buildings, equipmentLn 10c$0

Other assetsLn 15$0

Total assetsLn 16$974K

LiabilitiesLn 26$40K

Net assetsLn 32$934K

OperationsPt I, VI

EmployeesI 54

VolunteersI 6350

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13No

Records policyVI 14No

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY21	End FY21
Cash and savingsLn 1–2	$370K	$166K
InvestmentsLn 11–13	$545K	$781K
Land, buildings, equipmentLn 10c	$116	$0
Total assetsLn 16	$951K	$974K
LiabilitiesLn 26	$12K	$40K
Net assetsLn 32	$940K	$934K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$0
Grants to domestic individualsLn 2	$0
Grants and assistance to foreign recipientsLn 3	$0
Benefits paid to or for membersLn 4	$0
Pay of current officers, directors and key staffLn 5	$43K	$19K	$4K	$19K
Pay of disqualified personsLn 6	$0
Other salaries and wagesLn 7	$116K	$52K	$12K	$52K
Pension plan contributionsLn 8	$3K	$1K	$280	$1K
Other employee benefitsLn 9	$20K	$9K	$2K	$9K
Payroll taxesLn 10	$16K	$7K	$2K	$7K
Management feesLn 11a	$0
Legal feesLn 11b	$0
Accounting feesLn 11c	$0
Lobbying feesLn 11d	$0
Professional fundraising feesLn 11e	$0
Investment management feesLn 11f	$0
Other fees for servicesLn 11g	$20K	$4K	$13K	$3K
Advertising and promotionLn 12	$0
Office expensesLn 13	$2K	$241	$1K	$241
Information technologyLn 14	$0
RoyaltiesLn 15	$0
OccupancyLn 16	$17K	$8K	$2K	$8K
TravelLn 17	$491		$491
Travel and entertainment for public officialsLn 18	$0
Conferences, conventions and meetingsLn 19	$2K	$895	$379	$895
InterestLn 20	$0
Payments to affiliatesLn 21	$102K	$102K
Depreciation, depletion and amortizationLn 22	$116		$116
InsuranceLn 23	$2K	$984	$219	$983
Other expenses (24a–d)Ln 24	$17K	$9K	$7K	$1K
All other expensesLn 24e	$5K	$2K	$2K	$1K
Total functional expensesLn 25	$365K	$215K	$46K	$105K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest	$2K				990 PDF
FY2023	$14K	$177K	−$164K	$810K	990 PDF
FY2022	$255K	$182K	$72K	$880K	990 PDF
FY2021 Viewing	$315K	$365K	−$50K	$934K	990 PDF
FY2020	$340K	$426K	−$87K	$940K	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants O · Explanations

See the full FY2021 990 (6 parts)

Part I · Summary $314,907 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $190,822$151,004

I-9 Program service revenue$0

I-10 Investment incomePrior year $10,762$34,352

I-11 Other revenuePrior year $137,989$129,551

I-12 Total revenuePrior year $339,573$314,907

I-13 Grants and similar amounts paid$0

I-14 Benefits paid to members$0

I-15 Salaries and benefitsPrior year $198,025$197,277

I-16a Professional fundraising fees$0

I-17 Other expensesPrior year $228,061$167,760

I-18 Total expensesPrior year $426,086$365,037

I-19 Revenue less expensesPrior year −$86,513−$50,130

Part VI · Governance 9 of 9 board members independent, 2 to look at

VI-1a Voting members of the governing body9

VI-1b Independent voting members9

VI-13 Written whistleblower policyNo

VI-14 Document retention and destruction policyNo

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-15a Process for setting top official's payYes

Part VIII · Statement of revenue $314,907 across 9 lines filed

VIII-1f All other contributions, gifts and grants$151,004

VIII-1h Total contributions, gifts and grants$151,004

VIII-3 Investment incomeExcluded from tax $13,656$13,656

VIII-5 Royalties$0

VIII-6 Net rental income or loss$0

VIII-7 Net gain or loss on sales of assetsExcluded from tax $20,696$20,696

VIII-8 Net income from fundraising eventsExcluded from tax $127,961$127,961

VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $1,590$1,590

VIII-12 Total revenueRelated to mission $1,590 · Excluded from tax $162,313$314,907

Part IX · Statement of functional expenses $365,037 across 31 lines filed

IX-1 Grants to domestic organizations$0

IX-2 Grants to domestic individuals$0

IX-3 Grants and assistance to foreign recipients$0

IX-4 Benefits paid to or for members$0

IX-5 Pay of current officers, directors and key staffPrograms $19,385 · Management $4,308 · Fundraising $19,384$43,077

IX-6 Pay of disqualified persons$0

IX-7 Other salaries and wagesPrograms $52,065 · Management $11,570 · Fundraising $52,066$115,701

IX-8 Pension plan contributionsPrograms $1,260 · Management $280 · Fundraising $1,261$2,801

IX-9 Other employee benefitsPrograms $9,019 · Management $2,004 · Fundraising $9,019$20,042

IX-10 Payroll taxesPrograms $7,045 · Management $1,566 · Fundraising $7,045$15,656

IX-11a Management fees$0

IX-11b Legal fees$0

IX-11c Accounting fees$0

IX-11d Lobbying fees$0

IX-11e Professional fundraising fees$0

IX-11f Investment management fees$0

IX-11g Other fees for servicesPrograms $3,676 · Management $13,134 · Fundraising $3,076$19,886

IX-12 Advertising and promotion$0

IX-13 Office expensesPrograms $241 · Management $1,041 · Fundraising $241$1,523

IX-14 Information technology$0

IX-15 Royalties$0

IX-16 OccupancyPrograms $7,745 · Management $1,722 · Fundraising $7,745$17,212

IX-17 TravelManagement $491$491

IX-18 Travel and entertainment for public officials$0

IX-19 Conferences, conventions and meetingsPrograms $895 · Management $379 · Fundraising $895$2,169

IX-20 Interest$0

IX-21 Payments to affiliatesPrograms $101,688$101,688

IX-22 Depreciation, depletion and amortizationManagement $116$116

IX-23 InsurancePrograms $984 · Management $219 · Fundraising $983$2,186

IX-24 Other expenses (24a–d)Programs $9,043 · Management $6,505 · Fundraising $1,466$17,014

IX-24e All other expensesPrograms $1,532 · Management $2,489 · Fundraising $1,454$5,475

IX-25 Total functional expensesPrograms $214,578 · Management $45,824 · Fundraising $104,635$365,037

Part X · Balance sheet $974,224 assets, 19 lines filed

X-1 Cash, non-interest-bearingStart of year $39,699$48,750

X-2 Savings and temporary cash investmentsStart of year $330,591$117,440

X-3 Pledges and grants receivable$0

X-4 Accounts receivableStart of year $35,847$26,916

X-8 Inventories for sale or use$0

X-9 Prepaid expenses and deferred chargesStart of year $445$445

X-10c Land, buildings and equipment, netStart of year $116$0

X-11 Publicly traded securities$0

X-12 Other securitiesStart of year $544,749$780,673

X-13 Program-related investments$0

X-14 Intangible assets$0

X-15 Other assets$0

X-16 Total assetsStart of year $951,447$974,224

X-17 Accounts payable and accrued expensesStart of year $11,815$6,032

X-24 Unsecured notes and loans payable$34,427

X-26 Total liabilitiesStart of year $11,815$40,459

X-27 Net assets without donor restrictionsStart of year $939,632$933,765

X-32 Total net assets or fund balancesStart of year $939,632$933,765

X-33 Total liabilities and net assetsStart of year $951,447$974,224

Part XI · Reconciliation of net assets $933,765 net assets at year end

XI-1 Total revenue$314,907

XI-2 Total expenses$365,037

XI-3 Revenue less expenses−$50,130

XI-4 Net assets at start of year$939,632

XI-5 Net unrealized gains (losses) on investments$49,285

XI-7 Investment expenses−$5,022

XI-10 Net assets at end of year$933,765

Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File

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Scleroderma Foundation FY2021 filing

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Compensation history total reportable pay by year · 2 named individuals · Part VII