Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2016.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
100 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
10 people listed on the 990.
Andrea Miller’s $13K as Executive Director is at the 9th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Supports families and promotes research for rare congenital disorders of glycosylation (CDG).
Questions for Cdg Care
Your first name shows with your question. Cdg Care answers here, for everyone.
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Research and Development
In 2023, CDG care funded 2 research grants and 6 research projects. The first grant was paid to washington university of ST. Louis. This grant was $50,000 and supported research to investigate the viability of treatment options in CDG zebrafish models. The second grant was paid to nationwide children's research center.
Patient/Family Travel & Equipment Grant Program
In 2023, CDG care continued to support a program that provides financial support to patients and families to obtain much needed THERAPEUTIC/MEDICAL equipment and provide funding support for families to travel to specialty medical centers to receive consultation and medical guidance from experts in CDG.
Cdg Biennial Conference
In 2023, CDG care began preparations to host the upcoming 5TH biennial professional and educational conference on CDG to be held in march 2024. Through these preparations, an event venue deposit was paid out in 2023, and the remaining conference expenses will be paid out after the event in march, 2024.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $0 | |
| InvestmentsLn 11–13 | $598K | $498K |
| Total assetsLn 16 | $598K | $523K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $598K | $523K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $439K | $439K | ||
| Grants to domestic individualsLn 2 | $14K | $14K | ||
| Grants and assistance to foreign recipientsLn 3 | $19K | $19K | ||
| Legal feesLn 11b | $7K | $7K | ||
| Accounting feesLn 11c | $20K | $20K | ||
| Office expensesLn 13 | $324 | $324 | ||
| Information technologyLn 14 | $4K | $4K | ||
| Conferences, conventions and meetingsLn 19 | $146 | $146 | ||
| InsuranceLn 23 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $21K | $20K | $220 | |
| All other expensesLn 24e | $10 | $10 | ||
| Total functional expensesLn 25 | $526K | $524K | $2K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $531K | $344K | $187K | $709K | 990 PDF |
| FY2023 Viewing | $492K | $526K | −$34K | $523K | 990 PDF |
| FY2022 | $715K | $397K | $318K | $598K | 990 PDF |
| FY2021 | $266K | $126K | $140K | $270K | 990 PDF |
| FY2020 | $91K | $130K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $491,830 revenue, 12 lines filed
Part VI · Governance 10 of 10 board members independent, 3 to look at
Part VIII · Statement of revenue $491,830 across 4 lines filed
Part IX · Statement of functional expenses $525,673 across 11 lines filed
Part X · Balance sheet $522,624 assets, 9 lines filed
Part XI · Reconciliation of net assets $522,624 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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