Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2016.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
98 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
10 people listed on the 990.
Andrea Miller’s $13K as Executive Director is at the 9th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Supports families and promotes research for rare congenital disorders of glycosylation (CDG).
Questions for Cdg Care
Your first name shows with your question. Cdg Care answers here, for everyone.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $130K | $270K |
| Total assetsLn 16 | $130K | $270K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $130K | $270K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $70K | $70K | ||
| Grants to domestic individualsLn 2 | $12K | $12K | ||
| Grants and assistance to foreign recipientsLn 3 | $17K | $17K | ||
| Legal feesLn 11b | $10K | $10K | ||
| Accounting feesLn 11c | $500 | $500 | ||
| Advertising and promotionLn 12 | $150 | $150 | ||
| Office expensesLn 13 | $395 | $395 | ||
| Information technologyLn 14 | $2K | $2K | ||
| Conferences, conventions and meetingsLn 19 | $5K | $5K | ||
| InsuranceLn 23 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $8K | $8K | $388 | |
| Total functional expensesLn 25 | $126K | $124K | $2K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $531K | $344K | $187K | $709K | 990 PDF |
| FY2023 | $492K | $526K | −$34K | $523K | 990 PDF |
| FY2022 | $715K | $397K | $318K | $598K | 990 PDF |
| FY2021 Viewing | $266K | $126K | $140K | $270K | 990 PDF |
| FY2020 | $91K | $130K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $266,136 revenue, 12 lines filed
Part VI · Governance 0 of 9 board members independent, 3 to look at
Part VIII · Statement of revenue $266,136 across 5 lines filed
Part IX · Statement of functional expenses $126,071 across 11 lines filed
Part X · Balance sheet $269,968 assets, 6 lines filed
Part XI · Reconciliation of net assets $269,968 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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