Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2016.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
99 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
10 people listed on the 990.
Andrea Miller’s $13K as Executive Director is at the 9th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Supports families and promotes research for rare congenital disorders of glycosylation (CDG).
Questions for Cdg Care
Your first name shows with your question. Cdg Care answers here, for everyone.
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Research and Development
In 2022, CDG care funded 2 research grants and 5 research projects. The first grant was paid to the university of georgia. This grant was $50,000 and supported research to investigate high throughput drug screening for patients diagnosed with mhe-cdgs. The second grant was paid to the university of minnesota.
Cdg Biennial Conference
In 2022, CDG care hosted the 4TH biennial professional and educational conference on CDG. While many preliminary expenses were incurred in 2021, the majority expenses are paid out during the event, which was in february 2022.
Patient/Family Travel & Equipment Grant Program
In 2022, CDG care continued to support a program that provides financial support to patients and families to obtain much needed THERAPEUTIC/MEDICAL equipment and provide funding support for families to travel to specialty medical centers and the biennial CDG conference in san diego, ca in february 2022.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $280K | $598K |
| Total assetsLn 16 | $280K | $598K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $280K | $598K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $299K | $299K | ||
| Grants to domestic individualsLn 2 | $19K | $19K | ||
| Grants and assistance to foreign recipientsLn 3 | $25K | $25K | ||
| Legal feesLn 11b | $10K | $10K | ||
| Accounting feesLn 11c | $1K | $1K | ||
| Advertising and promotionLn 12 | $253 | $253 | ||
| Office expensesLn 13 | $312 | $312 | ||
| Information technologyLn 14 | $5K | $5K | ||
| Conferences, conventions and meetingsLn 19 | $30K | $30K | ||
| InsuranceLn 23 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $4K | $2K | $1K | |
| Total functional expensesLn 25 | $397K | $393K | $4K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $531K | $344K | $187K | $709K | 990 PDF |
| FY2023 | $492K | $526K | −$34K | $523K | 990 PDF |
| FY2022 Viewing | $715K | $397K | $318K | $598K | 990 PDF |
| FY2021 | $266K | $126K | $140K | $270K | 990 PDF |
| FY2020 | $91K | $130K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $715,053 revenue, 12 lines filed
Part VI · Governance 10 of 10 board members independent, 3 to look at
Part VIII · Statement of revenue $715,053 across 4 lines filed
Part IX · Statement of functional expenses $396,616 across 11 lines filed
Part X · Balance sheet $598,467 assets, 8 lines filed
Part XI · Reconciliation of net assets $598,467 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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