Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 1987.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
87 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
15 people listed on the 990; $596K paid to officers and key staff.
Gregory Gordon’s $526K as Chief Medical Officer is at the 64th percentile of top reported officer pay among 127 $10–100M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Gregory Gordon | $526,440 | $416,000 | — | — | — | — |
| Joanne Gold | $220,205 | $215,900 | $203,286 | $193,724 | $193,236 | $160,792 |
| Gloria Blecha | $179,263 | $171,600 | $129,705 | $104,973 | — | — |
| Kate Ceredona | — | $152,258 | $152,315 | — | — | — |
| Hannah Young | $130,689 | $130,007 | $110,376 | — | — | — |
| Neha Pamboo | $118,965 | — | — | — | — | — |
| Anoushka Donnelley | $112,854 | — | — | — | — | — |
| Cori Traub | — | — | — | — | $108,558 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Fund research and raise awareness to find treatments and a cure for scleroderma.
Questions for Scleroderma Research Foundation
Your first name shows with your question. Scleroderma Research Foundation answers here, for everyone.
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The Srf Research Program
Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community.
CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma.
Srf Education & Awareness Program
Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.5M | $3.9M |
| InvestmentsLn 11–13 | $8.2M | $13.5M |
| Land, buildings, equipmentLn 10c | $46K | $32K |
| Total assetsLn 16 | $11.1M | $18.7M |
| LiabilitiesLn 26 | $1.2M | $7.1M |
| Net assetsLn 32 | $9.9M | $11.5M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $2.5M | $2.5M | ||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $205K | $123K | $61K | $20K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $592K | $370K | $62K | $160K |
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $38K | $22K | $6K | $10K |
| Payroll taxesLn 10 | $57K | $35K | $9K | $13K |
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $299K | $299K | ||
| Accounting feesLn 11c | $237K | $237K | ||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $40K | $40K | ||
| Other fees for servicesLn 11g | $1.8M | $1.8M | $25K | $23K |
| Advertising and promotionLn 12 | $182K | $140K | $9K | $33K |
| Office expensesLn 13 | $94K | $45K | $8K | $41K |
| Information technologyLn 14 | $98K | $39K | $9K | $50K |
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $85K | $51K | $8K | $25K |
| TravelLn 17 | $17K | $5K | $584 | $12K |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $207K | $207K | $162 | $551 |
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $14K | $8K | $1K | $4K |
| InsuranceLn 23 | $8K | $5K | $825 | $2K |
| All other expensesLn 24e | $0 | |||
| Total functional expensesLn 25 | $6.5M | $5.6M | $477K | $396K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $13.1M | $10.3M | $2.8M | $16.9M | 990 PDF |
| FY2024 | $12.2M | $9.6M | $2.6M | $14.1M | 990 PDF |
| FY2023 Viewing | $8.4M | $6.5M | $1.9M | $11.5M | 990 PDF |
| FY2022 | $5.9M | $4.7M | $1.2M | $9.9M | 990 PDF |
| FY2021 | $3.8M | $3.7M | $82K | $9.5M | 990 PDF |
| FY2020 | $3.9M | $3.0M | $973K | $9.4M | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $8,418,038 revenue, 12 lines filed
Part VI · Governance 10 of 11 board members independent, 1 to look at
Part VIII · Statement of revenue $8,418,038 across 13 lines filed
Part IX · Statement of functional expenses $6,487,599 across 30 lines filed
Part X · Balance sheet $18,654,748 assets, 21 lines filed
Part XI · Reconciliation of net assets $11,532,357 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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