Scleroderma Research Foundation EIN 68-0087234

Scleroderma Research Foundation FY2020 filing

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Fund research and raise awareness to find treatments and a cure for scleroderma. For fiscal year 2020 it reported $3.9M in revenue, $3.0M in expenses, and $9.4M in net assets.Pt I

Founded
1987
Type
Public charity (501(c)(3)) · Medical Research
Location
San Francisco, CA
Website
www.srfcure.org
Filings
6 on file (2020–2020)
Revenue
$3.9MFY2020
Expenses
$3.0M
Net assets
$9.4M
People
12
Filings
6
Updates
0
More identity details & actions ⌄
EIN  68-0087234 Public charity (501(c)(3)) San Francisco, CA Founded 1987
Form 990 (PDF)
You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2025) →
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Figures match the IRS filing checked 7/21/26 · see original: IRS
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Size
$10–100M
What they do
Fund research and raise awareness to find treatments and a cure for scleroderma.
Leadership
Joanne Gold · Executive Dir. · $161K
Money in and out
$3.9M revenue, $3.0M expenses
Bottom line
80% program efficiency
Where the money goes · FY2020
Total revenue
$3.9M
Pt VIII · Ln 12
Total expenses
$3.0M
Pt IX · Ln 25
Net assets
$9.4M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $973K
Where spending went · Part IX cols B–D
Program services $0.80 Management & general $0.12 Fundraising $0.08
Program efficiency
80%
of spending reaches programs
Operating runway
45.1mo
months of highly liquid reserves at operating expense rate
Surplus margin
+25%
revenue over expenses, this year

Summary of the Filing

Part I · fiscal year 2020 · Form 990
Revenue
$3.9M
FY2020
Expenses
$3.0M
FY2020
Total assets
$9.6M
FY2020
Total liabilities
$201K
FY2020
Total revenue
$3.9M
Pt VIII · Ln 12
Total expenses
$3.0M
Pt IX · Ln 25
Net assets
$9.4M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$973K
Total assetsPt X · Ln 16$9.6M
Program-expense ratioPt IX · col B80%
Voting members of governing bodyPt I · Ln 311
Independent voting membersPt I · Ln 410
Mission & Programs · Part III

Where the work happens

2 program services account for $2.4M of program spending, described in the organization's own filed words · FY2020.
01

Research

The Scleroderma Research Foundation's Research Program is governed by the Board of Directors and facilitated by a volunteer Scientific Advisory Board comprised of highly regarded scientists who are leaders in their field of expertise.

$1.8Mprogram expense
02

Public Awareness

Lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. Therefore, the SRF works to raise awareness by putting scleroderma in the public eye. We provide the community with the most up-to-date and relevant news and information about complications, treatments, and related research free of charge through…

$539Kprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CScleroderma Research Foundation
EINHdr · item D68-0087234
Principal addressHdr · item CSan Francisco, CA
WebsiteHdr · item Jwww.srfcure.org
Year of formationHdr · item L1987
State of legal domicileHdr · item MCA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFMedical Research (H46Z)
Ruling yearIRS BMFMar 1987

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a11
Independent voting membersPt VI · Ln 1b10
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Executive Dir.
$160,792Pt VII · Sec A
Executive Dir.
$74,712Pt VII · Sec A
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Gregory Gordon’s $526K as Chief Medical Officer is at the 64th percentile of top reported officer pay among 127 $10–100M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2025FY2024FY2023FY2022FY2021FY2020
Gregory Gordon$526,440$416,000
Joanne Gold$220,205$215,900$203,286$193,724$193,236$160,792
Gloria Blecha$179,263$171,600$129,705$104,973
Kate Ceredona$152,258$152,315
Hannah Young$130,689$130,007$110,376
Neha Pamboo$118,965
Anoushka Donnelley$112,854
Cori Traub$108,558

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Statement of Revenue

Part VIII
Contributions & grants$3.7M · 95%
Investment income$347K · 9%
Contributions & grants95%$3.7M
Investment income9%$347K
Total revenueLn 12$3.9M

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.80 Management & general $0.12 Fundraising $0.08
Program services80%$2.4M
Management & general12%$341K
Fundraising8%$248K
Total functional expensesLn 25$3.0M

Balance Sheet

Part X · end of year
CashLn 1$1.1M
Total assetsLn 16$9.6M
Total liabilitiesLn 26$201K
Total net assetsLn 32$9.4M
Months of cash on handcomputed4.3

Financial Metrics

Form 990 · FY2020 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $9.4M · Operating expenses (Pt IX) $3.0M · Less non-cash grants $452K · Cash operating expenses/yr $2.5M
45.1 months
Where the money goes
Program services
Program services $2.4M · Total expenses $3.0M
80%
Management & General
Management & general $341K · Total expenses $3.0M
12%
Fundraising
Fundraising $248K · Total expenses $3.0M
8%
Cost to raise $1
Fundraising expense $248K · Solicited contributions $3.7M
$0.07 to raise $1
Where the money comes from
Contribution dependence
Contributions & grants $3.7M · Total revenue $3.9M
95%
Government reliance
Government grants — · Total revenue $3.9M
Earned-income share
Program service revenue $0 · Total revenue $3.9M
0%
Investment reliance
Investment income $347K · Total revenue $3.9M
+9%
Program self-sufficiency
Program service revenue $0 · Total expenses $3.0M
0%
Growth & trend
Revenue growth (YoY)
This year $3.9M · Prior year —
No prior year on file
Net-asset trend (YoY)
End of year $9.4M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $3.9M · Expenses $3.0M
+25%
Liabilities-to-Assets
Total liabilities — · Total assets $9.6M
Net-asset ratio
Net assets $9.4M · Total assets $9.6M
98%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $8.4M · Other securities (Pt X, ln 12) $0 · Total assets (Pt X, ln 16) $9.6M
87%
People & payroll
Highest Reported Total Compensation
Individual Joanne Gold · Reported title Executive Dir. · Highest reported compensation $161K · Total expenses $3.0M
5%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $527K · Total expenses $3.0M
18%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 80%
Overhead ratio 12%
Fundraising cost ratio 7%
Investment management fee ratio 0.3%
Legal fee ratio 0.7%
Accounting fee ratio 5%
Fundraising fee ratio 0%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 2 funders$5K
Grants paid · 124 grants · $15.9M · 2020–2025
Regents of Univ of Ca-UcsfCA · FY2025$466,635
University of UtahUT · FY2025$365,618
Univ of Tx Health Science CtrFY2025$314,255
Johns Hopkins UniversityMD · FY2025$212,416
University of PittsburghPA · FY2025$176,500
NYU Grossman School MedicineFY2025$150,000
Childrens Hospital CorporationMA · FY2025$147,103
Trustees of Dartmouth CollegeNH · FY2025$132,338
Yale UniversityCT · FY2025$125,000
Regents Univ of CaliforniaCA · FY2025$114,950
Duke UniversityNC · FY2025$103,057
Northwestern UniversityIL · FY2025$78,587
See all 124 grants →

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2025 (Latest)$13.1M revenue · ⤓ 990 PDF
FY2024$12.2M revenue · ⤓ 990 PDF
FY2023$8.4M revenue · ⤓ 990 PDF
FY2022$5.9M revenue · ⤓ 990 PDF
FY2021$3.8M revenue · ⤓ 990 PDF
FY2020$3.9M revenue · viewing · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2020IRS
Classification, formation year, addressIRS Business Master File
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