Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2000.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
65 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
11 people listed on the 990; $85K paid to officers and key staff.
Michelle Larscheid’s $100K as Executive Director is at the 79th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Michelle Larscheid | $100,000 | $94,038 | — | — | — | — |
| Casey Gorman | — | — | $60,837 | $82,770 | $85,481 | $79,816 |
| Michelle Larscheid Com Mgr 012023-9 | — | — | $69,714 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports families, funds research, and partners with professionals to advance understanding of Smith-Magenis Syndrome.
Questions for Prisms INC
Your first name shows with your question. Prisms INC answers here, for everyone.
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In 2021, PRISMS held its first ever Virtual Summit. This summit aimed to provide educational content and a chance for SMS community to connect with professionals with relevant experience in SMS.
In 2021, PRISMS provided daily telephone support, periodic informational emails/newsletters, webinars, and informational packets for caregivers of persons with SMS and medical professionals. PRISMS offered free membership for anyone interested in learning more about SMS and gaining access to all of PRISMS programs and services.
In 2021, PRISMS promoted social media and awareness campaigns, including PRISMS birthday, SMS Awareness Day, and involvement in Rare Disease Day campaigns. PRISMS released informational brochures and bookmarks to increase understanding of the rare condition in communities around the world.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $328K | $335K |
| InvestmentsLn 11–13 | $468K | $477K |
| Total assetsLn 16 | $830K | $858K |
| LiabilitiesLn 26 | $21K | $28K |
| Net assetsLn 32 | $809K | $830K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $39K | $39K | ||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $82K | $62K | $16K | $4K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $29 | $22 | $6 | $1 |
| Payroll taxesLn 10 | $7K | $6K | $1K | $371 |
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $15K | $1K | $13K | $94 |
| Lobbying feesLn 11d | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $36K | $16K | $20K | $445 |
| Advertising and promotionLn 12 | $0 | |||
| Office expensesLn 13 | $1K | $1K | ||
| Information technologyLn 14 | $2K | $1K | $660 | $704 |
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $0 | |||
| TravelLn 17 | $0 | |||
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $27K | $27K | ||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $4K | $4K | ||
| Other expenses (24a–d)Ln 24 | $17K | $7K | $8K | $2K |
| All other expensesLn 24e | $12K | $422 | $2K | $10K |
| Total functional expensesLn 25 | $244K | $160K | $67K | $17K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $439K | $345K | $94K | $703K | 990 PDF |
| FY2024 | $474K | $550K | −$76K | $598K | 990 PDF |
| FY2023 | $421K | $275K | $146K | $670K | 990 PDF |
| FY2022 | $359K | $605K | −$246K | $509K | 990 PDF |
| FY2021 Viewing | $266K | $244K | $22K | $830K | 990 PDF |
| FY2020 | $484K | $223K | $261K | $809K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $265,985 revenue, 12 lines filed
Part VI · Governance 10 of 10 board members independent, no flags
Part VIII · Statement of revenue $265,985 across 9 lines filed
Part IX · Statement of functional expenses $244,302 across 30 lines filed
Part X · Balance sheet $858,213 assets, 15 lines filed
Part XI · Reconciliation of net assets $829,925 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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