Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2014.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
82 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
39 people listed on the 990; $144K paid to officers and key staff.
Melissa Shutwell’s $80K as Executive Director is at the 65th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2024 | FY2024 | FY2023 | FY2022 | FY2020 |
|---|---|---|---|---|---|
| Melissa Shutwell | $80,250 | $80,250 | — | — | — |
| Jennifer Jacob | — | — | $52,115 | $50,000 | $50,000 |
| Christy Cooper | — | — | — | — | $40,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Down Syndrome Diagnosis Network executive salaries →On this list? Claim this org
Something off? Claim to add context
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Connects and supports families with a Down syndrome diagnosis, providing accurate information.
Questions for Down Syndrome Diagnosis Network
Your first name shows with your question. Down Syndrome Diagnosis Network answers here, for everyone.
Know this org? Add your story
Connect
DSDN hosts annual retreats for moms and dads (separately) of children with down syndrome to allow them to connect, be inspired, recharge, and give back to the local community through volunteer projects.
Inform
DSDN board members and volunteers attend down syndrome related conferences to share information about DSDN'S services to families, local and national down syndrome organizations, and medical professionals. DSDN also creates and provides brochures on delivering down syndrome diagnosis to local organizations and medical professionals.
Support
DSDN provides welcome gifts to new parents, memorial gifts, and care packages to parents with a child in the hospital for an extended period. Also as part of support services, DSDN offers scholarships to attend the national down syndrome congress convention, the national down syndrome society's buddy walk in washington, and the DSDN…
Connect
DSDN hosts annual retreats for moms and dads (separately) of children with down syndrome to allow them to connect, be inspired, recharge, and give back to the local community through volunteer projects.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 | $562K | $619K | −$57K | $608K | 990 PDF |
| FY2023 | $636K | $576K | $60K | $688K | 990 PDF |
| FY2022 | $500K | $506K | −$6K | $628K | 990 PDF |
| FY2021 | Not on file | ||||
| FY2020 Viewing | $409K | $256K | $153K | $634K | 990 PDF |
More to add? Claim this org
Schedules filed Part IV
See the full FY2020 990 (1 part)
Part VI · Governance 11 of 11 board members independent, 3 to look at
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
Similar organizations you could support · Compare with another nonprofit
Names, privacy, and removal requests More
The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.
Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.
We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.
Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.
If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.
Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.
If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.
Your org? Add context
Made it to the end? Claim this org