Promote awareness & education of Down Syndrome

501(c)(3) charity; gifts are tax-deductible.
53¢ of each $1 spent went to programs.
Run by 300 volunteers and 3 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 5
filings with a surplus
Average surplus $32K a year · 15% of revenue · last 5 filings
Worth a look: a surplus in 3 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
53%
of spending
Worth a look: 53% of spending went to programs; under 65%.
Pt IX · Ln 25 · col B
7 mo
of spending, in cash
Plus $156K in investments, Pt X · Ln 11–13
Looks good: 6.9 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $10K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$18K
6% of total assets
Looks good: liabilities are 6% of assets; 50% or less.
Pt X · Ln 26
Independent board members
50
of 50 voting members
Looks good: 50 of 50 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$264K
+53% vs prior year
Spent
$264K
To programs
53%
Net assets
$290K
By yearFY2020–FY2024
Revenue
$264K
FY2024▲ +53%
Tap a bar for its year
Revenue by fiscal year
FY2020$220K
FY2021$248K
FY2022$163K
FY2023$173K
FY2024$264K
Expenses
$264K
FY2024▲ +25%
Tap a bar for its year
Expenses by fiscal year
FY2020$109K
FY2021$151K
FY2022$171K
FY2023$210K
FY2024$264K
Net assets
$290K
FY2024+0.02%
Tap a bar for its year
Net assets by fiscal year
FY2020$239K
FY2021$336K
FY2022$328K
FY2023$290K
FY2024$290K

From the FY2024 Form 990 · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2005.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

53 cents of each dollar spent went to programs.

Program services 53% · $139K Management & general 36% · $96K Fundraising 11% · $29K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

21 people listed on the 990.

Part VII, Section A · reportable compensation
Executive Di
$0Pt VII · Sec A
President
$0Pt VII · Sec A
Vice Preside
$0Pt VII · Sec A
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A

Jay Callahan’s $76K as Executive Di is at the 60th percentile of top reported officer pay among 902 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2023FY2022FY2021
Jay Callahan$76,419$62,195$66,344

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Piedmont Down Syndrome Support Network executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Educates and raises awareness about Down syndrome.

Questions for Piedmont Down Syndrome Support Network

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Provided by the organization

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3 programs · $45K · in their own filed words · FY2024
01

No limits ii dance club is for adults with intellectual, developmental, AND/OR physical "different-abilities" (18 years or older). Dances are held quarterly. Admission is free. Guests enjoy an evening filled with lots of good food, music, dancing, bingo, fun, and more.

$23Kprogram expense
02

Family Gatherings and Education Programs

PDSSN holds family support meetings quarterly. These include educational sessions from leading geneticists, ear, nose and throat doctors, and other experts with information educational sessions from leading geneticists, ear, nose and throat doctors, and other experts with information

$22Kprogram expense
03

Next Chapter Book Club (ncbc)

The next chapter book club is committed to promoting literacy and social connection experiences for adolescents and adults with intellectual disabilities that encourage friendship and lifelong learning within a community-based setting.

$462program expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Total grants receivedfrom 1 funder$10K

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$264K
Ln 12
Other incomeLn 4–11$196K
Gifts and grantsLn 1h$52K
Investment incomeLn 3$16K
Money outPt IX
$264K
Ln 25
Programscol B$139K
Managementcol C$96K
Fundraisingcol D$29K
Owns and owesPt X
$290K
net assets · Ln 32
Cash and savingsLn 1–2$152K
Total assetsLn 16$308K
LiabilitiesLn 26$18K
PeoplePt VI, VII
21
listed · VII A
PaidVII A0
Voting boardVI 1a50
IndependentVI 1b50
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$52K
Noncash giftsLn 1g$2K
Fundraising eventsLn 1c$13K
Investment incomeLn 3$16K
Other incomeLn 4–11$196K
Gains on assetsLn 7$4K
Total revenueLn 12$264K
Assets in detailPt X, end of year
CashLn 1$2K
SavingsLn 2$149K
Cash and savings togetherLn 1–2$152K
InvestmentsLn 11–13$156K
Total assetsLn 16$308K
LiabilitiesLn 26$18K
Net assetsLn 32$290K
OperationsPt I, VI
EmployeesI 53
VolunteersI 6300
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$166K$152K
InvestmentsLn 11–13$150K$156K
Total assetsLn 16$316K$308K
LiabilitiesLn 26$26K$18K
Net assetsLn 32$290K$290K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Other salaries and wagesLn 7$138K$32K$77K$28K
Other employee benefitsLn 9$11K$11K
Payroll taxesLn 10$8K$2K$5K$1K
Accounting feesLn 11c$4K$4K
Investment management feesLn 11f$2K$2K
Advertising and promotionLn 12$703$703
Office expensesLn 13$4K$4K
Information technologyLn 14$3K$3K
OccupancyLn 16$22K$22K
TravelLn 17$34$34
Conferences, conventions and meetingsLn 19$7K$7K
InsuranceLn 23$5K$5K
Other expenses (24a–d)Ln 24$50K$50K
All other expensesLn 24e$10K$9K$1K
Total functional expensesLn 25$264K$139K$96K$29K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $264K$264K$65$290K 990 PDF
FY2023 $173K$210K−$37K$290K 990 PDF
FY2022 $163K$171K−$8K$328K 990 PDF
FY2021 $248K$151K$97K$336K 990 PDF
FY2020 $220K$109K$111K$239K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $263,763 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $52,121$51,557
I-9 Program service revenue$0
I-10 Investment incomePrior year $3,256$16,408
I-11 Other revenuePrior year $117,477$195,798
I-12 Total revenuePrior year $172,854$263,763
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $123,220$156,251
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $86,950$107,447
I-18 Total expensesPrior year $210,170$263,698
I-19 Revenue less expensesPrior year −$37,316$65
Part VI · Governance 50 of 50 board members independent, 4 to look at
VI-1a Voting members of the governing body50
VI-1b Independent voting members50
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $263,763 across 8 lines filed
VIII-1c Fundraising events$12,568
VIII-1f All other contributions, gifts and grants$38,989
VIII-1g Noncash contributions (included above)$2,000
VIII-1h Total contributions, gifts and grants$51,557
VIII-3 Investment incomeExcluded from tax $12,859$12,859
VIII-7 Net gain or loss on sales of assetsRelated to mission $1,512 · Excluded from tax $2,037$3,549
VIII-8 Net income from fundraising events$195,798
VIII-12 Total revenueRelated to mission $1,512 · Excluded from tax $14,896$263,763
Part IX · Statement of functional expenses $263,698 across 14 lines filed
IX-7 Other salaries and wagesPrograms $32,486 · Management $77,430 · Fundraising $27,954$137,870
IX-9 Other employee benefitsPrograms $10,870$10,870
IX-10 Payroll taxesPrograms $1,502 · Management $4,808 · Fundraising $1,201$7,511
IX-11c Accounting feesManagement $3,600$3,600
IX-11f Investment management feesPrograms $1,694$1,694
IX-12 Advertising and promotionPrograms $703$703
IX-13 Office expensesManagement $3,851$3,851
IX-14 Information technologyPrograms $2,976$2,976
IX-16 OccupancyPrograms $22,153$22,153
IX-17 TravelPrograms $34$34
IX-19 Conferences, conventions and meetingsPrograms $7,197$7,197
IX-23 InsuranceManagement $4,846$4,846
IX-24 Other expenses (24a–d)Programs $50,380$50,380
IX-24e All other expensesPrograms $8,753 · Management $1,260$10,013
IX-25 Total functional expensesPrograms $138,748 · Management $95,795 · Fundraising $29,155$263,698
Part X · Balance sheet $308,070 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $1,372$2,386
X-2 Savings and temporary cash investmentsStart of year $164,495$149,277
X-11 Publicly traded securitiesStart of year $150,221$156,407
X-16 Total assetsStart of year $316,088$308,070
X-17 Accounts payable and accrued expensesStart of year $11$69
X-19 Deferred revenueStart of year $16,224$15,089
X-25 Other liabilitiesStart of year $9,495$2,489
X-26 Total liabilitiesStart of year $25,730$17,647
X-27 Net assets without donor restrictionsStart of year $290,358$290,423
X-32 Total net assets or fund balancesStart of year $290,358$290,423
X-33 Total liabilities and net assetsStart of year $316,088$308,070
Part XI · Reconciliation of net assets $290,423 net assets at year end
XI-1 Total revenue$263,763
XI-2 Total expenses$263,698
XI-3 Revenue less expenses$65
XI-4 Net assets at start of year$290,358
XI-10 Net assets at end of year$290,423

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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