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Cadasil Association

Tax-deductible

Edina, MN501(c)(3)Since 2012Diseases & Disorders EIN 45-5242623Revenue $257K in FY2025Latest return filed May 14, 2026

On file with the IRScurecadasil.orgEdina, MNTax-exempt since Sep 2012Publicly supported charity — 170(b)(1)(A)(vi)

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The mission of curecadasil is to raise awareness of Cadasil, ensuring IT will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping all touched by Cadasil,improving education available on Cadasil and promote and support research for this rare disease

501(c)(3) charity; gifts are tax-deductible.
96¢ of each $1 spent went to programs.
Run by 30 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
The IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
The latest return is for FY2025, 1 tax year back.
IRS e-file · Filing history
Surplus or deficit
2 of 4
filings with a surplus
Average surplus $70K a year · 39% of revenue · last 4 filings
A surplus in 2 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Spent on programs
96%
of spending
96% of spending went to programs.
Pt IX · Ln 25 · col B
Cash reserves
44.0 mo
of spending, in cash
44.0 months of spending in cash.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $2K
1 funder names it on their filings.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Liabilities are 0% of assets.
Pt X · Ln 26
Independent board members
6
of 6 voting members
6 of 6 voting members are independent.
Pt VI · Ln 1a–1b
In line with peersDifferent from peersFar from peersNo peer rangeNo data yetTap a box for the reason.
Revenue
$257K
+71% vs prior year
Spent
$107K
To programs
96%
Net assets
$394K
By yearFY2021–FY2025
Revenue
$257K
FY2025▲ +71%
Tap a bar for its year
Revenue by fiscal year
FY2021$36K
FY2022$257K
FY2023$50K
FY2024$150K
FY2025$257K
Expenses
$107K
FY2025▼ -39%
Tap a bar for its year
Expenses by fiscal year
FY2021Not on file
FY2022$29K
FY2023$118K
FY2024$177K
FY2025$107K
Net assets
$394K
FY2025▲ +61%
Tap a bar for its year
Net assets by fiscal year
FY2021$13K
FY2022$340K
FY2023$271K
FY2024$244K
FY2025$394K

From the FY2025 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2012.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

96 cents of each dollar spent went to programs.

Program services 96% · $103K Management & general 4% · $4K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

6 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
Cheryl Gibson
Treasurer
$0Pt VII · Sec A
Jane Gunther
Past Pres/SC
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
See Cadasil Association executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Raises awareness and supports research for the rare CADASIL disease to improve diagnosis and patient care.

Questions for Cadasil Association

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Your first name shows with your question. Cadasil Association answers here, for everyone.

1 program · $103K · in their own filed words · FY2025
01

Cadasil is an hereditary small vessel disease caused by mutations in the NOTCH3 gene. These mutations lead to progressive changes in the small brain arteries and reduced blood flow to the brain. We aim to share these cadasil vessel-on-chip with the international cadasil research community to promote cadasil research.

$103Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Braun Family FoundationFY2025$2K
Total grants receivedfrom 1 funder$2K
Grants paid · 3 grants · $35K · 2022–2024
Trustees of the University of PennsylvaniaPA · FY2024$15,000
Trustees of the University of PennsylvaniaPA · FY2023$10,000
Trustees of the University of PennsylvaniaPA · FY2022$10,000

By the numbers

The FY2025 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$257K
Ln 12
Gifts and grantsLn 1h$257K
Investment incomeLn 3$4
Money outPt IX
$107K
Ln 25
Programscol B$103K
Managementcol C$4K
Owns and owesPt X
$394K
net assets · Ln 32
Cash and savingsLn 1–2$394K
Total assetsLn 16$394K
LiabilitiesLn 26$0
PeoplePt VI, VII
6
listed · VII A
PaidVII A0
Voting boardVI 1a6
IndependentVI 1b6
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$257K
Investment incomeLn 3$4
Total revenueLn 12$257K
Assets in detailPt X, end of year
CashLn 1$354K
SavingsLn 2$40K
Cash and savings togetherLn 1–2$394K
Total assetsLn 16$394K
LiabilitiesLn 26$0
Net assetsLn 32$394K
OperationsPt I, VI
EmployeesI 50
VolunteersI 630
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$244K$394K
Total assetsLn 16$244K$394K
LiabilitiesLn 26$0$0
Net assetsLn 32$244K$394K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Accounting feesLn 11c$3K$3K
Other fees for servicesLn 11g$94K$94K
Office expensesLn 13$3K$3K$480
Information technologyLn 14$3K$3K$495
TravelLn 17$1K$1K
InsuranceLn 23$1K$1K$217
Other expenses (24a–d)Ln 24$2K$2K$272
Total functional expensesLn 25$107K$103K$4K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest ViewingFiled with the IRS May 14, 2026 $257K$107K$150K$394K 990 PDF
FY2024Filed with the IRS May 14, 2025 $150K$177K−$27K$244K 990 PDF
FY2023Filed with the IRS Apr 30, 2024 $50K$118K−$69K$271K 990 PDF
FY2022Filed with the IRS Mar 15, 2023 $257K$29K$228K$340K 990 PDF
FY2021Filed with the IRS May 14, 2022 $36K$13K 990 PDF

Schedules filed Part IV

A · Public support B · Donors O · Explanations
See the full FY2025 990
Part I · Summary $257,055 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $150,102$257,051
I-9 Program service revenue$0
I-10 Investment incomePrior year $4$4
I-11 Other revenue$0
I-12 Total revenuePrior year $150,106$257,055
I-13 Grants and similar amounts paidPrior year $15,000$0
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $162,019$107,475
I-18 Total expensesPrior year $177,019$107,475
I-19 Revenue less expensesPrior year −$26,913$149,580
Part VI · Governance 6 of 6 board members independent, 3 to look at
VI-1a Voting members of the governing body6
VI-1b Independent voting members6
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $257,055 across 4 lines filed
VIII-1f All other contributions, gifts and grants$257,051
VIII-1h Total contributions, gifts and grants$257,051
VIII-3 Investment incomeExcluded from tax $4$4
VIII-12 Total revenueExcluded from tax $4$257,055
Part IX · Statement of functional expenses $107,475 across 7 lines filed
IX-11c Accounting feesManagement $2,525$2,525
IX-11g Other fees for servicesPrograms $93,740$93,740
IX-13 Office expensesPrograms $2,721 · Management $480$3,201
IX-14 Information technologyPrograms $2,805 · Management $495$3,300
IX-17 TravelPrograms $1,454$1,454
IX-23 InsurancePrograms $1,228 · Management $217$1,445
IX-24 Other expenses (24a–d)Programs $1,538 · Management $272$1,810
IX-25 Total functional expensesPrograms $103,486 · Management $3,989 · Fundraising $0$107,475
Part X · Balance sheet $394,057 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $204,351$353,927
X-2 Savings and temporary cash investmentsStart of year $40,126$40,130
X-16 Total assetsStart of year $244,477$394,057
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $136,477$224,650
X-28 Net assets with donor restrictionsStart of year $108,000$169,407
X-32 Total net assets or fund balancesStart of year $244,477$394,057
X-33 Total liabilities and net assetsStart of year $244,477$394,057
Part XI · Reconciliation of net assets $394,057 net assets at year end
XI-1 Total revenue$257,055
XI-2 Total expenses$107,475
XI-3 Revenue less expenses$149,580
XI-4 Net assets at start of year$244,477
XI-10 Net assets at end of year$394,057

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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