Status and standing
Is it real, and can you give to it?
Where the money goes
What each dollar paid for.
Statement of Functional Expenses
Financial health
Is it on solid ground?
Summary of the Filing
| FY2021 | Not on file |
|---|---|
| FY2022 | $340K |
| FY2023 | $271K |
| FY2024 | $244K |
| FY2025 | $394K |
| FY2021 | Not on file |
|---|---|
| FY2022 | $0 |
| FY2023 | $0 |
| FY2024 | $0 |
| FY2025 | $0 |
Balance Sheet
Statement of Revenue
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 66% | — | — |
| Overhead ratio | 28% | — | — |
| Fundraising cost ratio | 0.7% | — | — |
| Revenue growth | 614% | — | — |
| Investment management fee ratio | 0% | — | — |
| Legal fee ratio | 0% | — | — |
| Accounting fee ratio | 4% | — | — |
| Fundraising fee ratio | 0% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Leadership and pay
Who runs it, and what are they paid?
Officers, Directors & Key Employees
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Governance & Policies
- 5Voting board membersPt VI · Ln 1a
- 5Independent board membersPt VI · Ln 1b
- Conflict-of-interest policyPt VI · Ln 12aYes
- Whistleblower policyPt VI · Ln 13No
- Document retention policyPt VI · Ln 14No
- Top official’s pay independently reviewedPt VI · Ln 15aNo
- Family or business ties among leadersPt VI · Ln 2No
Mission and programs
What it does.
Raises awareness and supports research for the rare CADASIL disease to improve diagnosis and patient care.
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Where the work happens
CADASIL is an hereditary small vessel disease caused by mutations in the Notch3 gene. These mutations lead to progressive changes in the small brain arteries and reduced blood flow to the brain. We aim to share these CADASIL vessel-on-chip with the international CADASIL research community to promote CADASIL research.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
Filing history
Every return on file.
| Year | Revenue | Expenses | Change | Filing |
|---|---|---|---|---|
| FY2025 Latest | $257K | $107K | +71% | 990 PDF |
| FY2024 | $150K | $177K | +202% | 990 PDF |
| FY2023 | $50K | $118K | -81% | 990 PDF |
| FY2022 Viewing | $257K | $29K | +614% | 990 PDF |
| FY2021 | $36K | — | 990 PDF |
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Schedules filed Part IV
Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.
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Sources
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