Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2026.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
76 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
15 people listed on the 990; $907K paid to officers and key staff.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Hampus Hillerstrom | $296,406 | $293,219 | $286,161 | $318,264 | $278,723 | $313,978 |
| Lois Kelly | $235,746 | $168,170 | — | — | — | — |
| Angela Britton | — | — | $208,000 | $213,833 | — | — |
| Dr James Hendrix | — | — | — | $211,409 | $181,202 | $170,105 |
| Michelle Petronio | $172,068 | $164,874 | $162,311 | $163,933 | $156,294 | $128,032 |
| Richard a Fisher | — | $129,600 | — | — | — | — |
| Katherine O'Neill | $108,466 | $103,128 | $94,103 | — | — | — |
| Angella Britton | — | — | — | — | $105,250 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Lumind Idsc Foundation executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Accelerates research and empowers families to improve health and independence for people with Down syndrome.
Questions for Lumind Idsc Foundation
Your first name shows with your question. Lumind Idsc Foundation answers here, for everyone.
Community research program for research awareness and participation, participation and empowering families with resources, medical information and research participation opportunities. Includes cost related to idscs my down syndrome community platform (mydsc).
DS-STN support medical research that will result in treatement to significantly improve health and independence in persons with down syndrome.
Research and medical grants program lumind idsc research and medical grants program supported 10 projects this year covering projects in COVID19,GENE theraphy, independence, medical care and regulatory.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $915K | $944K |
| Land, buildings, equipmentLn 10c | $216K | $421K |
| Total assetsLn 16 | $4.5M | $2.2M |
| LiabilitiesLn 26 | $1.7M | $720K |
| Net assetsLn 32 | $2.7M | $1.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $447K | $447K | ||
| Pay of current officers, directors and key staffLn 5 | $907K | $644K | $59K | $204K |
| Other salaries and wagesLn 7 | $912K | $647K | $59K | $206K |
| Pension plan contributionsLn 8 | $46K | $32K | $5K | $9K |
| Other employee benefitsLn 9 | $174K | $122K | $17K | $35K |
| Payroll taxesLn 10 | $125K | $88K | $13K | $25K |
| Legal feesLn 11b | $31K | $31K | ||
| Accounting feesLn 11c | $144K | $144K | ||
| Other fees for servicesLn 11g | $144K | $6K | $103K | $35K |
| Advertising and promotionLn 12 | $9K | $7K | $307 | $1K |
| Office expensesLn 13 | $39K | $27K | $4K | $8K |
| Information technologyLn 14 | $138K | $99K | $13K | $26K |
| OccupancyLn 16 | $55K | $38K | $5K | $11K |
| TravelLn 17 | $73K | $54K | $6K | $13K |
| Conferences, conventions and meetingsLn 19 | $17K | $17K | $11 | $23 |
| InterestLn 20 | $4K | $4K | ||
| Depreciation, depletion and amortizationLn 22 | $67K | $47K | $7K | $13K |
| InsuranceLn 23 | $37K | $37K | ||
| Other expenses (24a–d)Ln 24 | $1.4M | $1.3M | $16K | $18K |
| Total functional expensesLn 25 | $4.7M | $3.6M | $524K | $604K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2026 LatestFiled with the IRS Apr 10, 2026 | $0 | $541 | −$541 | $0 | 990 PDF |
| FY2025Filed with the IRS Mar 16, 2026 | $2.8M | $3.3M | −$527K | $147K | 990 PDF |
| FY2024Filed with the IRS Jul 31, 2025 | $4.0M | $4.0M | $48K | $674K | 990 PDF |
| FY2023Filed with the IRS Jul 24, 2024 | $3.2M | $4.0M | −$820K | $626K | 990 PDF |
| FY2022 ViewingFiled with the IRS Aug 4, 2023 | $2.7M | $4.7M | −$2.0M | $1.4M | 990 PDF |
| FY2021Filed with the IRS Feb 14, 2022 | $5.3M | $3.4M | $1.9M | $2.7M | 990 PDF |
| FY2020Filed with the IRS Aug 16, 2021 | $1.9M | $2.6M | −$707K | $841K | 990 PDF |
Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $2,742,364 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, no flags
Part VIII · Statement of revenue $2,742,364 across 5 lines filed
Part IX · Statement of functional expenses $4,726,857 across 19 lines filed
Part X · Balance sheet $2,166,575 assets, 15 lines filed
Part XI · Reconciliation of net assets $1,446,468 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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