Lumind Idsc Foundation EIN 37-1483975 Form 990 (PDF) Claim this org

Lumind Idsc Foundation

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Accelerates research and empowers families to improve health and independence for people with Down syndrome. For fiscal year 2026 it reported $0 in revenue, $541 in expenses.Pt I

Type
Unknown exempt organization · Nonprofit
Location
Burlington, MA
Website
lumindrds.org
Filings
7 on file (2020–2026)
Revenue
$0FY2026
Expenses
$541
Net assets
$0
People
15
Filings
7
Updates
0
More identity details & actions ⌄
EIN  37-1483975 Unknown exempt organization Burlington, MA
Form 990 (PDF)
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Size
<$100K
What they do
Accelerates research and empowers families to improve health and independence for people with Down syndrome.
Leadership
Anthony Providenti · Board Chair
Money in and out
$0 revenue, $541 expenses
Bottom line
0% program spending
Reported financial activity · FY2026
Total revenue
$0
Pt VIII · Ln 12
Total expenses
$541
Pt IX · Ln 25
Net assets
$0
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$541
Where spending went · Part IX cols B–D
Management & general $1.00
Program spending
0%
of expenses reach programs▼ -100% vs prior filing year

Summary of the Filing

Part I · fiscal year 2026 · Form 990
Revenue
$0
FY2026▼ -100%
Expenses
$541
FY2026▼ -100%
Total assets
$0
FY2026▼ -100%
Total liabilities
$0
FY2026▼ -100%
Total revenue
$0
Pt VIII · Ln 12
Total expenses
$541
Pt IX · Ln 25
Net assets
$0
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$541
Total assetsPt X · Ln 16$0
Program-expense ratioPt IX · col B0%
Voting members of governing bodyPt I · Ln 311
Independent voting membersPt I · Ln 411

Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CLumind Idsc Foundation
EINHdr · item D37-1483975
Principal addressHdr · item CBurlington, MA
WebsiteHdr · item Jlumindrds.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MMA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFNonprofit
Ruling yearIRS BMFpending

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a11
Independent voting membersPt VI · Ln 1b11
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2No

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation · most recent filed roster (FY2025); the FY2026 filing did not itemize Part VII
$0Pt VII · Sec A
Board Vice Chair
$0Pt VII · Sec A
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2025FY2024FY2023FY2022FY2021FY2020
Hampus Hillerstrom$286,161$318,264$278,723$313,978
Hampus Hillerstrom$296,406$293,219
Lois Kelly$235,746$168,170
Angela Britton$208,000$213,833
Dr James Hendrix$211,409$181,202$170,105
Michelle Petronio$172,068$164,874
Michelle Petronio$162,311$163,933$156,294$128,032
Richard a Fisher$129,600

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Mission & Programs · Part III

Where the work happens

1 program service, described in the organization's own filed words · FY2025.
01

The life-dsr natural history study, research consensus projects and research policy projects support medical research that will result in treatment to significantly improve health and independence in persons with down syndrome.

Pt IX · col B

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Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Management & general $1.00
Management & general100%$541
Total functional expensesLn 25$541

Balance Sheet

Part X · end of year
CashLn 1
Total assetsLn 16$0
Total liabilitiesLn 26$0
Total net assetsLn 32$0

Financial Metrics

Form 990 · FY2026 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves — · Operating expenses/yr $541
Highly liquid reserves (cash & marketable securities on Pt X) ÷ monthly operating expenses (Pt IX total, less non-cash grants & depreciation when reported).
Where the money goes
Program services
Program services $0 · Total expenses $541
0%
Management & General
Management & general $541 · Total expenses $541
100%
Fundraising
Fundraising $0 · Total expenses $541
0%
Cost to raise $1
Fundraising expense (3-yr avg) $206K · Solicited contributions (3-yr avg) $2.3M
$0.09 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $0 · Total revenue $0
Government reliance
Government grants — · Total revenue $0
Earned-income share
Program service revenue $0 · Total revenue $0
Investment reliance
Investment income $0 · Total revenue $0
Program self-sufficiency
Program service revenue $0 · Total expenses $541
0%
Growth & trend
Revenue growth (YoY)
This year $0 · Prior year $2.8M
-100%
Net-asset trend (YoY)
End of year $0 · Beginning of year $147K
-100%
Balance sheet
Surplus Margin
Revenue $0 · Expenses $541
Liabilities-to-Assets
Total liabilities $0 · Total assets $0
Net-asset ratio
Net assets $0 · Total assets $0
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $0 · Other securities (Pt X, ln 12) $0 · Total assets (Pt X, ln 16) $0
Excludes program-related investments (Pt X, ln 13)
People & payroll
Highest Reported Total Compensation
Individual Anthony Providenti · Reported title Board Chair · Highest reported compensation $0 · Total expenses $541
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) — · Total expenses $541
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Overhead ratio 100%
Revenue growth -100%
Accounting fee ratio 63%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 17 funders →
Grants paid · 17 grants · $3.4M · 2019–2024
Unitemized GrantFY2024$764,779
The Rand CorporationCA · FY2021$170,000
Harvard UnversityFY2021$150,000
Dsc2uFY2021$90,000
Advocate Health ResourcesFY2021$37,000
Down Syndrome Clinical Trials Network Multiple GrantsFY2020$1,290,000
Uconn Health - PinterFY2020$100,000
Dsc2uFY2020$45,000
Advocate Health ResourcesFY2020$30,000
Emory Group ReturnGA · FY2020$27,000
Gdpr IT Governance USA INCFY2020$15,000
Down Syndrome Clinical Trials Network Multiple GrantsFY2019$451,723
Uconn Health - PinterFY2019$65,000
UcsdFY2019$50,000
Stanford UniversityFY2019$18,750
University of ArizonaFY2019$7,500

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2026 (Latest)$0 revenue · viewing · ⤓ 990 PDF
FY2025$2.8M revenue · ⤓ 990 PDF
FY2024$4.0M revenue · ⤓ 990 PDF
FY2023$3.2M revenue · ⤓ 990 PDF
FY2022$2.7M revenue · ⤓ 990 PDF
FY2021$5.3M revenue · ⤓ 990 PDF
FY2020$1.9M revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2026IRS
Classification, formation year, addressIRS Business Master File
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