Lumind Idsc Foundation: FY2020 Nonprofit Profile & Form 990 (EIN 37-1483975)

Name	FY2025	FY2024	FY2023	FY2022	FY2021	FY2020
Hampus Hillerstrom	$296,406	$293,219	$286,161	$318,264	$278,723	$313,978
Lois Kelly	$235,746	$168,170	—	—	—	—
Angela Britton	—	—	$208,000	$213,833	—	—
Dr James Hendrix	—	—	—	$211,409	$181,202	$170,105
Michelle Petronio	$172,068	$164,874	$162,311	$163,933	$156,294	$128,032
Richard a Fisher	—	$129,600	—	—	—	—
Katherine O'Neill	$108,466	$103,128	$94,103	—	—	—
Angella Britton	—	—	—	—	$105,250	—

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Accelerates research and empowers families to improve health and independence for people with Down syndrome.

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3 programs · $1.9M · in their own filed words · FY2019

01

Ds-Ctn

Support medical research that will result in treatments to significantly improve health and independence in persons with down syndrome.

$870Kprogram expense

02

Community engagement program for research awareness and participation participation and empowering families with resources, medical information and research participation opportunities. Includes costs related to lumind idsc's my down syndrome community platform (mydsc).

$559Kprogram expense

03

Research and medical grants program lumind idsc research and medical grants program supported 10 projects this year covering projects in sleep apnea, alzheimer's, COVID19, gene thereapy, independence, medical care and regulatory.

$498Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

Valley Fund Charitable FoundationFY2024$1.0M

Morgan Stanley Global Impact Funding Trust INCFY2024$200K

American Endowment FoundationFY2024$82K

Donor Advised Charitable Giving INCFY2024$77K

Rainwater Charitable FoundationFY2024$50K

American Online Giving Foundation INCFY2024$39K

Fidelity Investments Charitable Gift FundFY2024$35K

Greater HorizonsFY2024$28K

Total grants receivedfrom 17 funders$1.6M

See all 17 funders →

Grants paid · 17 grants · $3.4M · 2019–2024

Unitemized GrantFY2024$764,779

The Rand CorporationCA · FY2021$170,000

Individual RecipientFY2021$150,000

Dsc2uFY2021$90,000

Advocate Health ResourcesFY2021$37,000

Down Syndrome Clinical Trials Network Multiple GrantsFY2020$1,290,000

Uconn Health - PinterFY2020$100,000

Dsc2uFY2020$45,000

Advocate Health ResourcesFY2020$30,000

Emory Group ReturnGA · FY2020$27,000

Gdpr IT Governance USA INCFY2020$15,000

Down Syndrome Clinical Trials Network Multiple GrantsFY2019$451,723

Massachusetts Institute of TechnologyMA · FY2019$110,000

Uconn Health - PinterFY2019$65,000

UcsdFY2019$50,000

Stanford UniversityFY2019$18,750

University of ArizonaFY2019$7,500

By the numbers

The FY2020 990, line by line.

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1The main four

Money inPt VIII

$1.9M

Ln 12

Gifts and grantsLn 1h$1.6M

Other incomeLn 4–11$286K

Money outPt IX

$2.6M

Ln 25

Programscol B$1.9M

Managementcol C$223K

Fundraisingcol D$421K

Owns and owesPt X

$841K

net assets · Ln 32

Cash and savingsLn 1–2$283K

Total assetsLn 16$2.5M

LiabilitiesLn 26$1.6M

PeoplePt VI, VII

18

listed · VII A

PaidVII A3

Voting boardVI 1a15

IndependentVI 1b15

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$1.6M

Other incomeLn 4–11$286K

Total revenueLn 12$1.9M

Assets in detailPt X, end of year

CashLn 1$39K

SavingsLn 2$244K

Cash and savings togetherLn 1–2$283K

Land, buildings, equipmentLn 10c$237K

Other assetsLn 15$31K

Total assetsLn 16$2.5M

LiabilitiesLn 26$1.6M

Net assetsLn 32$841K

OperationsPt I, VI

EmployeesI 512

VolunteersI 60

Fiscal year endsHeaderSeptember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY20	End FY20
Cash and savingsLn 1–2	$1.0M	$283K
Land, buildings, equipmentLn 10c	$16K	$237K
Total assetsLn 16	$3.8M	$2.5M
LiabilitiesLn 26	$2.3M	$1.6M
Net assetsLn 32	$1.5M	$841K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$1.0M	$1.0M
Other salaries and wagesLn 7	$765K	$396K	$106K	$263K
Pension plan contributionsLn 8	$37K	$19K	$5K	$13K
Other employee benefitsLn 9	$84K	$70K	$8K	$7K
Payroll taxesLn 10	$70K	$36K	$10K	$24K
Management feesLn 11a	$273K	$238K	$30K	$5K
Legal feesLn 11b	$10K		$10K
Accounting feesLn 11c	$18K		$18K
Advertising and promotionLn 12	$5K	$5K
Office expensesLn 13	$19K	$13K	$5K	$2K
Information technologyLn 14	$105K	$19K	$14K	$72K
OccupancyLn 16	$53K	$27K	$7K	$18K
TravelLn 17	$42K	$42K
Conferences, conventions and meetingsLn 19	$17K	$17K		$617
InterestLn 20	$14K	$7K	$2K	$5K
Depreciation, depletion and amortizationLn 22	$10K	$10K
InsuranceLn 23	−$6K		−$6K
Other expenses (24a–d)Ln 24	$33K	$6K	$15K	$13K
Total functional expensesLn 25	$2.6M	$1.9M	$223K	$421K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2026 Latest	$0	$541	−$541	$0	990 PDF
FY2025	$2.8M	$3.3M	−$527K	$147K	990 PDF
FY2024	$4.0M	$4.0M	$48K	$674K	990 PDF
FY2023	$3.2M	$4.0M	−$820K	$626K	990 PDF
FY2022	$2.7M	$4.7M	−$2.0M	$1.4M	990 PDF
FY2021	$5.3M	$3.4M	$1.9M	$2.7M	990 PDF
FY2020 Viewing	$1.9M	$2.6M	−$707K	$841K	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants J · Pay O · Explanations

See the full FY2020 990 (6 parts)

Part I · Summary $1,863,831 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $3,589,169$1,577,945

I-9 Program service revenuePrior year $0$0

I-10 Investment incomePrior year $0$0

I-11 Other revenuePrior year $243,358$285,886

I-12 Total revenuePrior year $3,832,527$1,863,831

I-13 Grants and similar amounts paidPrior year $1,439,030$1,020,395

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $1,038,853$956,058

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $1,007,395$594,339

I-18 Total expensesPrior year $3,485,278$2,570,792

I-19 Revenue less expensesPrior year $347,249−$706,961

Part VI · Governance 15 of 15 board members independent, no flags

VI-1a Voting members of the governing body15

VI-1b Independent voting members15

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

VI-15a Process for setting top official's payYes

Part VIII · Statement of revenue $1,863,831 across 5 lines filed

VIII-1f All other contributions, gifts and grants$1,577,945

VIII-1h Total contributions, gifts and grants$1,577,945

VIII-8 Net income from fundraising eventsExcluded from tax $258,541$258,541

VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $27,345$27,345

VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $285,886$1,863,831

Part IX · Statement of functional expenses $2,570,792 across 18 lines filed

IX-1 Grants to domestic organizationsPrograms $1,020,395$1,020,395

IX-7 Other salaries and wagesPrograms $396,096 · Management $105,819 · Fundraising $263,251$765,166

IX-8 Pension plan contributionsPrograms $19,130 · Management $5,111 · Fundraising $12,713$36,954

IX-9 Other employee benefitsPrograms $70,172 · Management $7,737 · Fundraising $6,514$84,423

IX-10 Payroll taxesPrograms $35,985 · Management $9,614 · Fundraising $23,916$69,515

IX-11a Management feesPrograms $238,354 · Management $30,254 · Fundraising $4,592$273,200

IX-11b Legal feesManagement $10,489$10,489

IX-11c Accounting feesManagement $17,540$17,540

IX-12 Advertising and promotionPrograms $5,068$5,068

IX-13 Office expensesPrograms $13,045 · Management $4,530 · Fundraising $1,758$19,333

IX-14 Information technologyPrograms $19,237 · Management $13,723 · Fundraising $72,251$105,211

IX-16 OccupancyPrograms $27,238 · Management $7,277 · Fundraising $18,103$52,618

IX-17 TravelPrograms $42,304$42,304

IX-19 Conferences, conventions and meetingsPrograms $16,559 · Fundraising $617$17,176

IX-20 InterestPrograms $7,161 · Management $1,913 · Fundraising $4,759$13,833

IX-22 Depreciation, depletion and amortizationPrograms $10,426$10,426

IX-23 InsuranceManagement −$6,095−$6,095

IX-24 Other expenses (24a–d)Programs $5,764 · Management $14,630 · Fundraising $12,842$33,236

IX-25 Total functional expensesPrograms $1,926,934 · Management $222,542 · Fundraising $421,316$2,570,792

Part X · Balance sheet $2,462,353 assets, 17 lines filed

X-1 Cash, non-interest-bearingStart of year $137,309$39,147

X-2 Savings and temporary cash investmentsStart of year $890,168$244,092

X-3 Pledges and grants receivableStart of year $2,615,959$1,823,377

X-4 Accounts receivableStart of year $53,809$2,925

X-9 Prepaid expenses and deferred chargesStart of year $90,384$85,191

X-10c Land, buildings and equipment, netStart of year $16,374$236,871

X-15 Other assetsStart of year $13,104$30,750

X-16 Total assetsStart of year $3,828,926$2,462,353

X-17 Accounts payable and accrued expensesStart of year $116,540$218,501

X-18 Grants payableStart of year $1,994,854$1,202,036

X-19 Deferred revenueStart of year $60,995$600

X-25 Other liabilitiesStart of year $108,420$200,060

X-26 Total liabilitiesStart of year $2,280,809$1,621,197

X-27 Net assets without donor restrictionsStart of year $153,167$117,205

X-28 Net assets with donor restrictionsStart of year $1,394,950$723,951

X-32 Total net assets or fund balancesStart of year $1,548,117$841,156

X-33 Total liabilities and net assetsStart of year $3,828,926$2,462,353

Part XI · Reconciliation of net assets $841,156 net assets at year end

XI-1 Total revenue$1,863,831

XI-2 Total expenses$2,570,792

XI-3 Revenue less expenses−$706,961

XI-4 Net assets at start of year$1,548,117

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$841,156

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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Lumind Idsc Foundation FY2020 filing

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Where the money goes

Who runs it and what they're paid

Compensation history total reportable pay by year · 8 named individuals · Part VII