Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2026.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
What each dollar paid for.
Form 990 Part IX, line 25. Every line is in By the numbers.
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Who runs it and what they're paid
15 people listed on the 990.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Hampus Hillerstrom | $296,406 | $293,219 | $286,161 | $318,264 | $278,723 | $313,978 |
| Lois Kelly | $235,746 | $168,170 | — | — | — | — |
| Angela Britton | — | — | $208,000 | $213,833 | — | — |
| Dr James Hendrix | — | — | — | $211,409 | $181,202 | $170,105 |
| Michelle Petronio | $172,068 | $164,874 | $162,311 | $163,933 | $156,294 | $128,032 |
| Richard a Fisher | — | $129,600 | — | — | — | — |
| Katherine O'Neill | $108,466 | $103,128 | $94,103 | — | — | — |
| Angella Britton | — | — | — | — | $105,250 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Accelerates research and empowers families to improve health and independence for people with Down syndrome.
Questions for Lumind Idsc Foundation
Your first name shows with your question. Lumind Idsc Foundation answers here, for everyone.
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The life-dsr natural history study, research consensus projects and research policy projects support medical research that will result in treatment to significantly improve health and independence in persons with down syndrome.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2026 990, line by line.
Download 990
| Line | Start FY26 | End FY26 |
|---|---|---|
| Cash and savingsLn 1–2 | $9K | $0 |
| InvestmentsLn 11–13 | $0 | |
| Land, buildings, equipmentLn 10c | $16K | $0 |
| Total assetsLn 16 | $209K | $0 |
| LiabilitiesLn 26 | $62K | $0 |
| Net assetsLn 32 | $147K | $0 |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Accounting feesLn 11c | $341 | $341 | ||
| Other expenses (24a–d)Ln 24 | $200 | $200 | ||
| Total functional expensesLn 25 | $541 | $0 | $541 | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2026 Latest Viewing | $0 | $541 | −$541 | $0 | 990 PDF |
| FY2025 | $2.8M | $3.3M | −$527K | $147K | 990 PDF |
| FY2024 | $4.0M | $4.0M | $48K | $674K | 990 PDF |
| FY2023 | $3.2M | $4.0M | −$820K | $626K | 990 PDF |
| FY2022 | $2.7M | $4.7M | −$2.0M | $1.4M | 990 PDF |
| FY2021 | $5.3M | $3.4M | $1.9M | $2.7M | 990 PDF |
| FY2020 | $1.9M | $2.6M | −$707K | $841K | 990 PDF |
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Schedules filed Part IV
See the full FY2026 990 (6 parts)
Part I · Summary $0 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, no flags
Part VIII · Statement of revenue $0 across 1 lines filed
Part IX · Statement of functional expenses $541 across 2 lines filed
Part X · Balance sheet $0 assets, 20 lines filed
Part XI · Reconciliation of net assets $0 net assets at year end
Form 990 e-file (XML) FY2026 from the IRS · Classification, formation year and address from the IRS Business Master File
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