Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 1966.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
45 people listed on the 990; $3.1M paid to officers and key staff.
Michael Osso’s $604K as President/Ceo(non-Voting) is at the 90th percentile of top reported officer pay among 249 $10–100M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Michael Osso | $604,255 | $770,337 | $653,016 | $587,399 | $456,915 |
| Alan Moss | $450,466 | — | — | — | — |
| Caren Heller | — | $294,246 | $408,303 | $388,803 | $371,116 |
| Rohit Suri | $304,578 | $312,346 | $298,668 | $272,418 | $257,632 |
| Robert Territo | — | — | $237,843 | $296,257 | $274,772 |
| Michael Elkow | — | $280,491 | $272,254 | $261,144 | $250,494 |
| Allison Coffey | $273,205 | $274,705 | $266,582 | $249,186 | $216,215 |
| Sharon Lungrin | $267,379 | $269,413 | $118,178 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds research to cure inflammatory bowel diseases while providing education, support programs, and resources for patients and families affected by Crohn's and colitis.
Questions for Crohns & Colitis Foundation INC
Your first name shows with your question. Crohns & Colitis Foundation INC answers here, for everyone.
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Since its inception, the crohn's & colitis foundation has provided more than $400 million for research on the treatment and cures of ibd. The foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing…
The crohn's & colitis foundation provides information and education for the estimated 3.1 million ibd patients and their loved ones through a variety of channels at the national and local level. Webcasts, support groups, ibd help center, and printed materials provide accurate and up-to-date information.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $3.3M | $15.7M |
| InvestmentsLn 11–13 | $20.0M | $25.5M |
| Land, buildings, equipmentLn 10c | $2.2M | $1.8M |
| Total assetsLn 16 | $45.3M | $55.6M |
| LiabilitiesLn 26 | $36.5M | $44.6M |
| Net assetsLn 32 | $8.8M | $11.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $26.2M | $26.2M | ||
| Grants and assistance to foreign recipientsLn 3 | $1.4M | $1.4M | ||
| Pay of current officers, directors and key staffLn 5 | $2.5M | $1.7M | $518K | $252K |
| Other salaries and wagesLn 7 | $23.1M | $15.8M | $4.9M | $2.4M |
| Pension plan contributionsLn 8 | $992K | $681K | $210K | $102K |
| Other employee benefitsLn 9 | $3.9M | $2.7M | $817K | $397K |
| Payroll taxesLn 10 | $1.9M | $1.3M | $399K | $194K |
| Legal feesLn 11b | $91K | $66K | $17K | $8K |
| Accounting feesLn 11c | $127K | $127K | ||
| Lobbying feesLn 11d | $516K | $516K | ||
| Professional fundraising feesLn 11e | $468K | $468K | ||
| Other fees for servicesLn 11g | $6.2M | $4.8M | $1.2M | $205K |
| Advertising and promotionLn 12 | $572K | $348K | $151K | $73K |
| Office expensesLn 13 | $400K | $245K | $104K | $51K |
| Information technologyLn 14 | $1.3M | $951K | $246K | $120K |
| OccupancyLn 16 | $1.9M | $1.2M | $511K | $248K |
| TravelLn 17 | $424K | $261K | $110K | $53K |
| Conferences, conventions and meetingsLn 19 | $295K | $295K | $114 | $56 |
| Depreciation, depletion and amortizationLn 22 | $798K | $490K | $207K | $101K |
| InsuranceLn 23 | $417K | $262K | $104K | $51K |
| Other expenses (24a–d)Ln 24 | $585K | $360K | $151K | $73K |
| All other expensesLn 24e | $1.6M | $1.0M | $399K | $189K |
| Total functional expensesLn 25 | $75.7M | $60.5M | $10.2M | $5.0M |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Nov 11, 2025 | $85.2M | $83.5M | $1.7M | $3.2M | 990 PDF |
| FY2023Filed with the IRS Nov 4, 2024 | $81.8M | $86.5M | −$4.8M | $2.0M | 990 PDF |
| FY2022Filed with the IRS Nov 13, 2023 | $81.5M | $82.6M | −$1.1M | $6.1M | 990 PDF |
| FY2021Filed with the IRS Nov 14, 2022 | $78.0M | $78.3M | −$297K | $11.4M | 990 PDF |
| FY2020 ViewingFiled with the IRS Nov 12, 2021 | $76.2M | $75.7M | $550K | $11.1M | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $76,220,042 revenue, 12 lines filed
Part VI · Governance 28 of 28 board members independent, no flags
Part VIII · Statement of revenue $76,220,042 across 13 lines filed
Part IX · Statement of functional expenses $75,670,117 across 22 lines filed
Part X · Balance sheet $55,619,176 assets, 18 lines filed
Part XI · Reconciliation of net assets $11,066,493 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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