Crohns & Colitis Foundation INC

Tax-deductible

New York, NY501(c)(3)Since 1967Diseases & DisordersEIN 13-6193105Revenue $85.2M in FY2024

On file with the IRScrohnscolitisfoundation.org733 3rd Ave Ste 510, 10017-3218 · New York, NYTax-exempt since Jul 1966Publicly supported charity — 170(b)(1)(A)(vi)

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To cure crohn's disease and ulcerative Colitis (continued on schedule o)

501(c)(3) charity; gifts are tax-deductible.
81¢ of each $1 spent went to programs.
Run by 5,547 volunteers and 376 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average deficit $784K a year · under 1% of revenue · last 5 filings
Concern: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
81%
of spending
Looks good: 81% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$7.4M
to officers and key staff · 9% of spending
Top officer’s pay higher than 90% of similar orgs
Looks good: pay to officers and key staff is 9% of spending; 15% or less.
Pt VII · Sec A
Cash reserves
2 mo
of spending, in cash
Fine: 1.6 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
16
named funders · $457K
Looks good: 16 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$47.4M
94% of total assets
Concern: liabilities are 94% of assets; over 80%.
Pt X · Ln 26
Independent board members
26
of 26 voting members
Looks good: 26 of 26 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$85.2M
+4% vs prior year
Spent
$83.5M
To programs
81%
Net assets
$3.2M
By yearFY2020–FY2024
Revenue
$85.2M
FY2024▲ +4%
Tap a bar for its year
Revenue by fiscal year
FY2020$76.2M
FY2021$78.0M
FY2022$81.5M
FY2023$81.8M
FY2024$85.2M
Expenses
$83.5M
FY2024▼ -4%
Tap a bar for its year
Expenses by fiscal year
FY2020$75.7M
FY2021$78.3M
FY2022$82.6M
FY2023$86.5M
FY2024$83.5M
Net assets
$3.2M
FY2024▲ +64%
Tap a bar for its year
Net assets by fiscal year
FY2020$11.1M
FY2021$11.4M
FY2022$6.1M
FY2023$2.0M
FY2024$3.2M

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 1966.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

81 cents of each dollar spent went to programs.

Program services 81% · $68.0M Management & general 20% · $16.9M Fundraising 10% · $8.2M

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

96 people listed on the 990; $7.4M paid to officers and key staff.

Part VII, Section A · reportable compensation
President/Ceo(non-Voting)
$604,255Pt VII · Sec A
President/Ceo(non-Voting)
$604,255Pt VII · Sec A
Chief Scientific Officer
$450,466Pt VII · Sec A
Chief Scientific Officer
$450,466Pt VII · Sec A
Chief Technology Officer
$304,578Pt VII · Sec A
Chief Technology Officer
$304,578Pt VII · Sec A
Chief Development Officer
$273,205Pt VII · Sec A
Chief Development Officer
$273,205Pt VII · Sec A

Michael Osso’s $604K as President/Ceo(non-Voting) is at the 90th percentile of top reported officer pay among 249 $10–100M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Michael Osso$604,255$770,337$653,016$587,399$456,915
Alan Moss$450,466————
Caren Heller—$294,246$408,303$388,803$371,116
Rohit Suri$304,578$312,346$298,668$272,418$257,632
Robert Territo——$237,843$296,257$274,772
Michael Elkow—$280,491$272,254$261,144$250,494
Allison Coffey$273,205$274,705$266,582$249,186$216,215
Sharon Lungrin$267,379$269,413$118,178——

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes
  • Loans to or from officersSch L · Pt II2 listed

Programs and updates

Funds research to cure inflammatory bowel diseases while providing education, support programs, and resources for patients and families affected by Crohn's and colitis.

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Provided by the organization

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4 programs · $126.4M · in their own filed words · FY2024
01

Since its inception, the crohn's & colitis foundation has provided more than $500 million for research on the treatment and cures of ibd. The foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing…

$35.0Mprogram expense
02

Since its inception, the crohn's & colitis foundation has provided more than $500 million for research on the treatment and cures of ibd. The foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing…

$35.0Mprogram expense
03

The crohn's & colitis foundation provides information and education for the millions of individuals with ibd and their loved ones through a variety of channels at the national and local level including in-person and web-based education, support programs including pediatric and adult focus initiatives, ibd help center answering questions…

$33.0Mprogram expense
04

The crohn's & colitis foundation provides information and education for the millions of individuals with ibd and their loved ones through a variety of channels at the national and local level including in-person and web-based education, support programs including pediatric and adult focus initiatives, ibd help center answering questions…

$23.4Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
See all 16 funders →
Grants paid · 441 grants · $87.5M · 2020–2024
Infinity Biologix LLCFY2024$661,903
Infinity Biologix LLCFY2024$661,903
Weill Medical College of Cornell UniversityFY2024$534,898
Weill Medical College of Cornell UniversityFY2024$534,898
Mobius Care INCFY2024$500,000
Mobius Care INCFY2024$500,000
Cedars-Sinai Medical CenterCA · FY2024$426,341
Cedars-Sinai Medical CenterCA · FY2024$426,341
See all 441 grants →

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$85.2M
Ln 12
Gifts and grantsLn 1h$73.9M
Fees for servicesLn 2g$9.1M
Investment incomeLn 3$1.3M
Money outPt IX
$83.5M
Ln 25
Programscol B$68.0M
Managementcol C$16.9M
Fundraisingcol D$8.2M
Owns and owesPt X
$3.2M
net assets · Ln 32
Cash and savingsLn 1–2$11.1M
Total assetsLn 16$50.6M
LiabilitiesLn 26$47.4M
PeoplePt VI, VII
96
listed · VII A
PaidVII A26
Voting boardVI 1a26
IndependentVI 1b26
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$73.9M
Government grantsLn 1e$551K
Fees for servicesLn 2g$9.1M
Investment incomeLn 3$1.3M
Other incomeLn 4–11$854K
Total revenueLn 12$85.2M
Assets in detailPt X, end of year
Cash and savings togetherLn 1–2$11.1M
Total assetsLn 16$50.6M
LiabilitiesLn 26$47.4M
Net assetsLn 32$3.2M
OperationsPt I, VI
EmployeesI 5376
VolunteersI 65,547
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $85.2M$83.5M$1.7M$3.2M 990 PDF
FY2023 $81.8M$86.5M−$4.8M$2.0M 990 PDF
FY2022 $81.5M$82.6M−$1.1M$6.1M 990 PDF
FY2021 $78.0M$78.3M−$297K$11.4M 990 PDF
FY2020 $76.2M$75.7M$550K$11.1M 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (1 part)
Part VI · Governance 26 of 26 board members independent, no flags
VI-1a Voting members of the governing body26
VI-1b Independent voting members26
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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