Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 1984.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
84 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
39 people listed on the 990; $2.3M paid to officers and key staff.
Annette Bakker’s $405K as President is at the 48th percentile of top reported officer pay among 127 $10–100M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Annette Bakker | $404,743 | $412,592 | $372,598 | $354,738 | $343,678 |
| Brigid Garelik | $343,266 | $184,927 | — | — | — |
| Michele Przypyszny | $166,864 | $277,958 | $266,623 | $253,400 | $245,098 |
| Monica Sohn | $258,750 | — | — | — | — |
| Simon Vukelj | $246,075 | $244,315 | $231,365 | $219,900 | $208,926 |
| Salvatore La Rosa | — | — | $240,109 | $229,334 | $223,073 |
| Sarah Bourne | $194,226 | $188,572 | $175,606 | $152,105 | $146,710 |
| Irene Morganstern | $183,952 | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds medical research, supports patients and families, and raises public awareness to end neurofibromatosis while expanding a national network of specialized clinics.
Questions for Childrens Tumor Foundation
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Research
The children's tumor foundation supports NF research through a range of funding mechanisms. Our investments in research are three-fold: 1) to attract talented investigators to NF research; 2) to support innovative research; and 3) to foster collaborative efforts to find treatments and cures for neurofibromatosis.
Public Education and Patient Support
The children's tumor foundation engages in public education through its website, quarterly newsletters, media coverage, and its national programs. Through our NF endurance and NF walk programs, the foundation highlights NF heroes and their triumphant spirits.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $19.7M | $16.0M |
| InvestmentsLn 11–13 | $6.9M | $8.7M |
| Land, buildings, equipmentLn 10c | $46K | $14K |
| Total assetsLn 16 | $30.1M | $30.7M |
| LiabilitiesLn 26 | $4.4M | $3.9M |
| Net assetsLn 32 | $25.7M | $26.8M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $4.3M | $4.3M | ||
| Grants to domestic individualsLn 2 | $65K | $65K | ||
| Grants and assistance to foreign recipientsLn 3 | $1.1M | $1.1M | ||
| Pay of current officers, directors and key staffLn 5 | $1.6M | $1.2M | $196K | $233K |
| Other salaries and wagesLn 7 | $3.9M | $2.9M | $404K | $585K |
| Pension plan contributionsLn 8 | $73K | $47K | $13K | $13K |
| Other employee benefitsLn 9 | $741K | $519K | $111K | $112K |
| Payroll taxesLn 10 | $418K | $297K | $60K | $62K |
| Legal feesLn 11b | $130K | $130K | ||
| Lobbying feesLn 11d | $360K | $360K | ||
| Investment management feesLn 11f | $35K | $35K | ||
| Other fees for servicesLn 11g | $1.6M | $1.5M | $22K | $43K |
| Advertising and promotionLn 12 | $214K | $170K | $12K | $32K |
| Office expensesLn 13 | $302K | $227K | $31K | $43K |
| Information technologyLn 14 | $529K | $378K | $86K | $66K |
| OccupancyLn 16 | $105K | $58K | $32K | $16K |
| TravelLn 17 | $464K | $395K | $33K | $36K |
| Conferences, conventions and meetingsLn 19 | $1.6M | $1.3M | $139K | $166K |
| Depreciation, depletion and amortizationLn 22 | $216K | $119K | $65K | $32K |
| InsuranceLn 23 | $29K | $16K | $9K | $4K |
| Other expenses (24a–d)Ln 24 | $1.2M | $935K | $146K | $112K |
| All other expensesLn 24e | $16K | $9K | $5K | $2K |
| Total functional expensesLn 25 | $19.0M | $15.9M | $1.5M | $1.6M |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $19.7M | $19.0M | $729K | $26.8M | 990 PDF |
| FY2023 | $16.4M | $18.8M | −$2.4M | $25.7M | 990 PDF |
| FY2022 | $17.0M | $15.8M | $1.2M | $27.6M | 990 PDF |
| FY2021 | $16.8M | $10.4M | $6.4M | $27.3M | 990 PDF |
| FY2020 | $12.8M | $10.4M | $2.4M | $20.5M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $19,738,640 revenue, 12 lines filed
Part VI · Governance 25 of 25 board members independent, no flags
Part VIII · Statement of revenue $19,738,640 across 12 lines filed
Part IX · Statement of functional expenses $19,009,492 across 22 lines filed
Part X · Balance sheet $30,677,831 assets, 20 lines filed
Part XI · Reconciliation of net assets $26,769,526 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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