Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2010.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
92 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Who runs it and what they're paid
17 people listed on the 990; $2.2M paid to officers and key staff.
Luca Foschini’s $365K as President & CEO is at the 46th percentile of top reported officer pay among 139 $10–100M science & technology nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Luca Foschini | — | $419,183 | — | — | — |
| Luca Foschini | $365,453 | — | — | — | — |
| Kimberly Baggett | $315,997 | — | — | — | — |
| Kim Baggett | — | $286,765 | $219,103 | — | — |
| Lara Mangravite | — | — | $128,450 | $278,073 | $269,532 |
| Mike Kellen | — | $246,427 | $277,785 | $229,674 | $223,307 |
| Brian O'Connor | — | $263,068 | $272,938 | — | — |
| John Wilbanks | — | — | — | $18,506 | $245,413 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Connects researchers, patients, and citizens to advance biomedical discovery through shared data and resources.
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Data Coordination & Sharing
In 2024 sage bionetworks expanded access to biomedical data, increasing average monthly synapse users by 20% and had over 33,000 unique users downloading data (+32%). Key highlights included the launch of the aacr project genie portal, which centralizes cancer datasets from 19 centers and nearly 200,000 sequenced samples across 111…
Tools & Methods
Sage advanced its tooling to make data more usable and interoperable. Integration of cavatica into the alzheimer's disease knowledge portal enabled direct export to a cloud-based analysis environment. Synapse introduced synapsechat, an ai-assisted conversational search tool and new hosting options through aws open data.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.0M | $1.0M |
| Land, buildings, equipmentLn 10c | $36K | $20K |
| Total assetsLn 16 | $10.8M | $8.2M |
| LiabilitiesLn 26 | $7.2M | $4.8M |
| Net assetsLn 32 | $3.6M | $3.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $2.1M | $2.1M | ||
| Pay of current officers, directors and key staffLn 5 | $1.4M | $885K | $517K | $38K |
| Other salaries and wagesLn 7 | $13.0M | $12.0M | $1.0M | $54K |
| Pension plan contributionsLn 8 | $792K | $729K | $59K | $4K |
| Other employee benefitsLn 9 | $1.9M | $1.8M | $73K | $1K |
| Payroll taxesLn 10 | $1.1M | $960K | $108K | $6K |
| Legal feesLn 11b | $213K | $191K | $21K | $756 |
| Accounting feesLn 11c | $324K | $292K | $32K | |
| Lobbying feesLn 11d | $2K | $2K | ||
| Professional fundraising feesLn 11e | $948 | $948 | ||
| Other fees for servicesLn 11g | $529K | $513K | $16K | $604 |
| Office expensesLn 13 | $200K | $185K | $14K | $572 |
| Information technologyLn 14 | $1.8M | $1.8M | $13K | $289 |
| OccupancyLn 16 | $786K | $703K | $78K | $5K |
| TravelLn 17 | $358K | $339K | $18K | $1K |
| Conferences, conventions and meetingsLn 19 | $105K | $100K | $5K | $271 |
| InterestLn 20 | $1K | $1K | $122 | $7 |
| Depreciation, depletion and amortizationLn 22 | $16K | $14K | $2K | $92 |
| InsuranceLn 23 | $70K | $62K | $7K | $408 |
| Total functional expensesLn 25 | $24.7M | $22.6M | $2.0M | $113K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $24.5M | $24.7M | −$156K | $3.4M | 990 PDF |
| FY2023 | $26.3M | $26.4M | −$78K | $3.6M | 990 PDF |
| FY2022 | $23.9M | $24.2M | −$310K | $3.7M | 990 PDF |
| FY2021 | $26.4M | $25.2M | $1.2M | $4.0M | 990 PDF |
| FY2020 | $19.3M | $19.7M | −$473K | $2.8M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (4 parts)
Part VIII · Statement of revenue $24,549,384 across 8 lines filed
Part IX · Statement of functional expenses $24,705,667 across 19 lines filed
Part X · Balance sheet $8,199,571 assets, 15 lines filed
Part XI · Reconciliation of net assets $3,430,562 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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