Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
70 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
22 people listed on the 990; $2.0M paid to officers and key staff.
Chris Decker’s $339K as President & CEO is at the 91st percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| David E Evans | — | $220,202 | $423,735 | — | — | — |
| David Evans | — | — | — | $410,719 | $318,958 | — |
| David R Bobbitt | — | — | — | — | $360,221 | $384,310 |
| Chris Decker | $338,654 | $324,220 | — | — | — | — |
| Peter Van Reusel | — | $287,695 | $302,748 | $300,553 | $289,997 | $294,153 |
| Nicole Harmon | $240,327 | — | — | — | — | — |
| Rhonda Facile | — | $188,836 | $238,070 | — | — | — |
| Sheila Leaman | — | $220,273 | $238,070 | $222,968 | $192,399 | $193,991 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Develops global data standards to improve medical research and healthcare.
Questions for Clinical Data Interchange Standards Consortium INC
Your first name shows with your question. Clinical Data Interchange Standards Consortium INC answers here, for everyone.
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Technical
To date, cdisc has developed therapeutic area standards for over 40 diseases. In 2021, cdisc released significant new versions of the cdisc foundational standards (send, cdash, SDTM and adam). Cdisc also released the following therapeutic area user guides: type 1 diabetes, crohn's disease, pancreatic cancer, and COVID-19.
Education
In 2021, cdisc education continued to expand its online program with over 120 virtual training events led throughout the year - almost tripling the number of events from the previous year. The education team collaborated to produce the world's first cdisc standards certification with the release of the SDTM tabulate certification…
Events
Cdisc hosted four virtual conferences in 2021. These conferences were "interchanges," individually focused on europe, japan, china, and united states markets. The events promoted recent advancements by cdisc standards teams, cdisc members and independent developers.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $5.4M | $4.6M |
| InvestmentsLn 11–13 | $822K | $822K |
| Land, buildings, equipmentLn 10c | $29K | $40K |
| Total assetsLn 16 | $6.5M | $6.3M |
| LiabilitiesLn 26 | $1.3M | $1.2M |
| Net assetsLn 32 | $5.3M | $5.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $578K | $167K | $274K | $137K |
| Other salaries and wagesLn 7 | $3.9M | $2.8M | $970K | $120K |
| Pension plan contributionsLn 8 | $160K | $149K | $11K | |
| Other employee benefitsLn 9 | $492K | $295K | $164K | $34K |
| Payroll taxesLn 10 | $314K | $221K | $74K | $19K |
| Legal feesLn 11b | $600 | $600 | ||
| Accounting feesLn 11c | $69K | $69K | ||
| Other fees for servicesLn 11g | $1.7M | $1.4M | $163K | $153K |
| Office expensesLn 13 | $54K | $2K | $51K | $246 |
| Information technologyLn 14 | $125K | $106K | $15K | $4K |
| OccupancyLn 16 | $159K | $79K | $58K | $21K |
| TravelLn 17 | $4K | $2K | $1K | |
| Depreciation, depletion and amortizationLn 22 | $19K | $13K | $5K | $1K |
| Other expenses (24a–d)Ln 24 | $373K | $327K | $37K | $9K |
| All other expensesLn 24e | $18K | $18K | ||
| Total functional expensesLn 25 | $7.9M | $5.5M | $1.9M | $498K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $8.9M | $8.5M | $421K | $1.8M | 990 PDF |
| FY2024 | $9.2M | $9.5M | −$286K | $1.4M | 990 PDF |
| FY2023 | $9.3M | $11.2M | −$1.9M | $1.7M | 990 PDF |
| FY2022 | $8.1M | $9.6M | −$1.5M | $3.6M | 990 PDF |
| FY2021 Viewing | $7.7M | $7.9M | −$192K | $5.1M | 990 PDF |
| FY2020 | $7.0M | $7.6M | −$658K | $5.3M | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $7,747,958 revenue, 12 lines filed
Part VI · Governance 13 of 13 board members independent, no flags
Part VIII · Statement of revenue $7,747,958 across 8 lines filed
Part IX · Statement of functional expenses $7,940,015 across 15 lines filed
Part X · Balance sheet $6,322,350 assets, 15 lines filed
Part XI · Reconciliation of net assets $5,074,765 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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