Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
73 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
23 people listed on the 990; $2.0M paid to officers and key staff.
Chris Decker’s $339K as President & CEO is at the 91st percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| David E Evans | — | $220,202 | $423,735 | — | — | — |
| David Evans | — | — | — | $410,719 | $318,958 | — |
| David R Bobbitt | — | — | — | — | $360,221 | $384,310 |
| Chris Decker | $338,654 | $324,220 | — | — | — | — |
| Peter Van Reusel | — | $287,695 | $302,748 | $300,553 | $289,997 | $294,153 |
| Nicole Harmon | $240,327 | — | — | — | — | — |
| Rhonda Facile | — | $188,836 | $238,070 | — | — | — |
| Sheila Leaman | — | $220,273 | $238,070 | $222,968 | $192,399 | $193,991 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Develops global data standards to improve medical research and healthcare.
Questions for Clinical Data Interchange Standards Consortium INC
Your first name shows with your question. Clinical Data Interchange Standards Consortium INC answers here, for everyone.
Know this org? Add your story
In 2024, cdisc introduced a strategic roadmap to expand and enable standards driven automation across the end-to-end study information lifecycle from study design through results. Cdisc is mobilizing its work around three key pillars: expand & connect, enable & automate, and engage & adopt positioning cdisc and the industry for future…
Events
Cdisc held 7 global events (united states, germany, japan, china, korea) across three continents with more than 1,200 attendees gathering to network, share their expertise, best practices, and lessons learned about leveraging cdisc standards to bring efficiencies and clarity to data.
Education
In 2024 cdisc education trained 940 individuals with over 100 instructor-led trainings, 30 hours of new materials, in 20 countries with 2 new translations. We developed new hands-on trainings for ars implementation, cdisc open rules implementation, dataset-json implementation, adam advanced implementation, and SDTM advanced…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.4M | $1.7M |
| InvestmentsLn 11–13 | $845K | $865K |
| Land, buildings, equipmentLn 10c | $53K | $31K |
| Total assetsLn 16 | $4.0M | $3.2M |
| LiabilitiesLn 26 | $2.3M | $1.8M |
| Net assetsLn 32 | $1.7M | $1.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $1.1M | $325K | $529K | $247K |
| Other salaries and wagesLn 7 | $3.4M | $2.7M | $573K | $142K |
| Pension plan contributionsLn 8 | $177K | $157K | $20K | |
| Other employee benefitsLn 9 | $398K | $256K | $127K | $15K |
| Payroll taxesLn 10 | $371K | $246K | $95K | $29K |
| Legal feesLn 11b | $4K | $4K | ||
| Accounting feesLn 11c | $100K | $100K | ||
| Other fees for servicesLn 11g | $2.1M | $1.9M | $224K | $21K |
| Office expensesLn 13 | $55K | $4K | $50K | $2K |
| Information technologyLn 14 | $162K | $100K | $44K | $17K |
| OccupancyLn 16 | $96K | $50K | $30K | $16K |
| TravelLn 17 | $93K | $81K | $12K | |
| Conferences, conventions and meetingsLn 19 | $5K | $5K | ||
| Depreciation, depletion and amortizationLn 22 | $22K | $13K | $6K | $2K |
| Other expenses (24a–d)Ln 24 | $1.3M | $1.1M | $38K | $162K |
| All other expensesLn 24e | $32K | $32K | ||
| Total functional expensesLn 25 | $9.5M | $6.9M | $1.9M | $655K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $8.9M | $8.5M | $421K | $1.8M | 990 PDF |
| FY2024 Viewing | $9.2M | $9.5M | −$286K | $1.4M | 990 PDF |
| FY2023 | $9.3M | $11.2M | −$1.9M | $1.7M | 990 PDF |
| FY2022 | $8.1M | $9.6M | −$1.5M | $3.6M | 990 PDF |
| FY2021 | $7.7M | $7.9M | −$192K | $5.1M | 990 PDF |
| FY2020 | $7.0M | $7.6M | −$658K | $5.3M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $9,205,905 revenue, 12 lines filed
Part VI · Governance 14 of 14 board members independent, no flags
Part VIII · Statement of revenue $9,205,905 across 7 lines filed
Part IX · Statement of functional expenses $9,491,939 across 16 lines filed
Part X · Balance sheet $3,169,764 assets, 16 lines filed
Part XI · Reconciliation of net assets $1,392,608 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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