Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
72 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
20 people listed on the 990; $1.5M paid to officers and key staff (Part VII, Section A).
Chris Decker’s $339K as President & CEO is at the 91st percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| David E Evans | — | $220,202 | $423,735 | — | — | — |
| David Evans | — | — | — | $410,719 | $318,958 | — |
| David R Bobbitt | — | — | — | — | $360,221 | $384,310 |
| Chris Decker | $338,654 | $324,220 | — | — | — | — |
| Peter Van Reusel | — | $287,695 | $302,748 | $300,553 | $289,997 | $294,153 |
| Nicole Harmon | $240,327 | — | — | — | — | — |
| Rhonda Facile | — | $188,836 | $238,070 | — | — | — |
| Sheila Leaman | — | $220,273 | $238,070 | $222,968 | $192,399 | $193,991 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Clinical Data Interchange Standards Consortium INC executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Develops global data standards to improve medical research and healthcare.
Questions for Clinical Data Interchange Standards Consortium INC
Your first name shows with your question. Clinical Data Interchange Standards Consortium INC answers here, for everyone.
In 2024, cdisc introduced a strategic roadmap to expand and enable standards driven automation across the end-to-end study information lifecycle from study design through results. To realize this vision, cdisc is mobilizing its work around three key pillars: expand & connect, enable & automate, and engage & adopt.
Form 990 Part III, line 4, FY2025. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 04-3503931) · Dispute this lineEvents
Cdisc held 7 global events (united states, switzerland, japan, china, korea and india) across three continents with more than 1,400+ attendees fostered collaboration and knowledge sharing across the clinical research community gathering to network, share their expertise, best practices, and lessons learned about leveraging cdisc…
Form 990 Part III, line 4, FY2025. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 04-3503931) · Dispute this lineEducation
In 2025 cdisc education trained 800 individuals with expanded education offerings including 8 new trainings, equipping the global cdisc community with practical tools and knowledge to implement standards more effectively. Instructors led 77 trainings for trainees from 130+ organizations representing 35 countries.
Form 990 Part III, line 4, FY2025. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 04-3503931) · Dispute this lineFunders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.7M | $2.3M |
| InvestmentsLn 11–13 | $865K | $880K |
| Land, buildings, equipmentLn 10c | $31K | $31K |
| Total assetsLn 16 | $3.2M | $4.0M |
| LiabilitiesLn 26 | $1.8M | $2.2M |
| Net assetsLn 32 | $1.4M | $1.8M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of officers and key staff (Part IX, line 5)Ln 5 | $736K | $736K | ||
| Other salaries and wagesLn 7 | $3.3M | $2.5M | $675K | $140K |
| Pension plan contributionsLn 8 | $173K | $124K | $42K | $7K |
| Other employee benefitsLn 9 | $398K | $283K | $100K | $16K |
| Payroll taxesLn 10 | $322K | $204K | $107K | $11K |
| Legal feesLn 11b | $5K | $5K | ||
| Accounting feesLn 11c | $87K | $87K | ||
| Other fees for servicesLn 11g | $1.9M | $1.7M | $84K | $86K |
| Office expensesLn 13 | $95K | $45K | $48K | $2K |
| Information technologyLn 14 | $151K | $101K | $45K | $5K |
| OccupancyLn 16 | $24K | $16K | $7K | $800 |
| TravelLn 17 | $29K | $20K | $7K | $2K |
| Conferences, conventions and meetingsLn 19 | $11K | $11K | ||
| Depreciation, depletion and amortizationLn 22 | $16K | $11K | $5K | $537 |
| Other expenses (24a–d)Ln 24 | $1.2M | $1.1M | $32K | $113K |
| Total functional expensesLn 25 | $8.5M | $6.1M | $2.0M | $384K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest ViewingFiled with the IRS Jul 31, 2026 | $8.9M | $8.5M | $421K | $1.8M | 990 PDF |
| FY2024Filed with the IRS Aug 20, 2025 | $9.2M | $9.5M | −$286K | $1.4M | 990 PDF |
| FY2023Filed with the IRS Aug 15, 2024 | $9.3M | $11.2M | −$1.9M | $1.7M | 990 PDF |
| FY2022Filed with the IRS Sep 25, 2023 | $8.1M | $9.6M | −$1.5M | $3.6M | 990 PDF |
| FY2021Filed with the IRS Nov 1, 2022 | $7.7M | $7.9M | −$192K | $5.1M | 990 PDF |
| FY2020Filed with the IRS Aug 16, 2021 | $7.0M | $7.6M | −$658K | $5.3M | 990 PDF |
Schedules filed Part IV
See the full FY2025 990
Part I · Summary $8,901,903 revenue, 12 lines filed
Part VI · Governance 12 of 12 board members independent, no flags
Part VIII · Statement of revenue $8,901,903 across 7 lines filed
Part IX · Statement of functional expenses $8,480,440 across 15 lines filed
Part X · Balance sheet $3,998,049 assets, 15 lines filed
Part XI · Reconciliation of net assets $1,776,596 net assets at year end
Form 990 e-file FY2025 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File
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