Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 1995.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
75 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
16 people listed on the 990; $420K paid to officers and key staff.
Marilyn Grunzweig Geller’s $351K as CEO is at the 95th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Marilyn Grunzweig Geller | $350,580 | $335,685 | $280,800 | $251,095 | $227,941 | $229,648 |
| Brett Spitale | $223,440 | $208,636 | — | — | — | — |
| Deborah Ceizler | — | — | $205,271 | $169,338 | $155,987 | $157,095 |
| Vanessa Weisbrod | $186,408 | $185,611 | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Celiac Disease Foundation executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Drives research, advocacy, and education to diagnose, treat, and cure celiac disease.
Questions for Celiac Disease Foundation
Your first name shows with your question. Celiac Disease Foundation answers here, for everyone.
Research a two-time patient-centered outcomes institute (pcori) award winner, the celiac disease foundation advances celiac disease research, collaborating with researchers and clinicians to advance understanding of and treatments for celiac disease with a focus on improving patient engagement in the research process.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.0M | $2.2M |
| InvestmentsLn 11–13 | $1.6M | $1.4M |
| Land, buildings, equipmentLn 10c | $36K | $37K |
| Total assetsLn 16 | $4.1M | $4.5M |
| LiabilitiesLn 26 | $916K | $596K |
| Net assetsLn 32 | $3.2M | $3.9M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants and assistance to foreign recipientsLn 3 | $75K | $75K | ||
| Pay of current officers, directors and key staffLn 5 | $420K | $222K | $86K | $112K |
| Other salaries and wagesLn 7 | $510K | $418K | $92K | |
| Pension plan contributionsLn 8 | $27K | $19K | $2K | $6K |
| Other employee benefitsLn 9 | $89K | $62K | $8K | $20K |
| Payroll taxesLn 10 | $69K | $48K | $6K | $15K |
| Legal feesLn 11b | $20 | $20 | ||
| Accounting feesLn 11c | $51K | $51K | ||
| Investment management feesLn 11f | $12K | $12K | ||
| Office expensesLn 13 | $21K | $19K | $1K | $844 |
| Information technologyLn 14 | $37K | $37K | ||
| OccupancyLn 16 | $53K | $49K | $2K | $2K |
| Conferences, conventions and meetingsLn 19 | $80K | $67K | $13K | |
| Depreciation, depletion and amortizationLn 22 | $32K | $30K | $1K | $1K |
| InsuranceLn 23 | $11K | $6K | $4K | $1K |
| Other expenses (24a–d)Ln 24 | $602K | $503K | $995 | $98K |
| All other expensesLn 24e | $88K | $88K | ||
| Total functional expensesLn 25 | $2.2M | $1.6M | $188K | $348K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 LatestFiled with the IRS Jun 22, 2026 | $5.3M | $4.6M | $736K | $6.8M | 990 PDF |
| FY2024Filed with the IRS May 18, 2025 | $4.3M | $4.3M | −$42K | $5.6M | 990 PDF |
| FY2023Filed with the IRS Sep 18, 2025 | $4.2M | $3.0M | $1.2M | $5.3M | 990 PDF |
| FY2022 ViewingFiled with the IRS May 2, 2023 | $3.1M | $2.2M | $941K | $3.9M | 990 PDF |
| FY2021Filed with the IRS May 16, 2022 | $3.0M | $2.1M | $948K | $3.2M | 990 PDF |
| FY2020Filed with the IRS Jun 16, 2021 | $1.9M | $1.4M | $492K | $2.2M | 990 PDF |
Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $3,118,626 revenue, 12 lines filed
Part VI · Governance 14 of 14 board members independent, no flags
Part VIII · Statement of revenue $3,118,626 across 8 lines filed
Part IX · Statement of functional expenses $2,177,592 across 17 lines filed
Part X · Balance sheet $4,468,403 assets, 19 lines filed
Part XI · Reconciliation of net assets $3,872,755 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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