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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Iowa Health Foundation Improving the HEALTH of our communities through philanthropy, service and volunteerism. 42-1467682 · FY2024 Des Moines, IA $24.6M $17.2M $223.4M 74% 9% — 501(c)(3)
Rheumatology Research Foundation Support RESEARCH & training that advances the prevention, treatment and cure of rheumatic diseases. 58-1654301 · FY2024 Atlanta, GA $19.8M $17.1M $76.4M 85% 12% — 501(c)(3)
The Association for Frontotemporal Degeneration Promote and fund research into developing better diagnostic processes, therapies (cont'd in sch o)and cures… 41-2073220 · FY2024 Kng of Prussa, PA $14.4M $11.6M $60.1M 82% 14% 64 501(c)(3)
Myasthenia Gravis Foundation of America INC Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options… 13-5672224 · FY2024 Westborough, MA $5.7M $5.1M $15.3M 74% 12% 18 501(c)(3)
American Liver Foundation Our mission is to facilitate, advocate, and promote education, support services, and research for the… 36-2883000 · FY2024 West Orange, NJ $5.7M $6.5M $9.5M 78% 12% 61 501(c)(3)
The International Waldenstroms Macroglobulinemia Foundation INC Support and educate everyone affected by waldenstrom's MACROGLOBULINEMIA while advancing the search for a… 54-1784426 · FY2024 Chicago, IL $4.5M $5.5M $7.5M 88% 5% 8 501(c)(3)
United Mitochondrial Disease Foundation INC To promote research and education for the diagnosis, treatment and cure of MITOCHONDRIAL disorders and to… 25-1767180 · FY2023 Pittsburgh, PA $3.7M $4.7M $6.6M 77% 16% 20 501(c)(3)
Beyond Celiac The national foundation for CELIAC awareness, doing business as BEYOND CELIAC, unites with patients and… 90-0108854 · FY2023 Ambler, PA $3.3M $3.0M $5.4M 78% 14% 17 501(c)(3)
Rome Foundation To support and promote multinational research; develop and update diagnostic criteria; establish mechanisms… 54-1808958 · FY2024 Raleigh, NC $2.9M $2.8M $2.6M 39% 34% — 501(c)(3)
American Pancreatic Association INC To foster clinical and basic science research needed to cure diseases of the pancreas and striveto continue… 43-1422062 · FY2024 Fort Lauderdale, FL $2.8M $1.5M $9.1M 89% 0% — 501(c)(3)
Vasculitis Foundation Building upon the collective strength of the VASCULITIS community, the FOUNDATION supports, inspires and… 43-1492959 · FY2024 Kansas City, MO $2.5M $2.4M $6.1M 64% 10% 5 501(c)(3)
Ocular Immunology and Uveitis Foundation INC The OCULAR IMMUNOLOGY and UVEITIS FOUNDATION is dedicated to improving the diagnosis and treatment and… 20-1891037 · FY2024 Weston, MA $1.6M $706.8K $3.0M 63% 26% — 501(c)(3)
Iowa Public Health Association Foundation Uniting and strengthening the voice for PUBLIC HEALTH in IOWA. 23-7327835 · FY2024 Des Moines, IA $1.3M $1.1M $882.8K 93% 0% 3 501(c)(3)
Kabuki Syndrome Foundation Drive research efforts that show promise to treat or cure KABUKI SYNDROME. 82-5401904 · FY2024 Northbrook, IL $1.2M $928.8K $2.3M 87% 6% — 501(c)(3)
Fore Batten Foundation This organization is organized exclusively for educational and charitable purposes, including to educate the… 82-2661656 · FY2024 Scottsdale, AZ $1.1M $2.7M $383.1K 98% 1% 1 501(c)(3)
The Brain Foundation To support medical research that will lead to the development of fda-approved treatments and an improved… 83-4072118 · FY2024 Pleasanton, CA $933.2K $1.1M $2.3M 78% 8% — 501(c)(3)
Foundation of the Consortium of Multiple Sclerosis Centers The Organization was established for the promotion of educational and research scholarships for the… 31-1698640 · FY2024 Hackensack, NJ $735.7K $312.6K $561.1K 78% 0% — 501(c)(3)
International Foundation for Gastrointestinal Disorders INC Our mission is to inform, assist, and support people affected by GASTROINTESTINAL (gi) DISORDERS. 39-1710898 · FY2024 Mt Pleasant, SC $725.4K $742.9K $2.4M 76% 9% 7 501(c)(3)
The Ryr-1 Foundation The mission of the RYR-1 FOUNDATION is to support research leading to an effective treatment or a cure for… 47-1094057 · FY2024 Pittsburgh, PA $682.0K $384.3K $2.7M 51% 15% 2 501(c)(3)
Foundation for Rare Disease Research INC Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare… 92-0534021 · FY2024 Silver Spring, MD $668.5K $1.5M $2.4M 100% 0% — 501(c)(3)
National Celiac Association INC The NATIONAL CELIAC ASSOCIATION is a 501(c)3 non-profit organization dedicated to educating & advocating for… 16-1616413 · FY2024 Needham, MA $660.9K $601.7K $1.6M 46% 27% 5 501(c)(3)
National Fabry Disease Foundation To ensure that all individuals with FABRY DISEASE are identified, diagnosed and treated in time to avoid a… 20-2944028 · FY2024 Hillsborough, NC $592.0K $739.0K $269.5K 94% 1% 2 501(c)(3)
Cure Rtd Foundation Primarily to encourage, guide, and fund additional research to improve understanding, diagnosis, and… 82-0864340 · FY2025 Red Oak, TX $559.4K $255.1K $1.6M 91% 2% — 501(c)(3)
Foundation for Children with Neuroimmune Disorders INC to advocate and educate on behalf of children with neuroimmune disorders including PANS, PANDAS… 82-3128162 · FY2025 St Augustine, FL $482.4K $315.4K $1.0M 83% 0% 3 501(c)(3)
Scleroderma Foundation of Greater Chicago 3 fold mission of support, education, and research. Support: to help patients and their families cope with… 36-3238642 · FY2024 Chicago, IL $456.0K $308.1K $3.6M 61% 14% 2 501(c)(3)
Digestive Disease Research Foundation Conduct and support medical RESEARCH in the field of gastroenterology. 55-0823815 · FY2024 New York, NY $454.9K $99.4K $926.1K 96% 0% — 501(c)(3)
Research Foundation of the American Society of Colon & Rectal Surgeons The FOUNDATION provides funding and RESEARCH programs related to COLON and RECTAL diseases. 87-6123876 · FY2024 Bannockburn, IL $454.7K $573.9K $8.9M 61% 0% — 501(c)(3)
Foundation for a Cure for Mitochondrial Disease INC The FOUNDATION for a CURE for MITOCHONDRIAL DISEASE, INC. Exists to support research to find medical hope for… 06-1602020 · FY2024 Cheshire, CT $368.3K $383.4K $3.8M 92% 0% — 501(c)(3)
Reed Gastrointestional Oncology Research Foundation The FOUNDATION supports cancer RESEARCH activities to promote earlier diagnosis, prevention and effective… 82-0565754 · FY2024 Birmingham, AL $343.4K $245.2K $581.0K 41% 8% — 501(c)(3)
The Foregut Research Foundation To foster RESEARCH that evaluates outcomes of diagnostic and therapeutic interventions of FOREGUT patients. 85-1101477 · FY2024 Castle Rock, CO $219.9K $219.0K $61.6K 96% 0% 1 501(c)(3)
Movement Disorders Foundation We accelerate breakthroughs in Parkinson's disease, Huntington's disease, dystonia, essential tremor and… 27-1618835 · FY2024 Arvada, CO $164.2K $208.7K $596.2K 91% 1% — 501(c)(3)
Celiac Community Foundation of Northern California 02-0594238 · FY2025 Sebastopol, CA $158.2K — $152.5K — — — 501(c)(3)
Cure Tay-Sachs Foundation The CURE TAY-SACHS FOUNDATION has been created to fund the research initiatives that show promise to treat… 26-0256621 · FY2024 Phoenix, AZ $141.1K $251.2K $1.9M 90% 0% — 501(c)(3)
Pancreatic Cancer Cure Foundation PANCREATIC CANCER CURE foundation's mission is to raise money and distribute funding primarily towards… 81-5164082 · FY2023 Quakertown, PA $77.6K $73.1K $6.4K 86% 0% — 501(c)(3)
Foundation for Usp7 - Related Diseases To cure USP7-RELATED DISEASES by funding research and identifying more patients. 82-1697564 · FY2024 Falmouth, ME $76.0K $37.8K $234.1K 58% 31% — 501(c)(3)
North American Society for the Study of Celiac Disease INC 45-4493481 · FY2025 Woodland Hills, CA $69.0K — $1 — — — 501(c)(3)
Crohns & Colitis Nutrition Foundation 46-3701568 · FY2022 Charleston, SC $57.9K — $0 — — — 501(c)(3)
Lupus Foundation of Colorado INC Our mission is to improve the quality of life for all people affected by lupus and to promote efforts for the… 84-0763686 · FY2023 Golden, CO $53.0K $94.6K $179.7K 91% 4% 2 501(c)(3)
Foundation for Celiac Disease Outcome Measures INC 81-1870004 · FY2023 West Newton, MA $0 — $0 — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org