Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 2024.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
83 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
22 people listed on the 990; $1.6M paid to officers and key staff.
Fred B Fisher’s $399K as President Emeritus is at the 64th percentile of top reported officer pay among 2901 $10–100M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2021 |
|---|---|---|---|---|
| Fred B Fisher | $398,596 | $662,148 | $504,676 | $388,033 |
| Sheri Strahl | $354,445 | $304,091 | $293,446 | $177,784 |
| Cherryl Fluk | $239,404 | — | — | — |
| Cherryl Goldstein | — | $220,397 | $196,903 | $188,404 |
| Jon Asher Garfinkel | $153,732 | $143,702 | $138,377 | $129,502 |
| Paul Willett | $146,976 | $139,355 | $150,644 | $110,000 |
| Audra Hindes | $145,245 | $134,845 | $126,241 | $110,000 |
| Eric Beikmann | $132,501 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports people with ALS and their families through research, advocacy, and compassionate care.
Questions for Als Network
Your first name shows with your question. Als Network answers here, for everyone.
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Our mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/24 are as follows:Care Management -Strategically based in and near patients' home communities, ALS Network Care Managers…
Community Outreach & Awareness/Public Policy -Community outreach events, including our ALS walks, are opportunities to bring hope and a sense of community to persons with ALS and their families.
Als Clinic Support
ALS Network is committed to making sure that people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to high quality specialty care is one of the cornerstones of the ALS Network wraparound model of care.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $11.5M | $13.0M |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $13.3M | $14.3M |
| LiabilitiesLn 26 | $1.6M | $1.1M |
| Net assetsLn 32 | $11.7M | $13.2M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $1.4M | $1.4M | ||
| Pay of current officers, directors and key staffLn 5 | $679K | $509K | $34K | $136K |
| Other salaries and wagesLn 7 | $3.7M | $3.0M | $360K | $360K |
| Pension plan contributionsLn 8 | $76K | $61K | $7K | $7K |
| Other employee benefitsLn 9 | $505K | $403K | $45K | $57K |
| Payroll taxesLn 10 | $310K | $247K | $28K | $35K |
| Legal feesLn 11b | $12K | $12K | ||
| Accounting feesLn 11c | $21K | $21K | ||
| Lobbying feesLn 11d | $48K | $48K | ||
| Other fees for servicesLn 11g | $1.3M | $925K | $134K | $209K |
| Advertising and promotionLn 12 | $10K | $8K | $910 | $1K |
| Office expensesLn 13 | $391K | $318K | $32K | $40K |
| Information technologyLn 14 | $112K | $75K | $16K | $21K |
| OccupancyLn 16 | $284K | $221K | $32K | $31K |
| TravelLn 17 | $166K | $132K | $15K | $19K |
| InterestLn 20 | $5K | $4K | $416 | $521 |
| InsuranceLn 23 | $57K | $45K | $5K | $6K |
| Other expenses (24a–d)Ln 24 | $925K | $841K | $37K | $47K |
| All other expensesLn 24e | $68K | $56K | $5K | $7K |
| Total functional expensesLn 25 | $10.1M | $8.3M | $787K | $976K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $13.5M | $12.0M | $1.5M | $14.6M | 990 PDF |
| FY2024 Viewing | $11.5M | $10.1M | $1.5M | $13.2M | 990 PDF |
| FY2023 | $10.2M | $9.2M | $1.0M | $11.7M | 990 PDF |
| FY2022 | Not on file | ||||
| FY2021 | $8.8M | $7.5M | $1.3M | $9.4M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $11,542,650 revenue, 12 lines filed
Part VI · Governance 16 of 16 board members independent, no flags
Part VIII · Statement of revenue $11,542,650 across 9 lines filed
Part IX · Statement of functional expenses $10,071,625 across 19 lines filed
Part X · Balance sheet $14,303,880 assets, 15 lines filed
Part XI · Reconciliation of net assets $13,163,709 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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