Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2026. IRS ruling in Feb 2024.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
78 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
23 people listed on the 990; $244K paid to officers and key staff.
Cassy Adams’s $139K as Executive Dir. is at the 47th percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2026 | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|---|
| Lance Christian | — | $185,408 | $151,069 | $166,346 | $149,588 | $115,212 |
| Cassy Adams | $139,308 | $114,854 | — | — | — | — |
| Amy Easton | $104,282 | $102,280 | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Fund research, advocate for cures, and support those affected by ALS.
Questions for Als Northwest
Your first name shows with your question. Als Northwest answers here, for everyone.
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Outreach and advocacyals northwest provides ongoing financial support to support federal and state public policy initiatives to improve the lives of families living with als, outreach efforts to raise public awareness about als, as well as cutting edge global research working toward an effective treatment and ultimately a cure for als.
Independence programsto support and empower people living with als to live independently and as fully as possible, the organization provides services that help people with equipment and tools to assist in their daily lives.
Education and support programsstrategically based in and near patients home communities, care services coordinators work directly with people with als and their families to help them navigate management of als as well as access community resources. During the year ended january 31, 2026, care service coordinators made 300 home visits.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2026 990, line by line.
Download 990
| Line | Start FY26 | End FY26 |
|---|---|---|
| Cash and savingsLn 1–2 | $642K | $674K |
| InvestmentsLn 11–13 | $3.2M | $3.3M |
| Land, buildings, equipmentLn 10c | $0 | |
| Total assetsLn 16 | $4.3M | $4.4M |
| LiabilitiesLn 26 | $531K | $404K |
| Net assetsLn 32 | $3.8M | $4.0M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $248K | $248K | ||
| Grants to domestic individualsLn 2 | $121K | $121K | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $160K | $135K | $11K | $13K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $1.3M | $1.1M | $89K | $104K |
| Pension plan contributionsLn 8 | $62K | $53K | $5K | $5K |
| Other employee benefitsLn 9 | $151K | $128K | $12K | $11K |
| Payroll taxesLn 10 | $132K | $112K | $9K | $10K |
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $0 | |||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $172K | $63K | $80K | $29K |
| Advertising and promotionLn 12 | $26K | $23K | $2K | $865 |
| Office expensesLn 13 | $156K | $107K | $13K | $36K |
| Information technologyLn 14 | $0 | |||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $136K | $116K | $14K | $7K |
| TravelLn 17 | $95K | $66K | $276 | $30K |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $47K | $18K | $97 | $29K |
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $10K | $7K | $856 | $2K |
| Other expenses (24a–d)Ln 24 | $173K | $81K | $35K | $57K |
| All other expensesLn 24e | $54K | $10K | $35K | $8K |
| Total functional expensesLn 25 | $3.0M | $2.4M | $307K | $342K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2026 Latest Viewing | $2.8M | $3.0M | −$231K | $4.0M | 990 PDF |
| FY2025 | $2.7M | $3.1M | −$327K | $3.8M | 990 PDF |
| FY2024 | $2.4M | $2.9M | −$543K | $3.7M | 990 PDF |
| FY2023 | $3.7M | $3.1M | $609K | $4.1M | 990 PDF |
| FY2022 | $4.4M | $3.0M | $1.4M | $3.7M | 990 PDF |
| FY2021 | $2.5M | $2.0M | $506K | $2.3M | 990 PDF |
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Schedules filed Part IV
See the full FY2026 990 (6 parts)
Part I · Summary $2,781,584 revenue, 12 lines filed
Part VI · Governance 20 of 20 board members independent, 1 to look at
Part VIII · Statement of revenue $2,781,584 across 9 lines filed
Part IX · Statement of functional expenses $3,012,212 across 31 lines filed
Part X · Balance sheet $4,393,568 assets, 21 lines filed
Part XI · Reconciliation of net assets $3,989,814 net assets at year end
Form 990 e-file (XML) FY2026 from the IRS · Classification, formation year and address from the IRS Business Master File
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