To raise money for children and their families impacted by leukodystrophies

501(c)(3) charity; gifts are tax-deductible.
23¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2023 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 6
filings with a surplus
Average surplus $1K a year · under 1% of revenue · last 6 filings
Worth a look: a surplus in 3 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
23%
of spending
Concern: 23% of spending went to programs; under 50%.
Pt IX · Ln 25 · col B
10 mo
of spending, in cash
Looks good: 10.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $10K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$5K
1% of total assets
Looks good: liabilities are 1% of assets; 50% or less.
Pt X · Ln 26
Independent board members
1
of 1 voting members
Looks good: 1 of 1 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$448K
+101% vs prior year
Spent
$354K
To programs
23%
Net assets
$302K
By yearFY2020–FY2025
Revenue
$448K
FY2023▲ +101%
Tap a bar for its year
Revenue by fiscal year
FY2020$383K
FY2021$176K
FY2022$223K
FY2023$448K
FY2024$231K
FY2025$118K
Expenses
$354K
FY2023▲ +48%
Tap a bar for its year
Expenses by fiscal year
FY2020$231K
FY2021$168K
FY2022$239K
FY2023$354K
FY2024$294K
FY2025$284K
Net assets
$302K
FY2023▲ +45%
Tap a bar for its year
Net assets by fiscal year
FY2020$216K
FY2021$224K
FY2022$208K
FY2023$302K
FY2024$239K
FY2025$72K

From the FY2023 Form 990 (year ending February 2023) · see the original

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You’re viewing the FY2023 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 2015.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

23 cents of each dollar spent went to programs.

Program services 23% · $83K Management & general 63% · $223K Fundraising 14% · $48K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

1 person listed on the 990.

Part VII, Section A · reportable compensation · most recent filed roster (FY2022); the FY2023 filing did not itemize Part VII
$0Pt VII · Sec A
See The Calliope Joy Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research and supports families affected by leukodystrophies.

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Provided by the organization

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1 program · $83K · in their own filed words · FY2022
01

Funds used to provide needed care packages and grants to families, and provide fellowships and research grants to hospitals.

$83Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 2 funders$10K
Grants paid · 8 grants · $368K · 2019–2024
Chop FoundationFY2024$100,000
Chop FoundationFY2023$50,000
Orchard Therapeutics North AmericaFY2022$14,000
Individual RecipientFY2022$14,000
Unitemized GrantFY2021$19,686
Childrens Hospital of PhiladelphiaFY2021$15,000
Unitemized GrantFY2020$30,692
Childrens Hospital of PhiladelphiaFY2019$125,000

By the numbers

The FY2023 990, line by line.

1The main four
Money inPt VIII
$448K
Ln 12
Other incomeLn 4–11$333K
Gifts and grantsLn 1h$115K
Investment incomeLn 3$97
Money outPt IX
$354K
Ln 25
Programscol B$83K
Managementcol C$223K
Fundraisingcol D$48K
Owns and owesPt X
$302K
net assets · Ln 32
Cash and savingsLn 1–2$306K
Total assetsLn 16$306K
LiabilitiesLn 26$5K
PeoplePt VI, VII
1
listed · VII A
PaidVII A0
Voting boardVI 1a1
IndependentVI 1b1
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$115K
Investment incomeLn 3$97
Other incomeLn 4–11$333K
Total revenueLn 12$448K
Assets in detailPt X, end of year
CashLn 1$306K
Cash and savings togetherLn 1–2$306K
Total assetsLn 16$306K
LiabilitiesLn 26$5K
Net assetsLn 32$302K
OperationsPt I, VI
EmployeesI 51
VolunteersI 60
Fiscal year endsHeaderFebruary
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY23End FY23
Cash and savingsLn 1–2$208K$306K
Total assetsLn 16$208K$306K
LiabilitiesLn 26$0$5K
Net assetsLn 32$208K$302K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$78K$78K
Pay of disqualified personsLn 6$65K$65K
Payroll taxesLn 10$6K$6K
Legal feesLn 11b$100K$100K
Accounting feesLn 11c$8K$8K
Advertising and promotionLn 12$41K$41K
Office expensesLn 13$5K$1K$4K
Travel and entertainment for public officialsLn 18$3K$3K
Conferences, conventions and meetingsLn 19$7K$7K
Other expenses (24a–d)Ln 24$33K$4K$29K
All other expensesLn 24e$8K$8K
Total functional expensesLn 25$354K$83K$223K$48K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $118K$284K−$166K$72K 990 PDF
FY2024 $231K$294K−$63K$239K 990 PDF
FY2023 Viewing $448K$354K$94K$302K 990 PDF
FY2022 $223K$239K−$16K$208K 990 PDF
FY2021 $176K$168K$8K$224K 990 PDF
FY2020 $383K$231K$152K$216K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2023 990 (6 parts)
Part I · Summary $447,670 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $238,356$114,711
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $31$97
I-11 Other revenuePrior year −$15,269$332,862
I-12 Total revenuePrior year $223,118$447,670
I-13 Grants and similar amounts paidPrior year $34,686$77,577
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $55,491$71,159
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $148,966$205,254
I-18 Total expensesPrior year $239,143$353,990
I-19 Revenue less expensesPrior year −$16,025$93,680
Part VI · Governance 1 of 1 board members independent, 4 to look at
VI-1a Voting members of the governing body1
VI-1b Independent voting members1
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $447,670 across 5 lines filed
VIII-1f All other contributions, gifts and grants$114,711
VIII-1h Total contributions, gifts and grants$114,711
VIII-3 Investment incomeUnrelated business $97$97
VIII-8 Net income from fundraising eventsExcluded from tax $332,862$332,862
VIII-12 Total revenueRelated to mission $0 · Unrelated business $97 · Excluded from tax $332,862$447,670
Part IX · Statement of functional expenses $353,990 across 11 lines filed
IX-1 Grants to domestic organizationsPrograms $77,577$77,577
IX-6 Pay of disqualified personsManagement $65,285$65,285
IX-10 Payroll taxesManagement $5,874$5,874
IX-11b Legal feesManagement $99,534$99,534
IX-11c Accounting feesManagement $7,972$7,972
IX-12 Advertising and promotionFundraising $40,892$40,892
IX-13 Office expensesPrograms $1,023 · Management $4,092$5,115
IX-18 Travel and entertainment for public officialsManagement $3,068$3,068
IX-19 Conferences, conventions and meetingsFundraising $7,179$7,179
IX-24 Other expenses (24a–d)Programs $4,441 · Management $28,992$33,433
IX-24e All other expensesManagement $8,061$8,061
IX-25 Total functional expensesPrograms $83,041 · Management $222,878 · Fundraising $48,071$353,990
Part X · Balance sheet $306,095 assets, 7 lines filed
X-1 Cash, non-interest-bearingStart of year $207,880$306,095
X-16 Total assetsStart of year $207,880$306,095
X-25 Other liabilitiesStart of year $0$4,535
X-26 Total liabilitiesStart of year $0$4,535
X-27 Net assets without donor restrictionsStart of year $207,880$301,560
X-32 Total net assets or fund balancesStart of year $207,880$301,560
X-33 Total liabilities and net assetsStart of year $207,880$306,095
Part XI · Reconciliation of net assets $301,560 net assets at year end
XI-1 Total revenue$447,670
XI-2 Total expenses$353,990
XI-3 Revenue less expenses$93,680
XI-4 Net assets at start of year$207,880
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$301,560

Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File

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