The Calliope Joy Foundation: FY2021 Nonprofit Profile & Form 990 (EIN 90-1005140)

Revenue by fiscal year
FY2020	$383K
FY2021	$176K
FY2022	$223K
FY2023	$448K
FY2024	$231K
FY2025	$118K

Expenses by fiscal year
FY2020	$231K
FY2021	$168K
FY2022	$239K
FY2023	$354K
FY2024	$294K
FY2025	$284K

Net assets by fiscal year
FY2020	$216K
FY2021	$224K
FY2022	$208K
FY2023	$302K
FY2024	$239K
FY2025	$72K

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 2015.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

28 cents of each dollar spent went to programs.

28%

40%

31%

Program services 28% · $48K Management & general 40% · $68K Fundraising 31% · $53K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

1 person listed on the 990.

Part VII, Section A · reportable compensation · most recent filed roster (FY2020); the FY2021 filing did not itemize Part VII

Maria Kefalas

Trustee

$0Pt VII · Sec A

See The Calliope Joy Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research and supports families affected by leukodystrophies.

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Provided by the organization

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1 program · $48K · in their own filed words · FY2020

01

Funds used to provide needed care packages and grants to families, and provide fellowships and research grants to hospitals.

$48Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

American Online Giving Foundation INCFY2024$10K

Pfizer Foundation INCFY2024$50

Total grants receivedfrom 2 funders$10K

Grants paid · 8 grants · $368K · 2019–2024

Chop FoundationFY2024$100,000

Chop FoundationFY2023$50,000

Orchard Therapeutics North AmericaFY2022$14,000

Individual RecipientFY2022$14,000

Unitemized GrantFY2021$19,686

Childrens Hospital of PhiladelphiaFY2021$15,000

Unitemized GrantFY2020$30,692

Childrens Hospital of PhiladelphiaFY2019$125,000

By the numbers

The FY2021 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$176K

Ln 12

Gifts and grantsLn 1h$176K

Investment incomeLn 3$340

Money outPt IX

$168K

Ln 25

Programscol B$48K

Managementcol C$68K

Fundraisingcol D$53K

Owns and owesPt X

$224K

net assets · Ln 32

Cash and savingsLn 1–2$231K

Total assetsLn 16$231K

LiabilitiesLn 26$7K

PeoplePt VI, VII

1

listed · VII A

PaidVII A0

Voting boardVI 1a2

IndependentVI 1b2

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$176K

Investment incomeLn 3$340

Total revenueLn 12$176K

Assets in detailPt X, end of year

CashLn 1$231K

Cash and savings togetherLn 1–2$231K

Total assetsLn 16$231K

LiabilitiesLn 26$7K

Net assetsLn 32$224K

OperationsPt I, VI

EmployeesI 51

VolunteersI 60

Fiscal year endsHeaderFebruary

Conflict-of-interest policyVI 12aNo

Whistleblower policyVI 13No

Records policyVI 14No

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY21	End FY21
Cash and savingsLn 1–2	$219K	$231K
Total assetsLn 16	$219K	$231K
LiabilitiesLn 26	$2K	$7K
Net assetsLn 32	$216K	$224K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic individualsLn 2	$31K	$31K
Other salaries and wagesLn 7	$30K		$30K
Payroll taxesLn 10	$3K		$3K
Accounting feesLn 11c	$119		$119
Other fees for servicesLn 11g	$42K	$17K	$25K
Advertising and promotionLn 12	$53K			$53K
Office expensesLn 13	$6K		$6K
Information technologyLn 14	$1K		$1K
TravelLn 17	$53		$53
Conferences, conventions and meetingsLn 19	$286		$286
InterestLn 20	$122		$122
Other expenses (24a–d)Ln 24	$2K		$2K
Total functional expensesLn 25	$168K	$48K	$68K	$53K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2025 Latest	$118K	$284K	−$166K	$72K	990 PDF
FY2024	$231K	$294K	−$63K	$239K	990 PDF
FY2023	$448K	$354K	$94K	$302K	990 PDF
FY2022	$223K	$239K	−$16K	$208K	990 PDF
FY2021 Viewing	$176K	$168K	$8K	$224K	990 PDF
FY2020	$383K	$231K	$152K	$216K	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2021 990 (6 parts)

Part I · Summary $175,897 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $254,100$175,557

I-9 Program service revenue$0

I-10 Investment incomePrior year $963$340

I-11 Other revenuePrior year $127,614$0

I-12 Total revenuePrior year $382,677$175,897

I-13 Grants and similar amounts paidPrior year $125,477$30,692

I-14 Benefits paid to members$0

I-15 Salaries and benefits$33,015

I-16a Professional fundraising fees$0

I-17 Other expensesPrior year $105,594$104,358

I-18 Total expensesPrior year $231,071$168,065

I-19 Revenue less expensesPrior year $151,606$7,832

Part VI · Governance 2 of 2 board members independent, 4 to look at

VI-1a Voting members of the governing body2

VI-1b Independent voting members2

VI-12a Written conflict of interest policyNo

VI-13 Written whistleblower policyNo

VI-14 Document retention and destruction policyNo

VI-15a Process for setting top official's payNo

VI-2 Family or business relationship among officers or directorsNo

Part VIII · Statement of revenue $175,897 across 4 lines filed

VIII-1f All other contributions, gifts and grants$175,557

VIII-1h Total contributions, gifts and grants$175,557

VIII-3 Investment incomeRelated to mission $340$340

VIII-12 Total revenueRelated to mission $340$175,897

Part IX · Statement of functional expenses $168,065 across 12 lines filed

IX-2 Grants to domestic individualsPrograms $30,692$30,692

IX-7 Other salaries and wagesManagement $30,000$30,000

IX-10 Payroll taxesManagement $3,015$3,015

IX-11c Accounting feesManagement $119$119

IX-11g Other fees for servicesPrograms $17,086 · Management $24,995$42,081

IX-12 Advertising and promotionFundraising $52,766$52,766

IX-13 Office expensesManagement $6,042$6,042

IX-14 Information technologyManagement $1,053$1,053

IX-17 TravelManagement $53$53

IX-19 Conferences, conventions and meetingsManagement $286$286

IX-20 InterestManagement $122$122

IX-24 Other expenses (24a–d)Management $1,836$1,836

IX-25 Total functional expensesPrograms $47,778 · Management $67,521 · Fundraising $52,766$168,065

Part X · Balance sheet $231,369 assets, 7 lines filed

X-1 Cash, non-interest-bearingStart of year $218,539$231,369

X-16 Total assetsStart of year $218,539$231,369

X-17 Accounts payable and accrued expensesStart of year $2,466$7,464

X-26 Total liabilitiesStart of year $2,466$7,464

X-27 Net assets without donor restrictionsStart of year $216,073$223,905

X-32 Total net assets or fund balancesStart of year $216,073$223,905

X-33 Total liabilities and net assetsStart of year $218,539$231,369

Part XI · Reconciliation of net assets $223,905 net assets at year end

XI-1 Total revenue$175,897

XI-2 Total expenses$168,065

XI-3 Revenue less expenses$7,832

XI-4 Net assets at start of year$216,073

XI-10 Net assets at end of year$223,905

Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File

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The Calliope Joy Foundation FY2021 filing

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