The Calliope Joy Foundation EIN 90-1005140 Form 990 (PDF) Claim this org

The Calliope Joy Foundation

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Funds research and supports families affected by leukodystrophies. For fiscal year 2024 it reported $118K in revenue, $284K in expenses, and $72K in net assets.Pt I

Founded
2013
Type
Public charity (501(c)(3)) · Diseases & Disorders
Location
Bala Cynwyd, PA
Website
www.thecalliopejoyfoundation.org
Filings
5 on file (2020–2024)
Revenue
$118KFY2024
Expenses
$284K
Net assets
$72K
People
1
Filings
5
Updates
0
More identity details & actions ⌄
EIN  90-1005140 Public charity (501(c)(3)) Bala Cynwyd, PA Founded 2013
Form 990 (PDF)
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Size
$100K–1M
What they do
Funds research and supports families affected by leukodystrophies.
Leadership
Maria Kefalas · Trustee
Money in and out
$118K revenue, $284K expenses
Bottom line
41% program efficiency
Where the money goes · FY2024
Total revenue
$118K
Pt VIII · Ln 12
Total expenses
$284K
Pt IX · Ln 25
Net assets
$72K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$166K
Where spending went · Part IX cols B–D
Program services $0.41 Management & general $0.41 Fundraising $0.19
Program efficiency
41%
of spending reaches programs▲ +93% vs prior filing year
Operating runway
3.2mo
months of highly liquid reserves at operating expense rate▼ -68% vs prior filing year
Surplus margin
-141%
revenue over expenses, this year▼ -419% vs prior filing year

Summary of the Filing

Part I · fiscal year 2024 · Form 990
Revenue
$118K
FY2024▼ -49%
Expenses
$284K
FY2024▼ -3%
Total assets
$76K
FY2024▼ -69%
Total liabilities
$4K
FY2024▼ -52%
Total revenue
$118K
Pt VIII · Ln 12
Total expenses
$284K
Pt IX · Ln 25
Net assets
$72K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$166K
Total assetsPt X · Ln 16$76K
Program-expense ratioPt IX · col B41%
Voting members of governing bodyPt I · Ln 31
Independent voting membersPt I · Ln 41

Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CThe Calliope Joy Foundation
EINHdr · item D90-1005140
Principal addressHdr · item CBala Cynwyd, PA
Year of formationHdr · item L2013
State of legal domicileHdr · item MPA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFDiseases & Disorders (G40)
Ruling yearIRS BMFJan 2015

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a1
Independent voting membersPt VI · Ln 1b1
Conflict-of-interest policyPt VI · Ln 12aNo
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aNo
Family or business relationships among officers/directorsPt VI · Ln 2No

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
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Mission & Programs · Part III

Where the work happens

1 program service account for $116K of program spending, described in the organization's own filed words · FY2024.
01

Funds used to provide needed care packages and grants to families, and provide fellowships and research grants to hospitals.

$116Kprogram expense

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Statement of Revenue

Part VIII
Other revenue$76K · 65%
Contributions & grants$41K · 35%
Other revenue65%$76K
Contributions & grants35%$41K
Investment income$417
Total revenueLn 12$118K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.41 Management & general $0.41 Fundraising $0.19
Program services41%$116K
Management & general41%$115K
Fundraising19%$53K
Total functional expensesLn 25$284K

Balance Sheet

Part X · end of year
CashLn 1$76K
Total assetsLn 16$76K
Total liabilitiesLn 26$4K
Total net assetsLn 32$72K
Months of cash on handcomputed3.2

Financial Metrics

Form 990 · FY2024 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $76K · Operating expenses/yr $284K
3.2 months
Where the money goes
Program services
Program services $116K · Total expenses $284K
41%
Management & General
Management & general $115K · Total expenses $284K
41%
Fundraising
Fundraising $53K · Total expenses $284K
19%
Cost to raise $1
Fundraising expense (3-yr avg) $55K · Solicited contributions (3-yr avg) $115K
$0.48 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $41K · Total revenue $118K
35%
Government reliance
Government grants — · Total revenue $118K
Earned-income share
Program service revenue $0 · Total revenue $118K
0%
Investment reliance
Investment income $417 · Total revenue $118K
+0.4%
Program self-sufficiency
Program service revenue $0 · Total expenses $284K
0%
Growth & trend
Revenue growth (YoY)
This year $118K · Prior year $231K
-49%
Revenue CAGR
FY2019 $383K · FY2024 $118K
-21%
Net-asset trend (YoY)
End of year $72K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $118K · Expenses $284K
-141%
Liabilities-to-Assets
Total liabilities — · Total assets $76K
Net-asset ratio
Net assets $72K · Total assets $76K
95%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $0 · Other securities (Pt X, ln 12) $0 · Total assets (Pt X, ln 16) $76K
0%
People & payroll
Highest Reported Total Compensation
Individual Maria Kefalas · Reported title Trustee · Highest reported compensation $0 · Total expenses $284K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $53K · Total expenses $284K
19%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 41%
Overhead ratio 41%
Fundraising cost ratio 129%
Revenue growth -49%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 2 funders$10K
Grants paid · 8 grants · $368K · 2019–2024
Chop FoundationFY2024$100,000
Chop FoundationFY2023$50,000
Orchard Therapeutics North AmericaFY2022$14,000
Passage BioFY2022$14,000
Unitemized GrantFY2021$19,686
Childrens Hospital of PhiladelphiaFY2021$15,000
Unitemized GrantFY2020$30,692
Childrens Hospital of PhiladelphiaFY2019$125,000

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$118K revenue · viewing · ⤓ 990 PDF
FY2023$448K revenue · ⤓ 990 PDF
FY2022$223K revenue · ⤓ 990 PDF
FY2021$176K revenue · ⤓ 990 PDF
FY2020$383K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2024IRS
Classification, formation year, addressIRS Business Master File
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