Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2025.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
79 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
16 people listed on the 990; $170K paid to officers and key staff.
Jerry Dawson’s $170K as President is at the 96th percentile of top reported officer pay among 1980 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports people with ALS through member organizations and dues.
Questions for Als United INC
Your first name shows with your question. Als United INC answers here, for everyone.
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ALS United, Inc. carries out its exempt purpose by serving as a collaborative organization for independent ALS service providers. Our activities include: 1. Providing coordination and shared services that benefit organizations serving the ALS community, 2. Carrying on activities and programs that strengthen local ALS support services,3.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $100K | $68K |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $100K | $68K |
| LiabilitiesLn 26 | $0 | $11K |
| Net assetsLn 32 | $100K | $57K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $23K | $18K | $3K | $1K |
| Payroll taxesLn 10 | $2K | $1K | $277 | $92 |
| Management feesLn 11a | $170K | $136K | $26K | $8K |
| Legal feesLn 11b | $676 | $676 | ||
| Accounting feesLn 11c | $1 | $1 | ||
| Advertising and promotionLn 12 | $5K | $5K | $408 | |
| Office expensesLn 13 | $652 | $652 | ||
| Information technologyLn 14 | $400 | $400 | ||
| TravelLn 17 | $11K | $11K | ||
| Conferences, conventions and meetingsLn 19 | $9K | $9K | ||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $4K | $4K | ||
| Other expenses (24a–d)Ln 24 | $20K | $14K | $6K | |
| All other expensesLn 24e | $0 | $0 | $0 | $0 |
| Total functional expensesLn 25 | $245K | $195K | $35K | $15K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $202K | $245K | −$43K | $57K | 990 PDF |
| FY2024 | $100K | $100K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $201,910 revenue, 12 lines filed
Part VI · Governance 15 of 15 board members independent, 2 to look at
Part VIII · Statement of revenue $201,910 across 7 lines filed
Part IX · Statement of functional expenses $245,081 across 14 lines filed
Part X · Balance sheet $68,190 assets, 8 lines filed
Part XI · Reconciliation of net assets $56,736 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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