Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 2022.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
83 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Innovate rare disease treatments, starting with UBA5, by harnessing community power.
Questions for Raiden Science Foundation
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1) We showed via proof of concept that the gene replacement therapy does work at restoring UBA5 levels,2) We initiated a drug re-purposing program for UBA5 at Oregon Health & Science University, 3) We established a partnership with Coriell Institute to create the first-ever UBA5 biobank, 4) We partnered with Baylor College of Medicine to…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $632K | $741K |
| InvestmentsLn 11–13 | $0 | |
| Land, buildings, equipmentLn 10c | $431 | $2K |
| Total assetsLn 16 | $632K | $747K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $632K | $747K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $0 | |||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $0 | |||
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $0 | |||
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $1K | $1K | ||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $0 | |||
| Advertising and promotionLn 12 | $10K | $10K | ||
| Office expensesLn 13 | $2K | $2K | ||
| Information technologyLn 14 | $0 | |||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $0 | |||
| TravelLn 17 | $13K | $13K | ||
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $477 | $477 | ||
| InsuranceLn 23 | $0 | |||
| Other expenses (24a–d)Ln 24 | $222K | $211K | $11K | |
| All other expensesLn 24e | $6K | $380 | $4K | $1K |
| Total functional expensesLn 25 | $255K | $212K | $42K | $1K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $369K | $255K | $115K | $747K | 990 PDF |
| FY2024 | $135K | $253K | −$118K | $632K | 990 PDF |
| FY2023 | $479K | $66K | $413K | $751K | 990 PDF |
| FY2022 | $348K | $14K | $334K | $338K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $369,329 revenue, 12 lines filed
Part VI · Governance 0 of 6 board members independent, 5 to look at
Part VIII · Statement of revenue $369,329 across 9 lines filed
Part IX · Statement of functional expenses $254,813 across 31 lines filed
Part X · Balance sheet $747,010 assets, 16 lines filed
Part XI · Reconciliation of net assets $747,010 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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