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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Cancer Research Fund of the Damon Runyon-Walter Winchell Foundation Accelerating breakthroughs by funding the most innovative young CANCER researchers 13-1933825 · FY2024 New York, NY $54.7M $25.1M $170.4M 89% 7% 22 501(c)(3)
National Organization for Rare Disorders INC Nord strives to improve the health and well-being of people with RARE diseases by driving advances in care… 13-3223946 · FY2024 Norwell, MA $50.7M $43.0M $66.9M 83% 7% 116 501(c)(3)
Global Coalition for Adaptive Research INC Our mission is pioneering collaborative, innovative clinical trials to speed the discovery and development of… 82-1199380 · FY2024 Larkspur, CA $27.7M $30.9M $78.1M 87% 0% 40 501(c)(3)
Healthtree Foundation INC Providing patient-centered tools, education, and support to those with rare diseases using a… 45-5354811 · FY2024 South Jordan, UT $7.5M $7.3M $2.9M 85% 1% 56 501(c)(3)
Foundation for Prader Willi Research Supports RESEARCH to advance the understanding and treatment of PRADER-WILLI syndrome 31-1763110 · FY2024 Covina, CA $6.2M $6.1M $8.9M 87% 6% 11 501(c)(3)
Rare Village Foundation To fight for cures for RARE diseases and empower individuals with RARE diseases to live their best lives… 83-4699994 · FY2024 McKinney, TX $3.5M $3.1M $3.3M 97% 1% 1 501(c)(3)
Cancollaborate Dedicated to creating innovative collaborations in pursuit of treatments for rare cancers. 93-3328660 · FY2024 Bedford, MA $2.1M $490.4K $1.8M 63% 14% 1 501(c)(3)
Rare Cancer Research Foundation The RARE CANCER RESEARCH FOUNDATION is dedicated to curing RARE cancers through strategic investments and… 46-3405526 · FY2024 Durham, NC $1.8M $2.2M $1.4M 74% 7% 9 501(c)(3)
Vhl Alliance INC To support efforts to cure von-hippel-lindau disease: to provide a support network for patients & their… 04-3180414 · FY2024 Boston, MA $1.2M $1.0M $2.6M 77% 13% 501(c)(3)
A Foundation Building Strength INC To find treatments for nemaline myopathy. 26-1761329 · FY2024 Palo Alto, CA $1.0M $1.2M $3.4M 90% 7% 501(c)(3)
Castleman Disease Collaborative Network To develop awareness of castleman's DISEASE and to raise money to fund education and laboratory research to… 37-1510354 · FY2024 Paso Robles, CA $979.0K $961.1K $3.0M 87% 0% 501(c)(3)
The Education and Research Fdntn for Nuclear Medcn Molecular Imagin The major activities for the foundation are: to provide grants, awards and scholarships to the society of… 23-7048300 · FY2024 Omaha, NE $912.0K $790.1K $7.3M 72% 12% 2 501(c)(3)
Asxl Rare Research Endowment Foundation A family-led organization that supports research to increase the understanding of the ASXL gene family and… 82-3890665 · FY2024 Gorham, ME $887.6K $474.9K $1.1M 80% 5% 1 501(c)(3)
Foundation for Rare Disease Research INC Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare… 92-0534021 · FY2024 Silver Spring, MD $668.5K $1.5M $2.4M 100% 0% 501(c)(3)
Achieving Cures Together To save lives through advancing microbiome research. 47-5158356 · FY2024 St Louis Park, MN $440.5K $403.8K $290.7K 68% 0% 2 501(c)(3)
Wards Foundation Working to advance rare disease support in order to improve the lives of people affected by rare diseases. 86-1600365 · FY2024 Charlotte, NC $420.1K $121.1K $1.4M 421% 20% 501(c)(3)
Apbd Research Foundation To fund medical RESEARCH for the treatment and public education of adult polyglucosan body disease. 20-3609790 · FY2024 New York, NY $363.8K $410.8K $513.4K 96% 0% 501(c)(3)
United Msd Foundation INC Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase… 81-3669443 · FY2024 Biloxi, MS $330.5K $388.2K $223.9K 67% 14% 8 501(c)(3)
Undiagnosed Diseases Network Foundation The udnf's mission is to improve access to diagnosis, research, and care for all with UNDIAGNOSED and… 87-3474254 · FY2024 Washington, DC $329.0K $1.4M $410.5K 98% 1% 501(c)(3)
Cruisin for a Cure To procure contribution and support to KSK Cancer center of irvine an similar organizations to raise… 33-0927644 · FY2024 Mission Viejo, CA $321.7K $437.0K $1.3M 51% 0% 1 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
The Jed Ian Taxel Foundation for Rare Cancer Research INC To inspire and empower scientific breakthroughs, clinical trials and improved treatments which change lives… 86-2610819 · FY2024 Park City, UT $309.1K $393.9K $295.3K 69% 14% 501(c)(3)
Rare Sisters Batten Foundation INC The RARE SISTERS BATTEN FOUNDATION aims to help further the development of medical research for treatments… 84-4406415 · FY2024 Arvada, CO $297.8K $242.7K $197.4K 67% 31% 501(c)(3)
Columbus Children's Foundation Accelerating the most effective gene therapy treatments for children with ultra-rare diseases. 83-1456169 · FY2023 Chapel Hill, NC $267.8K $619.0K $1.1M 60% 10% 1 501(c)(3)
Angels Hands Foundation INC To improve the quality of life for individuals living with rare diseases. 87-0674033 · FY2025 South Jordan, UT $204.3K $175.4K $606.7K 93% 0% 501(c)(3)
Cush IT to the Limit Advance research patient support for rare blood cancers 84-1954739 · FY2024 Sammamish, WA $168.8K $29.3K $214.3K 85% 0% 501(c)(3)
Cure Ahc Foundation Research project with aarhus university(denmark) 46-1475239 · FY2024 Rolesville, NC $145.5K $81.0K $580.6K 67% 7% 501(c)(3)
Goshen Cancer Foundation To provide financial support for cancer research and treatment. 31-1644388 · FY2024 Reynoldsburg, OH $144.2K $79.6K $94.0K 48% 0% 501(c)(3)
Childrens Rare Disorders Fund 88-3452294 · FY2023 East Hampton, NY $126.2K $0 501(c)(3)
Sage Foundation for Health 86-1026436 · FY2023 Tempe, AZ $111.3K $4.4K 501(c)(3)
United Against Cancer Foundation 93-2589983 · FY2024 Secaucus, NJ $109.9K $37.7K 501(c)(3)
Community Medical Education and Research Foundation 23-7102977 · FY2023 Bakersfield, CA $107.4K $112.7K 501(c)(3)
Rare Trait Hope Fund The mission and primary exepmt purpose is to facilitate research, raise funds and support development of… 46-2762646 · FY2024 Belle Chasse, LA $103.8K $56.0K 501(c)(3)
Rad Project INC Funraising for cancer research 83-2851579 · FY2020 Brentwood, TN $93.5K $93.5K $0 100% 0% 501(c)(3)
Forgotten Diseases Research Foundation 45-4470463 · FY2024 Santa Clara, CA $87.1K $156.9K 501(c)(3)
Foundation for Thymic Cancer Research 02-0622353 · FY2024 Sleepy Hollow, NY $82.5K $27.7K 501(c)(3)
Foundation for Usp7 - Related Diseases To cure USP7-RELATED DISEASES by funding research and identifying more patients. 82-1697564 · FY2024 Falmouth, ME $76.0K $37.8K $234.1K 58% 31% 501(c)(3)
Power Forward Utah To de-stigmatize the disease of addiction through education, empowerment, and innovation 92-2060154 · FY2024 Brighton, UT $47.2K $206.7K $488.9K 88% 12% 1 501(c)(3)
Indo US Organization for Rare Diseases 84-3794099 · FY2024 Herndon, VA $37.7K $54.6K 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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