Is it real?
Yes. Exemption reinstated (2021-05-15). Per the IRS revocation list. Latest filing on record: FY2024. IRS ruling in Mar 2022.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
98 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Fund research and connect patients with information to find a cure for Leiomyosarcoma.
Questions for Lmsarcoma Direct Research Foundation
Your first name shows with your question. Lmsarcoma Direct Research Foundation answers here, for everyone.
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The major program is to raise funds for the researching a cure for Leio0myosarcoma, a rare cancer. Very little money is invested in seed grants to discover methods that may lead to a cure. Research is done by reputable organizations.
We sponsored a conference to inform and update patients and caregivers on the current treatments and research.
We have a Support Group Lifeline in order to serve newly diagnosed patients with information, support, guidance, and hope for treatment of their condition.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $716K | $916K |
| Total assetsLn 16 | $716K | $916K |
| LiabilitiesLn 26 | $2K | $0 |
| Net assetsLn 32 | $714K | $916K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $212K | $212K | ||
| Grants to domestic individualsLn 2 | $0 | $0 | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | $0 | ||
| Benefits paid to or for membersLn 4 | $0 | $0 | ||
| Pay of current officers, directors and key staffLn 5 | $0 | $0 | $0 | $0 |
| Pay of disqualified personsLn 6 | $0 | $0 | $0 | $0 |
| Other salaries and wagesLn 7 | $0 | $0 | $0 | $0 |
| Pension plan contributionsLn 8 | $0 | $0 | $0 | $0 |
| Other employee benefitsLn 9 | $0 | $0 | $0 | $0 |
| Payroll taxesLn 10 | $0 | $0 | $0 | $0 |
| Management feesLn 11a | $0 | $0 | $0 | $0 |
| Legal feesLn 11b | $0 | $0 | $0 | $0 |
| Accounting feesLn 11c | $3K | $0 | $3K | $0 |
| Lobbying feesLn 11d | $0 | $0 | $0 | $0 |
| Professional fundraising feesLn 11e | $0 | $0 | ||
| Investment management feesLn 11f | $0 | $0 | $0 | $0 |
| Other fees for servicesLn 11g | $0 | $0 | $0 | $0 |
| Advertising and promotionLn 12 | $0 | $0 | $0 | $0 |
| Office expensesLn 13 | $6K | $4K | $1K | |
| Information technologyLn 14 | $2K | $2K | $0 | $0 |
| RoyaltiesLn 15 | $0 | $0 | $0 | $0 |
| OccupancyLn 16 | $0 | $0 | $0 | $0 |
| TravelLn 17 | $1K | $1K | $0 | $0 |
| Conferences, conventions and meetingsLn 19 | $6K | $6K | $0 | $0 |
| InterestLn 20 | $0 | $0 | $0 | $0 |
| Payments to affiliatesLn 21 | $0 | $0 | $0 | $0 |
| Depreciation, depletion and amortizationLn 22 | $0 | $0 | $0 | $0 |
| InsuranceLn 23 | $0 | $0 | $0 | $0 |
| Total functional expensesLn 25 | $230K | $226K | $4K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.5M | $330K | $1.1M | $2.1M | 990 PDF |
| FY2023 Viewing | $432K | $230K | $202K | $916K | 990 PDF |
| FY2022 | $374K | $226K | $149K | $714K | 990 PDF |
| FY2021 | $294K | $274K | $20K | $565K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $432,152 revenue, 12 lines filed
Part VI · Governance 3 of 3 board members independent, 3 to look at
Part VIII · Statement of revenue $432,152 across 11 lines filed
Part IX · Statement of functional expenses $230,111 across 28 lines filed
Part X · Balance sheet $915,978 assets, 7 lines filed
Part XI · Reconciliation of net assets $915,978 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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