Status and standing
Is it real, and can you give to it?
Where the money goes
What each dollar paid for.
Statement of Functional Expenses
Financial health
Is it on solid ground?
Summary of the Filing
| FY2021 | $567K |
|---|---|
| FY2022 | $716K |
| FY2023 | $916K |
| FY2024 | $2.1M |
| FY2021 | $2K |
|---|---|
| FY2022 | $2K |
| FY2023 | $0 |
| FY2024 | $1K |
Balance Sheet
Statement of Revenue
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 98% | — | — |
| Overhead ratio | 2% | — | — |
| Fundraising cost ratio | 0% | — | — |
| Revenue growth | 239% | — | — |
| Investment management fee ratio | 0% | — | — |
| Accounting fee ratio | 1.0% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Leadership and pay
Who runs it, and what are they paid?
Officers, Directors & Key Employees
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Governance & Policies
- 4Voting board membersPt VI · Ln 1a
- 3Independent board membersPt VI · Ln 1b
- Conflict-of-interest policyPt VI · Ln 12aYes
- Whistleblower policyPt VI · Ln 13No
- Document retention policyPt VI · Ln 14No
- Top official’s pay independently reviewedPt VI · Ln 15aNo
- Family or business ties among leadersPt VI · Ln 2Yes
Mission and programs
What it does.
Fund research and connect patients with information to find a cure for Leiomyosarcoma.
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Where the work happens
The major program is to raise funds for the researching a cure for Leio0myosarcoma, a rare cancer. Very little money is invested in seed grants to discover methods that may lead to a cure. Research is done by reputable organizations. LMSDR was able to fund 4 different research projects.
LMSDR sponsors conference where researchers can collaborate with each other and presents there work to LMS patients and caregivers.
We have a Support Group Lifeline in order to serve newly diagnosed patients with information, support, guidance, and hope for treatment of their condition.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
Filing history
Every return on file.
| Year | Revenue | Expenses | Change | Filing |
|---|---|---|---|---|
| FY2024 Latest Viewing | $1.5M | $330K | +239% | 990 PDF |
| FY2023 | $432K | $230K | +15% | 990 PDF |
| FY2022 | $374K | $226K | +27% | 990 PDF |
| FY2021 | $294K | $274K | 990 PDF |
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Schedules filed Part IV
Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.
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Sources
Names, privacy, and removal requests More
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