Is it real?
Yes. Exemption reinstated (2021-05-15). Per the IRS revocation list. Latest filing on record: FY2024. IRS ruling in Mar 2022.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
97 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Fund research and connect patients with information to find a cure for Leiomyosarcoma.
Questions for Lmsarcoma Direct Research Foundation
Your first name shows with your question. Lmsarcoma Direct Research Foundation answers here, for everyone.
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We funded 5 additional cancer research grants to accelerate the knowledge toward treatment for Leiomyosarcoma.
$50,000 awarded to Cedar Sinai Medical Center for their research into Novel Treatments for Leiomyosarocoma. They have built a collection of clinically relevant active regulatory regions in uterine LMS genomes by mapping DNA elements that are responsible to turn on tumor-specific gene expression.
We established a Support Group Lifeline in order to serve newly diagnosed patients with information, support, guidance, and hope for treatment of their condition.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $567K | $716K |
| Total assetsLn 16 | $567K | $716K |
| LiabilitiesLn 26 | $2K | $2K |
| Net assetsLn 32 | $565K | $714K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $213K | $213K | ||
| Grants to domestic individualsLn 2 | $0 | $0 | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | $0 | ||
| Benefits paid to or for membersLn 4 | $0 | $0 | ||
| Pay of current officers, directors and key staffLn 5 | $0 | $0 | $0 | $0 |
| Pay of disqualified personsLn 6 | $0 | $0 | $0 | $0 |
| Other salaries and wagesLn 7 | $0 | $0 | $0 | $0 |
| Pension plan contributionsLn 8 | $0 | $0 | $0 | $0 |
| Other employee benefitsLn 9 | $0 | $0 | $0 | $0 |
| Payroll taxesLn 10 | $0 | $0 | $0 | $0 |
| Accounting feesLn 11c | $2K | $2K | ||
| Office expensesLn 13 | $1K | $1K | ||
| Information technologyLn 14 | $6K | $6K | ||
| Other expenses (24a–d)Ln 24 | $3K | $0 | $0 | $3K |
| Total functional expensesLn 25 | $226K | $219K | $3K | $3K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.5M | $330K | $1.1M | $2.1M | 990 PDF |
| FY2023 | $432K | $230K | $202K | $916K | 990 PDF |
| FY2022 Viewing | $374K | $226K | $149K | $714K | 990 PDF |
| FY2021 | $294K | $274K | $20K | $565K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $374,295 revenue, 12 lines filed
Part VI · Governance 3 of 4 board members independent, 4 to look at
Part VIII · Statement of revenue $374,295 across 11 lines filed
Part IX · Statement of functional expenses $225,656 across 14 lines filed
Part X · Balance sheet $715,769 assets, 7 lines filed
Part XI · Reconciliation of net assets $713,937 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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