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Rarerising FY2023 filing

Tax-deductible

Colgate, WI501(c)(3)Since 2020Health Care EIN 85-3253125Revenue $370K in FY2023

On file with the IRSrarerising.org3974 Windemere Dr, 53017-9142 · Colgate, WITax-exempt since Mar 2021Publicly supported charity — 170(b)(1)(A)(vi)

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Deliver patient-centered, evidence-based research, incubate emerging rare disease entities on their journey, and explore novel solutions to positively impact rare disease communities.

501(c)(3) charity; gifts are tax-deductible.
96¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

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FY2023 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 3
filings with a surplus
Average surplus $7K a year · 3% of revenue · last 3 filings
Worth a look: a surplus in 1 of the last 3 filings.
Pt I · Ln 19 · 3 filings
Spent on programs
96%
of spending
Looks good: 96% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
7 mo
of spending, in cash
Looks good: 6.7 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $15K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
4
of 4 voting members
Looks good: 4 of 4 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$370K
+100% vs prior year
Spent
$277K
To programs
96%
Net assets
$158K
By yearFY2022–FY2025
Revenue
$370K
FY2023▲ +100%
Tap a bar for its year
Revenue by fiscal year
FY2022$185K
FY2023$370K
FY2024$182K
FY2025$257K
Expenses
$277K
FY2023
Tap a bar for its year
Expenses by fiscal year
FY2022Not on file
FY2023$277K
FY2024$245K
FY2025$267K
Net assets
$158K
FY2023▲ +145%
Tap a bar for its year
Net assets by fiscal year
FY2022$64K
FY2023$158K
FY2024$96K
FY2025$86K

From the FY2023 Form 990 · see the original

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You’re viewing the FY2023 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2021.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

96 cents of each dollar spent went to programs.

Program services 96% · $266K Management & general 4% · $11K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

4 people listed on the 990.

Part VII, Section A · reportable compensation
Mousumi Bose
Board Member
$0Pt VII · Sec A
Gabriela Prudencio
Board Member
$0Pt VII · Sec A
Fernando Sanchez
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
See Rarerising executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Improves healthcare access and quality for underserved people with rare conditions through research and programs.

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Provided by the organization

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1 program · $266K · in their own filed words · FY2023
01

Delivers patient-centered, evidence-based research and explore novel solutions to positively impact underserved communities with rare and serious chronic health conditions.

$266Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2022
American Online Giving Foundation INCFY2022$10K
The Blackbaud Giving FundFY2022$6K
Total grants receivedfrom 2 funders$15K
Grants paid · 2 grants · $40K · 2023–2024
Hemophilia Foundation of Northern CaliforniaCA · FY2024$20,000
Hemophilia Foundation of Northern CaliforniaCA · FY2023$20,000

By the numbers

The FY2023 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$370K
Ln 12
Gifts and grantsLn 1h$370K
Money outPt IX
$277K
Ln 25
Programscol B$266K
Managementcol C$11K
Owns and owesPt X
$158K
net assets · Ln 32
Cash and savingsLn 1–2$155K
Total assetsLn 16$158K
LiabilitiesLn 26$0
PeoplePt VI, VII
4
listed · VII A
PaidVII A0
Voting boardVI 1a4
IndependentVI 1b4
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$370K
Government grantsLn 1e$681
Total revenueLn 12$370K
Assets in detailPt X, end of year
CashLn 1$155K
Cash and savings togetherLn 1–2$155K
Land, buildings, equipmentLn 10c$1K
Total assetsLn 16$158K
LiabilitiesLn 26$0
Net assetsLn 32$158K
OperationsPt I, VI
EmployeesI 51
VolunteersI 675
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY23End FY23
Cash and savingsLn 1–2$62K$155K
Land, buildings, equipmentLn 10c$2K$1K
Total assetsLn 16$64K$158K
LiabilitiesLn 26$0$0
Net assetsLn 32$64K$158K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$21K$21K
Benefits paid to or for membersLn 4$209$209
Other salaries and wagesLn 7$40K$36K$4K
Accounting feesLn 11c$2K$2K
Other fees for servicesLn 11g$126K$126K
Office expensesLn 13$29K$26K$3K
TravelLn 17$39K$39K
Conferences, conventions and meetingsLn 19$6K$6K
Depreciation, depletion and amortizationLn 22$886$797$89
InsuranceLn 23$1K$1K
Other expenses (24a–d)Ln 24$12K$11K$215
Total functional expensesLn 25$277K$266K$11K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $257K$267K−$10K$86K 990 PDF
FY2024 $182K$245K−$62K$96K 990 PDF
FY2023 Viewing $370K$277K$93K$158K 990 PDF
FY2022 $185K$64K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2023 990 (6 parts)
Part I · Summary $370,330 revenue, 12 lines filed
I-8 Contributions and grants$370,330
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenue$370,330
I-13 Grants and similar amounts paid$20,850
I-14 Benefits paid to members$209
I-15 Salaries and benefits$39,536
I-16a Professional fundraising fees$0
I-17 Other expenses$216,277
I-18 Total expenses$276,872
I-19 Revenue less expenses$93,458
Part VI · Governance 4 of 4 board members independent, 1 to look at
VI-1a Voting members of the governing body4
VI-1b Independent voting members4
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $370,330 across 4 lines filed
VIII-1e Government grants$681
VIII-1f All other contributions, gifts and grants$369,649
VIII-1h Total contributions, gifts and grants$370,330
VIII-12 Total revenue$370,330
Part IX · Statement of functional expenses $276,872 across 11 lines filed
IX-1 Grants to domestic organizationsPrograms $20,850$20,850
IX-4 Benefits paid to or for membersPrograms $209$209
IX-7 Other salaries and wagesPrograms $35,582 · Management $3,954$39,536
IX-11c Accounting feesManagement $2,411$2,411
IX-11g Other fees for servicesPrograms $126,274$126,274
IX-13 Office expensesPrograms $26,139 · Management $2,838$28,977
IX-17 TravelPrograms $39,037$39,037
IX-19 Conferences, conventions and meetingsPrograms $5,875$5,875
IX-22 Depreciation, depletion and amortizationPrograms $797 · Management $89$886
IX-23 InsuranceManagement $1,245$1,245
IX-24 Other expenses (24a–d)Programs $11,357 · Management $215$11,572
IX-25 Total functional expensesPrograms $266,120 · Management $10,752 · Fundraising $0$276,872
Part X · Balance sheet $157,839 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $62,166$155,383
X-9 Prepaid expenses and deferred charges$1,127
X-10c Land, buildings and equipment, netStart of year $2,215$1,329
X-16 Total assetsStart of year $64,381$157,839
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $64,381$157,839
X-32 Total net assets or fund balancesStart of year $64,381$157,839
X-33 Total liabilities and net assetsStart of year $64,381$157,839
Part XI · Reconciliation of net assets $157,839 net assets at year end
XI-1 Total revenue$370,330
XI-2 Total expenses$276,872
XI-3 Revenue less expenses$93,458
XI-4 Net assets at start of year$64,381
XI-10 Net assets at end of year$157,839

Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File

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