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Organization	Location	Revenue	Expenses	Assets	Program	Fundr. cost	Employees	Type
Patient Access Network Foundation To help underinsured people with life-threatening, chronic and rare diseases get the medications and… 20-1184743 · FY2024	Washington, DC	$203.0M	$164.3M	$471.3M	89%	1%	31	501(c)(3)
National Organization for Rare Disorders INC Nord strives to improve the health and well-being of people with RARE diseases by driving advances in care… 13-3223946 · FY2024	Norwell, MA	$50.7M	$43.0M	$66.9M	83%	7%	116	501(c)(3)
Project Vida Health Center To increase overall HEALTH and wellness by providing integrated primary care services, preventive and… 68-0541648 · FY2023	El Paso, TX	$18.3M	$19.5M	$7.7M	87%	0%	150	501(c)(3)
Firstmed Health & Wellness Center INC Provide access to healthcare for the underinsured and uninsured. 27-0759056 · FY2024	Las Vegas, NV	$12.1M	$11.9M	$2.8M	64%	0%	84	501(c)(3)
Equity Health Our mission is to ensure health care access to quality comprehensive health care services for persons who are… 23-7304921 · FY2024	San Francisco, CA	$11.8M	$12.9M	$18.9M	84%	0%	53	501(c)(3)
Evidence for Healthcare Improvement Better health for all americans through sustainable access to high-value health care. 46-3250612 · FY2024	Boston, MA	$9.2M	$8.9M	$11.9M	77%	1%	44	501(c)(3)
Priority Health Care INC Provide holistic HEALTH CARE to underserved communities that empower people to live healthy lives. 27-0846901 · FY2024	Marrero, LA	$7.8M	$7.3M	$15.0M	47%	—	65	501(c)(3)
Healthtree Foundation INC Providing patient-centered tools, education, and support to those with rare diseases using a… 45-5354811 · FY2024	South Jordan, UT	$7.5M	$7.3M	$2.9M	85%	1%	56	501(c)(3)
The Achievable Foundation ACHIEVABLE health's mission is to provide high-quality healthcare to our community, with a specialty in… 95-4552419 · FY2024	Culver City, CA	$6.3M	$5.3M	$8.4M	78%	6%	37	501(c)(3)
Cure Rare Disease INC Our mission is to enable and finance the development of life-saving genetic medicines for ultra-RARE patient… 82-2473513 · FY2023	Woodbridge, CT	$4.4M	$2.0M	$9.2M	88%	5%	9	501(c)(3)
The Center for Health Innovation Working with communities to advance HEALTH and social justice through innovative and effective policies and… 47-2498200 · FY2024	Silver City, NM	$4.0M	$4.0M	$1.6M	86%	0%	37	501(c)(3)
Partnership for Cures To help patients by raising funds to find, vet, finance & manage pilot human clinical research that… 20-3620169 · FY2024	Chicago, IL	$3.9M	$1.3M	$7.5M	86%	5%	3	501(c)(3)
Reproductive Health Care Center INC To provide comprehensive healthcare that is accessible to the underserved and indigent populations. 95-3447973 · FY2023	Fullerton, CA	$3.5M	$2.7M	$7.7M	90%	0%	33	501(c)(3)
Rare Village Foundation To fight for cures for RARE diseases and empower individuals with RARE diseases to live their best lives… 83-4699994 · FY2024	McKinney, TX	$3.5M	$3.1M	$3.3M	97%	1%	1	501(c)(3)
Institute for Exceptional Care Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive. 85-1278444 · FY2024	Washington, DC	$3.1M	$1.9M	$2.5M	60%	14%	—	501(c)(3)
Institute for Research and Education in Family Medicine To strengthen underserved communities, one patient at a time, to promote community health. 43-1863752 · FY2024	Saint Louis, MO	$2.3M	$2.4M	$1.4M	81%	1%	15	501(c)(3)
Justice Access Support and Solutions for Health Casa de salud provides HEALTH care and other services to low-income, indigent, and underved populations in… 42-1753563 · FY2024	Albuquerque, NM	$2.0M	$1.6M	$966.0K	88%	3%	36	501(c)(3)
Health Care Access Now To improve the ACCESS to and delivery of healthcare for greater cincinnati's medically underserved… 26-4042151 · FY2023	Cincinnati, OH	$1.9M	$2.2M	$416.6K	80%	0%	—	501(c)(3)
Rare Cancer Research Foundation The RARE CANCER RESEARCH FOUNDATION is dedicated to curing RARE cancers through strategic investments and… 46-3405526 · FY2024	Durham, NC	$1.8M	$2.2M	$1.4M	74%	7%	9	501(c)(3)
Health Care for Special Populations To improve quality and reduce costs through coordination of care and data integration for the most costly and… 80-0515910 · FY2024	Houston, TX	$1.5M	$1.4M	$99.4K	99%	0%	21	501(c)(3)
Center for Population Health Improving HEALTH through collaboration, outreach, and education. 92-2689886 · FY2024	Johnstown, PA	$1.4M	$1.3M	$554.8K	76%	0%	6	501(c)(3)
International Society for Quality Life Research To advance the scientific study of health-related QUALITY of LIFE and other patient-centered outcomes to… 54-1985637 · FY2024	Milwaukee, WI	$1.2M	$1.2M	$1.2M	71%	0%	—	501(c)(3)
Covered Community Our mission is to improve the health and wealth of the community we serve by providing opportunities with… 47-3399350 · FY2024	Los Angeles, CA	$1.1M	$898.5K	$276.2K	63%	4%	5	501(c)(3)
Foundation for Rare Disease Research INC Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare… 92-0534021 · FY2024	Silver Spring, MD	$668.5K	$1.5M	$2.4M	100%	0%	—	501(c)(3)
Blueprints for Pangaea To promote and support health equity by providing resources to underserved communities. 46-3599140 · FY2024	Northville, MI	$665.0K	$674.3K	$12.4K	100%	0%	—	501(c)(3)
Innovations in Reproductive Health Access The specific purpose of this Corporation is primarily to incubate new research education and… 86-2767502 · FY2024	Emeryville, CA	$460.0K	$446.3K	$396.8K	92%	0%	—	501(c)(3)
The N 1 Collaborative INC To make individualized medicines routinely and rapidly accessible to rare disease patients worldwide. 88-2591503 · FY2024	Somerville, MA	$453.3K	$445.2K	$696.9K	58%	15%	2	501(c)(3)
Health Tech for Medicaid Accelerate innovation in MEDICAID, improving quality and access for people who need IT most. 85-2492511 · FY2024	Oakland, CA	$439.0K	$663.8K	$352.5K	98%	0%	—	501(c)(3)
Wards Foundation Working to advance rare disease support in order to improve the lives of people affected by rare diseases. 86-1600365 · FY2024	Charlotte, NC	$420.1K	$121.1K	$1.4M	421%	20%	—	501(c)(3)
The Patient Helpline Foundation INC Reduce barriers to care, offering personalized assistance on issues like insurance coverage, treatment… 47-5016851 · FY2024	Washington, DC	$394.7K	$612.3K	$210.8K	63%	11%	—	501(c)(3)
Cruisin for a Cure To procure contribution and support to KSK Cancer center of irvine an similar organizations to raise… 33-0927644 · FY2024	Mission Viejo, CA	$321.7K	$437.0K	$1.3M	51%	0%	1	501(c)(3)
Health Solutions Research Incorporated To RESEARCH the needs of patients and providers in an effort to increase access to high quality HEALTH care… 46-2692542 · FY2023	Rockville, MD	$310.7K	$1.3M	$226.4K	87%	0%	19	501(c)(3)
Uplift UPLIFT provides advocacy and support for families of children with complex behavorial health challenges and… 83-0293525 · FY2024	Cheyenne, WY	$187.4K	—	$29.8K	—	—	5	501(c)(3)
Healthcare Education Research and Innovation Foundation Ltd Purpose is to develop and support high impact programs that seek to transform patient-centered care for… 45-4253575 · FY2024	Oak Park, IL	$183.0K	$425.6K	$792.3K	55%	13%	4	501(c)(3)
Center for Healthcare Innovation To bring experts and ideas from all over the world to improve HEALTHCARE for everyone, regardless of… 27-3041119 · FY2024	Chicago, IL	$176.0K	$182.6K	$149.0K	84%	0%	2	501(c)(3)
Cush IT to the Limit Advance research patient support for rare blood cancers 84-1954739 · FY2024	Sammamish, WA	$168.8K	$29.3K	$214.3K	85%	0%	—	501(c)(3)
Prince Wend Medical and Healthcare Center to Provide Medical and Health Care Services to Underserved Communities 90-0428485 · FY2023	Washington, DC	$134.1K	—	$13.0K	—	—	—	501(c)(3)
Omslife Foundation INC For research and awareness of rare deseases 45-4696128 · FY2025	Cypress, TX	$59.1K	—	$95.3K	—	—	—	501(c)(3)
Indo US Organization for Rare Diseases 84-3794099 · FY2024	Herndon, VA	$37.7K	—	$54.6K	—	—	—	501(c)(3)

2,046,138

nonprofits

212,946

funders

12,515,252

grants

22,549,931

directors

214,365

service providers

549,896,012

financial lines

Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org